Hi Gill

It's lovely to hear from you,how are you getting on,??? When do you go to France,the first year is hardest,I hope to hear you have a smile on your face thinking of all the good times you had with Stephen.

Slim looks great curly hair and has put on weight!!!,aching bones bad back,and co ordination a bit off,good job we have plenty of…[Read more]

Thanks Mavis and Babs

I have seen what they offer at Cancer Club plus Hospic,I have all ways thought it was for the patient not carer.
If I tried to get Slim to go he would not want to know,stubborn is his middle name.

Thank you Mavis I know are believes are different,but I do have a lot of respect for people who can hold there faith,…[Read more]

Hi Maureen

You are learning fast,keep you eyes open only way to get good care.

Sorry you are so tired have you tried catnapping I use to come home from hospital take phone of hook and go straight to bed, before that the phone rang just as I was dropping off,I cannot repeat what I said to who ever it was.

You do need to recharge your…[Read more]

Hi Dai

The way they work it you begin with Zometer once a month,but it becomes less effect as time progresses,by the time you haveSCT or remission you attend hospital every 2 months so they fit Zometer in with your hospital regime Eve

Hi Vikki and Colin

Don't apologise Vikki I know exactly how you are feeling. :-S congratulations on your promotion well done you. I don't want to sound selfish but three years ago I had the chance of taking early retirement and after talking it over with Frank I did. Don't get me wrong I wouldn't change it but I sometimes wish that I had…[Read more]

Hi sue

Only do it when your ready!!

Matty's ashers have not been scatted yet and it,s coming up to a year.
They have been remon
Ved from the thing from the undertakers,my daughter bought a beutiful globe,I told her if she gets burgled that's the first thing they would take,the family are. not ready and have not found a resting place for…[Read more]

Hi Helen

Mind running riot. As Franks PPs were dropping long before CDT consultant suspected non secretory. Nothing was done to find out but Ellen had said it would be very unusual to change after 6 years. As far as I know a BMB is the way to find out if there is any progression of the MM. seeing her on Thursday so will ask then

I have…[Read more]

Hi Jean
Good to hear Franks bloods are looking good, at this stage ' close to normal with no pp' is good…. Look how long some people have taken to get neutrophils and platelets up enough to get out of hospital. I had a bmb at 3 months post SCT to check I was still in remission.
Love Helen

Hi Andy
Revlimid is certainly doing its stuff for you, Have a good trip to Greece, some sun certainly lifts the spirits.

Hi Jill I always take the Revlimid at night too as it makes me weary about an hour after I take it, but everyone differs
Love Helen

Welcome back Wendy, your trip looks amazing, I confess to not changing my insurance before we went to Lanzarote, didn't think about it really, I had nothing I writing, just a 'you need a bone marrow biopsy to see what is going on so we will do it when you are back from holiday' anyway. It is done now, results next week.
I think living with…[Read more]

Hi Wendy

Loved your blog on your trip to India. You really had a blast 🙂 You are very determined lady and long may your adventures continue

Jean

Rebecca

I think the person who told you that was talking about all cancers,
For example myeloma if caught early there is less damage to bones nothing to do with age,but a younger person is fitter and healthy than a 70. Year old.

My husband is 69 this year used to be very fit ,so was able to have SCT but at his age will not be offered…[Read more]

Hi Wendy

Loved your blog;-) 😀 🙂 😎

Keep going ,I admire the way you keep going.Love Eve

Hi Andy

The surgery should help with pain so bring it on.
Thanks for news on Keith,funny we never met,but you do find yourself wondering are people alright 🙂

You have been through an awfull lot of treatment s,I have alittle in sight to how you feel,I hope a Donna comes forward soon better than a doña as in one of my post to you:-P…[Read more]

Hi Dai

That is sound advice8-) 🙂

We have just had a problem and rang up Mac Millan . We were both amazed how much they helped us,and you know me,it takes a lot to please me. Lol

Slim rang because mu daughter and friends asked why we were not claiming VAT off are new vehicle ,truthfully I did not know we could.!!

Any way we rang…[Read more]

Hi Gill

I lost my mom almost a year ago to acute myeloid leukaemia (AML). She was unexpectedly admitted to hospital with a high white cell count and diagnosed immediately with AML. Unfortunately, she died ten days later due to a fungal and viral infection in her lungs. She was treated on the same ward/same hospital as my myeloma treatment…[Read more]

Hi Ozzy

Would like to know more,as when I approached the subject of Velcade again it was. not recieved very well. I just think Slim did well on Velcade,and he is starting to use options up quickly without much remission or in the case of CDT,it was in affective.

At the moment my feelings are that I am angry the way our questions were…[Read more]

Hi Mohammad

My husbands Amitriptyine was increased from 5 m to 25 m.by consultant in Kings Hospital London for PN,see consultant!!!!

Also I used a coco based buttermilk cream which I massaged his feet and legs,I still do this as it helps circulation plus helps with dry skin.
Eve

Hi Vikki and Colin

Frank got home on Tuesday – 2 and a half stone lighter with no energy and very tired. I told him this was what he had to expect. We were at consultant and she said with the exceptions od the neutrophils his bloods were good. He has started to eat small bits of food – and I mean minute but at least it is come thing. And guess…[Read more]