Hi David
Hospital 500 yards,you lucky devil,no problems for you.blood test morning,phone you. Up,and pop over for injection .

Slim had 6 cycles which surprised me as,he had just completed 6 cycles of CDT,only to find after BMB the Myeloma had increased in bone. Marrow but was showing on Kapper Light Chains as in remission,that is why BMB for…[Read more]

Hello Maureen

I hope all goes well and he is home with you soon
Love Jo

Hi David

Velcade is good although you have to go to hospital a lot more,Slim had less side effects,we did the hospital bit twice in one day two times a week,blood in the morning infusion afternoon,tablets once a month,you look forward to the week you do not take anything.
Lets hope MRI scan is clear,it's the damage it causes,I think is more…[Read more]

Hi Sue

I hope you are feeling at peace with yourself and when you go to bed have a good nights sleep,you did your best for Michael,no one can ask more.

My best wishes to you and your girls,I am sure Michael was very proud of you all.Love Eve

Dear Sue,
I'm so sorry to hear your loss. You have been so strong and I can't imagine how difficult this must be, when you must be so exhausted on top of everything else. I hope with time things will get easier and you will be able to look back at all the good times you had together.
Thanks for writing on here – you are also helping a lot of…[Read more]

Dear Sue

I am so sorry for your loss. Your beloved Michael is now at peace and free from pain. My thoughts and prayers are with you, your daughter and family

Love Jean x

Thanks Vicki for the info. We are seeing stem cell co ordinator and consultant tomorrow and the Hickman is put in on Friday. I know all hospitals are different but do they allow wife to stay as long as they want? I am just hoping the PP have dropped to 0 from 2. I seem to be obsessed with them. They said they would bring him in Monday or Tuesday…[Read more]

Hi Marina

Sorry you are in this situation ,but it will help you with future dealings if you end up in A&E again.

I can tell you during the fourth cycle of CDT my husband was admitted to ITU and was in hospital for 23 days they stopped the chemo ,said that came secondary to Pnuemonia ,all together he was 6weeks no treatment ,then went back…[Read more]

Hi Lorry

You do not say how old you are!!!

Slim has a chemo head,it has taken him along time to get back doing crosswords,which he use to be very good at,I did speak to a trial nurse,who said in a polite way he may never get back to the person he was,one year on I would agree.

No one would pick up on it as it is just the odd thing for…[Read more]

Hi Keith

Just picked up on your posting,if it is any help I know the can get platelets which are more comparable with you,plus injections that help,but I do no know what they are!!!!

You can always tell when the news is not good the nurses keep looking at there shoes just in case there not shiny enough,and doctors avoid the eye…[Read more]

Vicky and Colin

This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve

Hi Nicki

So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]

Dear Vicki and Colin what FANTASTIC news. Well done you two. 🙂 It is so great to hear news like this as Frank and Ann's husband Pete are going through it – Pete on Friday and Frank next week. You have really given me a boost. I can just imagine the excitement in your house 😀 long long long long ,ay it continue

My very best wishes and…[Read more]

Dear Vcki and Colin

Celebrations all the way wonderful news long may it last;-)
Love Jo

Hi Ann
Thanks for your post. Co ordinator said they will probably bring him in Monday or Tuesday. Is it general anaesthetic or local? I thought Frank said it was general although co ordinator said he could go home about 2.00pm Ann how long Re they on the chemo drip is it days? I hope to see the co ordinator tomorrow – so will have lots of…[Read more]

Hey Eve

Sorry to hear your under the wearer. Hope you get it sorted soon. Eve on your iPad you can go to the apple store and download "words with friends" there is no charge and at the moment I have about 6 games on the go – America- Australia and my son and grand daughters in Kent

Hope Slim is doing well and hope you feel better…[Read more]

Thank you all for your good wishes frank has not said much but I'm really feeling scared now that it is on us. Our son and his family where supposed to move into their new house next week but they have put it off to keep me company at night. Tried to tell them I will be fine but they are adamant.

Thanks again and I will keep you up to date and…[Read more]

Dear Sue

My heart goes out to you and your family at this terrible time. I hope those close to you will give you the strength that you need. The love that you have for Michael has been shown in your posts and I also say yes you would do it again in a heart beat. My prayers are with you all and Sue I hope that you continue to have the strength…[Read more]

Hello Jean and Frank

the long wait over at last will keep in touch thinking about you all the time GOOD LUCK:-)
lOVE jo x

Hi Jean

All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.

Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]