Hi Vikki and Colin

Day 11 and the keep changing antibiotic. Diarrhoea and still not eating. Neutrophils today 0.26. Suppose it's better than 0. He woke up to watch rugby – Vikki he loves rugby and soooooo sorry but he's with Dai 🙂 Hoping for some improvement within the next few days. Thanks for asking. Hope all is still good with…[Read more]

Hi Andy
Ha ha, you would have laughed at my son then, he went to a fancy dress party recently ….. As the genie from the cartoon Aladdin……. He is very large! Anyway the girls shaved and waxed his head, arms, legs, neck and dear knows where else……. I didn't ask……. then they painted him with blue latex paint … It was very painful he…[Read more]

Hi Babs apparently that includes relatives, friends, fundraisers, carers and patients. Our support group met this week too, there are some very nice people at it, one or 2 also read the site.
I feel very well so it's rubbish that my numbers have decided to start climbing again but I knew it might happen. Just have to wait and see what happens…[Read more]

I know the answer to that……. It is about 3000 members registered ….. And you all know far too much information about me!
Love Helen

Dear Babs and Eve and Dai as its your thread
You both made me laugh today, not something I've felt like doing for the last few weeks, I'm afraid I'm avoiding looking at the elephant at the minute!
With all this talk about hair again, you saved me some bother …. as i was thinking of pulling up my 'keeping up appearances' thread yesterday, to…[Read more]

They should let me in the under fifties,then I could really let rip,and I feel like it after the day we have had,people seem to think because you have grey hair,you should not have an opinion ,and being 5 foot nothing does not help.

Just so angry,have had a few beer,s to relax me,but its not working.will have to try vodka,works for you…[Read more]

Hi Tom

His pubic hair never came back. Lol.Eve

Hi Peter

Since 2003 you have done very well pity about RT but if it solves the immediate problem,then it must be worth it.

10 years to anyone on here is all good news,the fact that you now need more treatment is a bit of a bummer,but that's what we are here for to support each other when times are hard,age does not come in to it.
Slims…[Read more]

Hi Sue

Well Sue the reason they say oh,and walk away,or go in as you come out,is they cannot face it and by looking away they think it will not happen to them,but when something like this happens to them,who do you think they will go to for support and advice,I am sure I do not have to tell you the answer.

I had a conversation with a…[Read more]

Debs

I was devastated to hear about Pamela. Everything you say about her is true and more. She was a truly inspirational lady who helped so many people – and as you know I was one of those she helped. She and others brought me through a very bad time. She gave so much of her time and love to others my sympanyth goes to Trevor, Sam and Beth.…[Read more]

Hi Tom

We only live 20 miles from France,and they are so moterhome friendly,believe it or not its cheaper to spend a month in France,than a week in this in UK.So if we manage to go away it will be France.

Now Slim looks well,if anyone ask how he is I say fine,because if truth be known they do not want to know!!! And they don't want to know…[Read more]

Hiya,
I'm on pamidronate which is what they use at my hospital. I read some research about how zometa has been found to have good results in terms of increased remission etc, so I asked about why I'm not on that. At my hospital it's currently the policy to use P not Z but they're very similar. The research found that Z is better than another…[Read more]

Hi Maureen,

Good luck with the next cycle and the results, and getting rid of that bed sore! Hang on in there.

Helen

Hi all,

I didn't have SCT but lost my hair from the induction chemo.

It's grown back a fairly similar colour with a bit more grey possibly (I still have v few). And yes it came back quite curly which it wasn't before. Well, sort of wavy/curly – curly when out of the shower. Lots of it but very soft fine hairs. And yes maybe a bit duller…[Read more]

Hi Babs

Thanks loads, that's really helpful to know the £6000 / £16000 figures, I had no idea what kind of level they would ignore. Not something I'll have to worry about for a good while, hopefully, but like you say there are always these choices about things like mortgage overpayments vs keeping it in the bank, so it's important to try to b…[Read more]

Dai

I think that is a brilliant idea. When Frank started SCT I trolled through the site for others experiences which helped a lot. It took me sometime to gather the info but at least I was prepared to see Frank so poorly

Thanks Dai for the post on your experience of SCT it was very detailed and I forwarded it to our 4 sons as they don't let…[Read more]

Hi Min

I suppose the difference is you have been there I have not,I do not know how I will feel,that is yet to come,mt daughters think I will go off in the motor home,but you cannot say until it happens,at times I do wish I had my life back instead of being in this bubble,but I do know people who are no longer in the bubble but life has not…[Read more]

Hi Tom, Helen and Louise

Thanks for posts. I have asked Frank to ask about bloods but as usual the doctor will tell him annoying he wants to know. To,or row befor I go Iin I will see if I can speak to a doctor. Tom my life would not be worth living if I let him sleep through a United match – mind you the way they played 2nd half, I wish I was…[Read more]

Hi Jean
Things seem to be progressing according to plan, how are you all doing while you watch him? I hope it's not too difficult for you and Frank continues to be interested in the football,

Vikki – I know what you mean about pain, at our hospital, if you live close by, you can be an outpatient and just come in every 2 days for bloods after…[Read more]