Hi Gill

Two steps forward ,one step back, you are taking little steps!:-)

I cannot help you with the grief of Stephen.but grief of anyone takes time and it has to be done individually .
My daughter and I talk about Matty her son,my first grandchild all the time,some times laughing,some times tears. 16 is no age to die.

I hope you find…[Read more]

Thanks again for everyone's good wishers,

We go to see consultant next Friday,for more results,that they have known the results of for over. 2 weeks,never mind about Slim he,s just the patient!!!

At first we jumped from positive to negative ,now just preparing for more treatment ,Slim more positive,one because he has the mentality of a…[Read more]

Billy

A number of people on here,had problems with private insurance,one I can think of is Gill,her husband was at deaths door,and insurance still would not pay,I do not know if they ever recieved the insurance. Before he died.

The insurance make it hard to claim,there is only one way to go, Name and Shame to a national paper.Eve

Hi David

Just want to add my good wishes to you on your journey with Velcade. I hope it's good to you

Love Jean x

Hi David
Good luck with the Velcade, I hope it works quickly and well for you. Do keep posting about your velcade journey.
Love Helen
Ps how is your garden? Any sign of those bulbs you planted? Mine's a mess!

Hi Jane

Only 31 not to bad lol, some one on here use to put Dex tablets in yoghurt might be worth a try..

Hope things go well for you Eve

Hi Richard

Things like that happen here in Norther Ireland. Frank went in on A Thursday and the chemo was to start then and stem transplant on Friday. We were told lies (contradictory explanations) but said chemo would be late and that would mean the transplant would be late on Friday and they couldn't do it as there would be no consultant or…[Read more]

Thank you all for your responses

Unfortunately frank has little energy so for the moment I won't suggest he makes me some cheese on toast but I will when his energy improves 🙂 .He is still eating very little but he is eating!!

David I have Dettol all over the house and hand sanitizer sits by the front door. No one gets into the room till…[Read more]

Hi Peter

I was ging to say that about Tom bu ran out of nerves,he keeps an eye on my post in case I take the mick.lol
Sorry about spelling this I pad has a mind of its own, Eve

Hi Jean
I'm with Eve here, I'd be requesting cheese on toast a lot too! It's funny but that was one of my favourite dishes after SCT also. Blood results look really good too
Love Helen

Ho Jean

I am so happy for you,they are good bloods,and I am so happy you have a first class consultant who knows there is no way a man who has had a SCT should be waiting three hours in clinic

Tell Frank if you cheese on toast is not good enough,he can make it all the time and give you a rest. love Eve

Only 3.5in one go!!! That's great.

I know you tend to want to get this over and done with,but you are wise to have that holiday . Good luck Eve

Hi all

Frank went to hospital to the clinic. After 3 hour wait we saw consultant who was furious. I have never seem her so angry. She said she left instructions that Frank was not to come to clinic until Monday. She said had she have known that he was coming she would have ensured he would have been sent to day unit, bloods taken and she…[Read more]

Hi Peter

Very good news,you must be feeling on top of the world

Was interesting what you said about not likening alcohols Slim is the same and he loved his wine. He even tried a G&T yet other people enjoy drinks wonder why taste buds do not come back with some people.
I will not take Toms name in vain ,!!! Lol Eve

Dear Jean
Home at last …. Hurrah …and managing to eat as well. It's all good progress. Hope you both manage to relax and recover together.
Love Helen

Dear Mega, Dai and Eve

Thanks for your replies. I have Re read other post and what is going on in my tummy seems to be the norm:-S. Dai Frank managed to get up the stairs – mind you it took him some time – and I pretended to be busy in another room. He wanted to do it on his own and didn't want me to see him struggle. He said last night he…[Read more]

Hi Jean and also you Frank.

You so look forward to coming home,then it flops and becomes scary,no support .!!!! We all had it Jean,but your an old hand now,Frank will go in for blood checks,any problems, will be picked up only when they are completely happy with him,concerning bloods and platelets,it will become less visits for hospital. The…[Read more]

Hi

I cannot advice you,but I know someone who can,ring the Myeloma Nurses on here,there are also video s in the library part of genuine people who have treatments,when you have two disease s it complicates things.

I will say no one can guarantee what remission. Anyone can get,they can only hope for time,and if doctors valued patients…[Read more]

Hi Maureen

I am not surprised by your story,as Slim and a few others have gone through a similar path,I actually sent a letter to my original doctor asking for an explanation ,thinking he might just have the guts to admit,the mistakes he made,but it was a waste of time.I phoned for a referral ,you need them private or not,another doctor phoned…[Read more]

Hi everyone

Andy I think Velcade is around £ 750 per phial,but the makers of Velcade have some form of agreement that if it does not reduce the Myeloma. by 50 percent the health service do not pay for it plus it is a trial drug unobtainable,as not passed by NICE,,that's the way I read it any way,don,t quote me David. Lol

To give my local…[Read more]