Well I can only speak as as Slims Wife,I dread it all coming back,and I do have my blue moments.

Slim is just the opposite he does not worry at all,but he does not sleep a lot ,when I ask him is he is worried it will come back the answer is no.
His attertude is ( I never expected to live until I was 28 so everything. Else is a…[Read more]

Hi All

Frank feeling sick and terrible runs. Have given him tablets for cramps and sickness. Drips down. He had a power failure when doctor was talking to him 😛 . He slept for four hours and said that he has never experienced such a deep sleep. Doctor did not say anything about bloods but told him that "he was ahead of the pack" but not to…[Read more]

Hi Paul

Hang in there it is going to be worth it,the fact your still working is a lot,tiredness is one of the symptoms my husband had,but not the moon face he did have a rare side effect painful scrotum .very rare!!!

At least having your treatment subcutaneous saves time.

Jo nice to hear from you take it you are ding fine.??? Love Eve

Hi. Bev

How are things going .i am just boosting this up,as people might have missed ir.Eve

Hi Ann and Pete

Great to hear that things are menging a little. As Vikki says eating will return (I have been Re reading all SCT posts) and that seems to be the norm. Frank hasnt eaten for three days they threatened to bring him some vitamin drink and he told them he would eat a digestive biscuit today. He just feels sick and the dreaded…[Read more]

Hi Laura

You are in the right place. Sorry you had to join us but welcome. You will get lots of Info and support from the people on the site. My husband is in Hospital at the moment going through STC. There are lots of people on the forum who have had experience of this. Everyone's journey is different but come on and ask any questions. You…[Read more]

Hi Trish

Tell him not to rub site of injection,otherwise he will be full of bruises.
Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve

Dear Dai
Sounds as though you have covered everything, hope it all works and you keep infection free
Love Helen

Dear Ted
The mm cells develop in the bone marrow by hijacking the antibodies which are part of our immune system.
In smouldering mm there are not so many mm cells but you are more still inclined to pick up infection.
when they reach a critical mass they stop other cell production and wreak havoc then it is the time for treatment and mm is…[Read more]

Hi Dai

I also read this on the Beacon and you are right found it very upsetting. I admire anyone who can accept it

Best wishes Jean x

Hello Rebecca

I was diagnosed in jan 2009 with real failure and MM my kidneys were at about 20% and still are, managed to avoid dialysis but it always hangs over me I chose not to have an sct as I did not want to risk knocking my kidneys out altogether with the heavy chemo needed for the stem cell I got 3.6months remission from CDT and am now…[Read more]

Day 4 Frank up, showered, shaved and dressed. No pain or discomfort. Feels sick but medication takes care of that. He is not eating. Had a bit of runny tummy but has cleared up. Consultant told him bloods have not dropped. Does anyone know is this a good or bad thing? I don't want him to be ill but is this normal or is it too early? Would…[Read more]

Hi Rebecca

You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem

My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink…[Read more]

Hi Louise

I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple…[Read more]

Hi Bev

Sorry to hear about you situation ,you do not say how old your father is or how old you are??.

It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!

You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it…[Read more]

Dear Jean
I didn't want to see anyone when I had my SCT, from about day 4 to 12, I have little recollection at all, I went back to my August 11 posts today to see what I did…….. Very little until 28 days seemingly, and my son says that on the days he came to see me I just grumbled at him and sent him home again! Do remind Frank to take the…[Read more]

Hi Babs

Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve

Hi Rebecca

Are you on dialysis ?..,

I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.

There are people on here who have had SCT…[Read more]

Brilliant news Jean

keep us posted with Franks progress
Love and a Hug
From Jo x

Hi Daniel

You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .

Although you dad is cheerful he must be worried, this problem is not going to go…[Read more]