Dear Keith
I'm so sad to hear how fed up you are. What a struggle each and every day must be for you. I do hope they have something else to offer you on Friday and that the pp rise is indeed just a blip. I am thinking about you and hope to hear good results from you so very soon.
Love Helen

Hi Peter
Just dropped in to wish you a smooth hassle free transplant. Look forward to reading your progress. Frank is waiting for the phone call.

All the very best
Love jean x

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Babs

my husband had his SCT,on X1 trials,then was randomised for no treatment,at first,with the knowledge of no treatment follow up,it felt very strange,but now we are looking at it as a bonus after 2 years of constant treatment,he attends hospital once every 2 months for Zometa,and at the moment consultant once every 2 months,this gives us…[Read more]

Hi Maureen

I would not base your knowledge of one department on were you should have treatment,your husband ,s treatment for spinal work,might be different from the cancer unit,some have just designated wards and some are better than others.
My husband had a choice of 3 local hospitals for treatment,we chose the one first attended as he had…[Read more]

Hi David hope you had a terrific birthday and have many many more. I'm with Helen I suffer with leg cramps at night and an old Friend (south African) told me to keep a mirror under my bed and when I got the cramp put my for on the cold mirror. It worked for me and although have not had cramp for some time the mirror is still,under the bed >:-)…[Read more]

Dear Sue
As Ali and Tom have said, get in touch with your Gp and get referred to the nearest hospice, i worked in our local one for a while and a few days of respite was often a godsend to families, especially when pain control was an issue. Even a few days break so you can recharge your batteries could help you both. Sometimes there was a…[Read more]

Hi David
Happy birthday, wishing you many more. I've had cramp a lot over the last few years and nothing I've tried seems to work very well. I now resort to standing barefoot on the coldest floor I can find! This doesn't help when I get cramp in my hands or abdominal muscles however! I will be trying all the above as well.
Love Helen

Hi Ali
Thank you, I like to think we girls scrub up ok when the fancy takes us! We were at a wedding so pushed the boat out a bit, it was so lovely, but way too close to Christmas (22 nd). I hope you and the family had a good time? Less worry this year?
Re the Revlimid, my relationship with food has been poor since starting it. I have lost my…[Read more]

Hi Peggy

Sounds if you have had a bit of a do,do not rush getting out if you are not right you will only find yourself back in,in no time.

As for the comb over have a word with a nurse,see if they can find scissors ,must have them in a hospital,they did in my day.

Best of luck hope things start picking up for you.Eve

hi Heather

it is a bit mind blowing when you join this club,lots of information to take in,it,s a learning curve,try not to worry ,you will in time learn all the jargon,and will become an expert on your husbands condition.

my advise is get in touch with Ellen she can put you in touch with someone who you can talk on the phone so you do not…[Read more]

Hi Megan!
Great news that Phil has been outside. A small step but a giant leap….
It may be irrelevant for Phil now but in case useful for the others – when my hair was falling out a lint roller was very useful (available in John Lewis!)
Sending this on my phone down in Cornwall so will keep it short. It must feel far away now but you'll be…[Read more]

Hi Peggy

Just wondering how you are getting on with SCT. hope all is going well

Love Jean x

Hi. Chris

Just read you. Post with great interest,my husband is not in your position concerning SCT second time round so unable to comment,just storing info for future ,as we all know MM will find you.

I can say I think Velcade is a not as harsh as CTD,but y ou do spend more time at the hospital ,I would like to see Velcade given as a…[Read more]

Hi Sue
I just cannot believe this is happening to you.i do not think it is different we're every you live.

You should have a package sought end by now it can be different depending on your needs.were is you local surgery,in this get in touch with the district nurse,she should be able to sit down with both of you,and decide what you…[Read more]

Hi Sue

I would agree with |Tin,I know you feel how an earth are you going to cope,but you will find that inner strength.

I have 2 friends who have both lost there husbands last year,one to Myeloma and one to lung Cancer,both stayed at home and both had different deaths.
Both the wives coped and have no regrets,I wish I could say I was there…[Read more]

Hi Trish

Yes it is wonderful that first holiday,after SCT,as you say you just could not believe this would be possible after Myeloma,so just go out there and grab a slice of life.

we are just back from NZ,blood test Zometa then consultant,and with a little bit of luck off to France in our motor home,then home for 1 st march as my daughter…[Read more]

Dear Sue

My heart goes out to you. My love and thoughts and hugs are with you both

Love Jean x

Hi Trish

Glad that you and Peter had a great time. It sounds wonderful and congratulations on your 40th. Grandchildren are brilliant we are looking forward to our next in 5 weeks. Hoe Peter goes from strength to strength

Take care
Love Jean x