Helen glad that damn cough has at last gone and that you are feeling good. Know what you mean – who would look forward to a beautiful holiday in Lanzarote 😀 no point in telling you to have a ball ….

Yes it happened. Stem cells go in tomorrow and I know it's weird but it is so important that I am there. An odd ball!! Will let you know…[Read more]

Hi Jean
How was today? Did it happen? I'm off to Lanzarote – to paint I hope, while husband goes walking, we go in 12 days. Not that I'm counting you understand!
I'm pretty good at the minute, thanks, less tired and …….no cough!!!!!!!! Finally! After 6 months it is gone.
Love Helen

Hi Jill
I've been on Revlimid now for nearly 2 years all told, each cycle makes me gradually constipated then it reverses and gives me terrible diarrhoea so I now try to control it by having lots of fibre for the first 2 weeks of the cycle, then back pedal a bit in the last week , but it doesn't always work! i get muscle pain and tiredness with…[Read more]

Hello Mango

arnie has also kicked in to me I also hate the moon face i am on the same regime as you about to start cycle 4 i just hope it works I was diagnosed in jan 2009 but was not well most of the year before
Good luck with the Velcade
Love Jo

Hi Jane

Welcome to the club, it's my husband with Myeloma and he is 2years down the line,nice to hear you have a sense of humour,I think it will hold you in good stead as your treatment progresses.

I have a sense of humour,sometimes near the mark,but I think if you did not laugh about something you would end up crying,as you get to know…[Read more]

Hi Helen

Thanks so much. I'm sitting here ready to go to hospital but the are strict – visiting only between 1-9. How are you Helen. Aren't you off to the canaries soon Lanzarote? Hope you are feeling good

Love Jean x

Thanks David sounds fun 🙂 Must be an English tradition – never heard of it before. If I tried it in Frank he will think that I have eventually flipped

Best wishes Jean x

Dear jean
Here's hoping all goes to plan tomorrow, keep in touch.
Love to Frank (and you)
Helen

Hi Sue

I know a number of people who are at different stages of mourning,this also includes my daughter and myself,for my first grandchild Matty who was 16.

There is no right or wrong way,just take it a day at a time,you will go through every emotion,but in the end you have to do it your way .No one can really help you,Ruth and I find…[Read more]

Hi Tom

Well I think you should try again,and if you are refused appeal,you are supposed to fill the form in and put you worse day down!!!

Tom what can they only NO so you have nothing to loose,all this money you are paying for a pension you might not see.as for the small private pension,if you explain the circumstances and the fact you will…[Read more]

Hi Keith

Well they are working hard on you,so at this present hospital seems the place for you,how is your wife managing with all this,she must be very worried about you.??

Once they find the infection,they should be able to treat it,as for going commando style, what was the nurse doing ,I do not think that's the answer Keith,I no Slim…[Read more]

Hi Maureen

How are things going,Ian must be feeling low,if he is anything like my husband he will not be voicing his fears,because he will be worried about you,plus the Dex confuse s them,when Slim was like that for some reason he got it into his head,that I wanted to stop coming,I was just getting so worn out, I would ring him in the…[Read more]

Hi Ann and Peter

He is having a hard time,when Slim was like that,the nurses said as long as he was on a drip and trying to get fluid down not to worry about food,I would suggest old clothiers that can be thrown away,it is an emotional time for them,as there not use to being so helpless .

It will soon be over,cold milk seemed to help…[Read more]

Hi all

I have been following this post and I'm completely confused WHAT ON EARTH IS PINCH PUNCHING ? 😉 I really don't want to seem to be a plonker but I have asked my family and they don't know either. Explanation please !!!!
Love Jean x

Hi Ann hope Pete starts to feel better soon. It sounds as if he is having a real rough time. Great tath bloods are where they should be. Thanks for the good wishes

Come on Pete get better soon
Love Jean xx

Dear Sue

I'm glad it went well. I know it will be difficult for you and your girls but try and look after yourselves thoughts are with you

Love Jean x

Sneaky or what! so she can still surprise you it must be love

Love Jo

Hi Ozzy

thats really good news I am on velcade at the moment i hope i get the same effect i have just had 3 cycles just about to start the fourth
good luck for the rest of the treatments
Love Jo

hello Jane
welcome I know its not a place you would want to join but you will get so much help and support when I was first diagnosed in jan 2009 I was lost didnt know where to turn for help advice and support until i found this site marvellous:-) I hope it helps you too good luck with the treatment I had CDT and it gave me 3 1/2 years remission…[Read more]