Hi Dai and Jean

We are suppose to be getting all these new people to tell us about themselves plus post a picture!!!!!

Dai Slim has had CDT plus Velcade next should be Revidimide,!!!!!! We though we might get 2 years !!!,,the only way we new it had returned was I asked for BMB as it does not show in blood or urine!!!!!!!?. We do not know if…[Read more]

Hi Maureen

Take everything they offer you it will help in the long run,I look back at the first time and thin how an earth did I do it,things also had to be changed at home,a shower instead of a bath,wooden floors in stead of carpet,the list went on and on,and some how I managed it.

This time I will not have all those problems but I am…[Read more]

Hi Eve

I'm so sorry that Slim has had a short remission and has relapsed. My best wishes to Slim and hope they find a treatment that will help

Best wishes to you both
Love Jean x

Hi Leedslass

Sorry but I do not know you name,I see this is the first time on this site,how you ave managed without it,I do not know.
You need some form of help,but only you can decide,as good as family and friends are,they have no idea,what or how they can help unless you tell them.

This illness brings depression with it,not just for the…[Read more]

Hi Babs

1 year it soon passes,enjoy your holidays ,after last year make this year count. I envy you going to Australia ,we always said we will go there and hire a motor home and do the figure of eight.

Best Wishers Eve

Hi Jacquie

Congratulations ,just go with the flow,as every one says it is doable,harvesting stem cells is a bit of a haul,let's hopeitjust takes a day,things just fall into place from then on,all hospitals are different how they deal with SCT.

The only advice I can give you is,do not go out and buy new night clothes,plus take in you own cup…[Read more]

Hi Everyone and Dai

My name is Eve I use to be Slims partner for 31years,no intention of marrying felt we did not need it,how wrong could we be.
We married in ITU on the 26 of April 2011.

In Febuary 2011 my husband was diagnosed with Myeloma.

Slim and I are both retired,and have had a wonderful life are last 15 years have been spent…[Read more]

Hi Nikki

My husband had cells harvested on 11 December and had had the transplant on 5 March. It depends on the hospital, I think. We are in Belfast and Belfast City Hospital only has 6 sterile units to service the whole on Northern Ireland and we were told that leukaemia and lymphoma patients get priority. Frank is on day 16. He has had…[Read more]

Hi Ali

You would be better you rang the myeloma help line t speak to Ellen or another nurse.!!!,

Every one on here can tell you there story but it will not help you .Go back to y our GP and keep pushing until you find out why your white cells are low,the problem with Myeloma is a GP. Might only come across 1 case in a life time and people…[Read more]

Hi Maureen

Well what can one say,it's one thing after another ,this is we're the family have to help out,even if it is just for an hour to give you a break.

In Ian,s defence he most properly does not realise how everything. Is taking its toll on you,but it does not mean you have to sit back and take it. You do have to find you own way of…[Read more]

Not me Eve. I have a son in Kent who is a sergeant in the Met.
Jean x

Hi

Just something might be of interest to DAi and Jean,if I am correct you both have children on the isle of shep who both wrk in the prison service,Am I correct?????
Small world.Eve

Frank phoned and says he is feeling a little better. Doctor told him this morning that he is doing well. He said that they were keeping him on antibiotic as his kidneys are leaking something. Frank can't remember what it was. Anyone know? Get over one thing and another raises its blo**y head. Damn this illness

Thak you all for your…[Read more]

:-S Tom a hedge backwards 😛

Peter congratulations. That's brilliant news

Love jean x

What a day. Day 13. Frank has been feeling terrible all day. Neutrofills – with the help of an injection – are 1.2. Platelets are 8. Decided to give him another platelet transfusion. No sooner in when he came out in the most horrendous itch rash all over his body. The worse is in his groin. Gave him – I think peredon which did nothing and now the…[Read more]

Tom you old charmer 😛

Love Jean x

Pat that is great news. I'm sure you are over the moon and of course the proud parents 🙂 Face time is brilliant we do it all the time with grand children in Kent. Only thing is – they face time me at times when I have just finished the house work and look like I have been dragged through a hedge 😀

Cyber hugs and kisses to wee Beatrix.…[Read more]

Hi Ann and Pete

Great news that Pete is home and having lager no less 🙂 well done you. Am sure you are both over the moon to escape. Frank is forming an escape committee of one 🙁 he can't find anyone else to,join!!! He said earlier that he would give anything for an ice cold Miller. He tells me he will be out of here next week but I dont…[Read more]

Hi Jean

I did not need to shaves Slims head,but he did look funny with tiffs string out,in the end just cut them down to nothing,then it just went by itself down the plug hole.if you have the nerve you could do it yourself .Slim would not let me near him with a razor for his head or face.
Even in ITU a nurse offered to shave him,but would not…[Read more]