Tom you are sooooooo kind
H

Hi Dai

Someone smeo where along the lines is telling porkies :-P. we found out today that the consultant – the top dog is on all weekend. I think it is the case of passing the buck. Frank is quite relaxed about it – I think the fact that he will be ok to watch his beloved United tomorrow may have something to do with it!!! :-S The only thing…[Read more]

He he
nice to know she treats you 'normal'
Love Helen

Really great news Ozzy and long may they continue to drop

Take care
Jean x

Dear Keith

So sorry about the awful infections. I hope the BMB points them in the right direction. My thoughts and good wishes are with you

Love Jean x

Hi Jane

Welcome e to this wonderful site. I know you don't want to be here – no one does 🙂 but you are in the right place for advice, support and friendship. Come on ask anything – someone will be able to give you their experience and its a great place to rant and rave. What an awful thing about your daughters mother in law having MM. I never…[Read more]

Hi Maureen

I use to just draw the curtains and get on with it,I cannot tell you how many times I went in ai 8am and he had been ringing for a commode,I use to go out to the sluice room disinfect the commode help him,then took it out cleaned and disinfected it again,then a nurse would pop her head round and ask what he wanted half a hour…[Read more]

Hi Eve, Tom and Babs
I'm getting as many holidays as possible sorted, trying not to be fedup, though that is hard. I'm not a depressed sort of person but its a close thing now and again! My optimism is suffering!!
I'm not in line for more treatment any time soon I think, though it was mentioned then decided against, I suppose I'll find out in a…[Read more]

Dear Keith
It's horrible having all these infections one after the other, no resistance is such a pig. I'm wishing you much strength and fortitude, when's the BMB going to happen?
Love Helen

Hi Jane
Nice to hear from you,take it your under fifty to introduce your self on there,people might miss it,you might like to go to newcomers,people are more likely to see it.

Helps if you tell a bit about yourself as some actually meet in hospitals and might be of use to you if you are worried about anything. Eve

Hi Keith
You sound a bit down,let's not think about what the doctor said,lets just think I am going to jump the hurdle, if its any help to you when Slim was being taken to ITU a young doctor,said we're taking you to ITU I cannot promise you will not die,he had not even asked,luckly he cannot remember .

They do not know everything Keith,what…[Read more]

Hi Ann

Sorry that Pete is having such a bad time. I hope thins start to get easier – the quicker the better. Best wishes to you both. Frank is soooooo bored . Just left him and he's not a happy bunny

Take care
Love Jean xx

Hi Helen

I thought something might be up,as no postings,I find I miss things if I do not look in daily

I am sorry,are you not tempted to start treatment while its low !!! The reason I ask this is the was an article about people who had CDT then Velcade having better remission time might not mean anything though.
It,s a strange place to be…[Read more]

Oh jean
Does this mean frank gets home for the weekend?
Love Helen

Hi Eve
Sadly it is me who is no longer in complete remission, only low levels so far so I might get a year or more before I need more treatment, we just have to wait and see now. I hate this watch and wait, so uncertain!!!
Love Helen

Hi Everyone

Mavis you are allowed to be cantankerous when you are over 65 I cannot wait,I am practising now,what,s this about Helen which Helen is out of remission.????

When I said about chances of Tom not reaching 67 I was talking about betting odds,would you not call it a sure bet,but saying that 2 years ago when Slims Myeloma was in…[Read more]

Thanks Helen and Tom,

That makes lots of sense to me and is roughly what I'm doing – work and spend 🙂 as long as I can, finding out what I can sensibly about the future but meanwhile making sure I enjoy today. I just had a great long weekend break with a friend in Liverpool actually, and am looking forward to getting across to France/Italy…[Read more]

Ann, Peter, Tom, Elaine, helen, Eve and Slim. Thank you so much for you advice and support. I am very grateful for all your friendship. I left him last night about 10.40 – he was worried about me walking to car park at night 😛 He seemed in good form but you are right Eve he will not let you see how he's feeling.

Did not sleep with worry…[Read more]

Hi Jean And Frank,

I will not tell you not to worry,because you will,but if you are unsure of anything ask the nurses or if you think about something once you come home,ask on here,there are enough people on here,who have all gone down that path.

Remember Jean,after about six days,old clothes you can throw away,tell him not to get…[Read more]