eve replied to the topic So Alone 2 in the forum End of Life and Grief 12 years, 8 months ago
Hi Sue
My heart goes out to you,it must be hard on all the family Michael must be a very strong man,when this is all over you will look back and be glad Michael was at home,it must be the hardest thing you have ever done,try to rest .
I will be thinking about you and hoping,that Michael is at peace and you find your way through this…[Read more]
jmsmyth started the topic Got call at las. in the forum Treatment 12 years, 8 months ago
Hi all
Frank got the long awaited call and goes in on Friday for Hickman. Hopes for transplant next week. Will troll site for info and any tips and info from you will be gratefully received. Have been told that you can bring in own duvet and pillow if new. Anyone done this 🙂
Love Jean x
jmsmyth replied to the topic More Positive News. in the forum Treatment 12 years, 8 months ago
Hi Babs what great news. 🙂 It's always so uplifting to read. Hope cold clears up quickly and have a fantastice holiday
Best wishes
Love Jean x
eve replied to the topic Melphalan in the forum Newcomers 12 years, 9 months ago
Hi Gina
The choice of drugs after relapse can vary on the trials after CTD comes Velcade has your mum had it,you might be able to ask if this is available for your mum,it is having good results,but only seems available on trials.
Melphalan is given to kill the cells,people have it as part of SCT,, Chris are you on any other treatment…[Read more]
eve replied to the topic Question…..maintenance treatment in the forum General 12 years, 9 months ago
Hi Vicky and Colin
Slim was randermised for no treatment ,before he was unsure of taking it but we decided t wait and see what the computer came up with,no maintenance came up,ad at first we felt he was missing out,but it has worked out ok,we go every 2 months to see consultant mainly because the Myeoma no longer shows u n bloods or…[Read more]
BADGER replied to the topic CTD Dosage in the forum Treatment 12 years, 9 months ago
Hi Maureen
I have not had an SCT I was diagnosed in jan 2009 With mm and renal failure kidneys still only working at 20% I chose not to go for SCT as the heavy chemo would have probably knocked my kidneys out completly didnt want to go on dialysis had CDT and got 3yrs 6 months remission have now started on velcade had three rounds of it so far…[Read more]
BADGER replied to the topic Good News, Bad News and Old News Just Out… in the forum Treatment 12 years, 9 months ago
Great news Dia
just what we all need to hear a new drug working for you long may it last
lOVE jO X
BADGER replied to the topic CTD Dosage in the forum Treatment 12 years, 9 months ago
Hello Maureen
when I had CDT i HAD 100MGS THALIDOMIDE everyday 40mgs of dex 4 times a week as well as a dose of cyclophosomide 250mgs once a week had this for 4 cycles it was the dex that effected me quite badly hope this helps
Jo
BADGER replied to the topic Question…..maintenance treatment in the forum General 12 years, 9 months ago
hi Vicki
has colin been offered thalidomide as a maint drug I had that and was ok with it, it could suit him better than some of the others
good luck with the remission
Love Jo x
jmsmyth replied to the topic 2013 Patient and Family Infodays in the forum Off topic 12 years, 9 months ago
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jmsmyth replied to the topic It is all supposed to be OK now in the forum End of Life and Grief 12 years, 9 months ago
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jmsmyth replied to the topic sct looming but pp plateau at 14 in the forum Treatment 12 years, 9 months ago
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jmsmyth replied to the topic Question…..maintenance treatment in the forum General 12 years, 9 months ago
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jmsmyth replied to the topic Dad's been diagnosed.. I want to understand more! in the forum Newcomers 12 years, 9 months ago
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BADGER replied to the topic I was at Hospital Today and consultant said in the forum Treatment 12 years, 9 months ago
Blooming good news Tom
onwards and upwards as usual keep on the Vodka must be working;-)
Love and Hugs Jo x
BADGER replied to the topic Little things mean a lot in the forum General 12 years, 9 months ago
Hello Pat
As we say one step at a time dont you feel good when you achieve small things had a hair cut this week going for a colour on friday taking a chance why not#
bIG HUG FROM Jo x:-P
BADGER replied to the topic Little things mean a lot in the forum General 12 years, 9 months ago
🙂 😎 😉 😛
Right words Dia as usual
Love JO X
jmsmyth replied to the topic Little things mean a lot in the forum General 12 years, 9 months ago
As usual Dai – lovely 🙂
Jean x
jmsmyth replied to the topic Little things mean a lot in the forum General 12 years, 9 months ago
That's great Pat a little every day and you will be soon holding little Beatrix 🙂
Keep well
Love Jean x
Helen replied to the topic I was at Hospital Today and consultant said in the forum Treatment 12 years, 9 months ago
Dear Tom
Brilliant news keep it like that:-)
Love Helen