Maureen Sinclair

  • eve replied to the topic Bendamustine C1. in the forum Treatment 12 years, 10 months ago

    Hello Dai

    It is nice to hear you are doing well,with this new treatment,I just want to wish you well and to let you know although Slim has moved to remission,you are never very far away from our thoughts,I know the last few months have been hard for you, I wish you a good 2013with not many hiccups. Love Eve and Slim

  • eve replied to the topic A Sunny Happy New Year in the forum Off topic 12 years, 10 months ago

    Hi Tom,

    With baited breath and anticipation,now I know why you drink vodka,you cannot smell it,( only joking ),it is the reflection time that hurts,that,s why it is so nice that Tina can reflect and enjoy the memory.

    This is what is good about this site,people understand what you are going through plus the feelings which do come to the…[Read more]

  • Dear Tom, Ali and Vikki
    Thank you, I like the sparkly bit, note to self, add more!
    I still don't know why I can't improve the energy but I'm not letting it stop me from doing stuff. I also am celebrating any event going, and Vikki, hopefully we will soon hear of your adventures as Colin recovers and gets the wanderlust bug!
    Love Helen

  • eve replied to the topic A Sunny Happy New Year in the forum Off topic 12 years, 10 months ago

    Hi Tina and Tom,
    Happy New year to you both,this New Year seemed very strange to me,as We were going backwards in time on our journey home from NZ,and a;ways at new year your mind goes back to the last year,and you cannot help but ponder and reflect about the good and bad of the year,and wonder what the future year will hold.

    the year 2011…[Read more]

  • jmsmyth replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Hi Tom. Think that is a good idea about dedicated thread. Thanks for PDF file

    Megan hope Phil is feeling bit better today

    Love Jean x

  • jmsmyth replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Hi Megan

    So so good to read that Phil has turned the corner. Bloods sound good. Frank has no date yet just sitting by the phone. Your posting and others on stem cell transplants are so useful. I have a little notebook that I jot down tips and advice . So thanks to all who have contributed

    Megan hope Phill is home soo enjoying marmite on…[Read more]

  • HelenR replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Happy New Year Megan and Phil!
    Well, the neutrophils clearly have a good sense of timing. You'll be able to toast their birthday every New year's Day now. It's incredibly helpful you writing it all day by day – this thread will be read many times in future! I'm so glad to hear that Phil is continuing to do so well and get through these horrible…[Read more]

  • BADGER replied to the topic Bendamustine C1. in the forum Treatment 12 years, 10 months ago

    Well Dia

    touching wood and fingers crossed this is the one, you are a surviver i am sure you will get through this you are an inspiration to us all

    Big hugs Jo xx

  • jmsmyth replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Megan was really glad to read of Phil's progress and then sorry to read the Iv is up again. I really hope that 2013 (3 1/2 hours to go) shows a marked improvement in Phil and that you take care of yourself

    Love and hugs Jean xx

  • Hi Tom
    I have PM you my email address fora copy of the article

    Thanks
    Jean

  • HelenR replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Hi Megan and Phil,
    Well that's double good news if you look at it like that – and poor Phil feeling rotten but it's very true that once you get to the bottom the only way is up! You might even be past the halfway point of this hospital stay now! And if you think of all the cycles of PADIMAC etc which have gone before, it's way past the halfway…[Read more]

  • Awww Keith you are welcome, I expect to see you at the info day next year, still supporting others as you have so selflessly done for some time now. Hope the blood transfusion gives you a boost for new year.
    Love Helen

  • Thank you Mavis and Alex, it is certainly a tunnel from which I am beginning to emerge, I dare to hope that I am lucky enough to stay fit for some time now, Still no stamina! It's as though my 6 heavy duty batteries were replaced with one small aa rechargeable! I run out of power so quickly it's annoying!
    Wishing you both a prosperous and…[Read more]

  • Dear Keith
    Glad you had a good Christmas, I had an extra guest who was so picky with us it might have been better if she'd stayed somewhere else! But we survived it. Whooping cough now gone, got a cough and cold starting now instead, whoopee!
    It's really odd how different each of us react to the drugs and the disease, speaking as one who seems…[Read more]

  • jmsmyth replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Hi Megan
    Hope you are bearing up. 🙂 glad that Phil's tummy is getting better. Hope all goes to plan. We were at consultant today and are just waiting for the phone call. Dr told us that the first 14 days of transplant were the worse. So Phil has reached that hurdle so hope he is turning the corner and that he can see the light at the end of…[Read more]

  • Hi Gill

    I am in NZ,one daughter in Turk and Caicos island,Ruth lost Matty is this Christmas is hard for all are family but we might not be allot get her,but Matty is never far away,so no matter were you spend Christmas,there will always be that feeling of absence .

    Gill you have your grandchildren to keep you going,so promise yourself,you…[Read more]

  • HelenR replied to the topic Phil's SCT Journey in the forum Treatment 12 years, 10 months ago

    Happy Xmas Megan and Phil!
    Another day down, so another day closer to being home again!
    Hmm, maybe it's unfair to tell you this in the circumstances but my only problem right now is having eaten so much turkey and all the rest that I feel like I'm about to burst! But yes, I remember those protein drinks and they're very handy. Before you know…[Read more]

  • Dear Gill
    I cannot imagine how hard it must be for you, it is these times of festival and tradition which often define who we are, and our shared experience which travels on with our children has created stability and pleasure, despite the rows and grumbles over who does what! I do hope you find some peace, the times of firsts is so difficult.…[Read more]

  • Dear Graham and Gill
    Thank you for your good wishes, I'm up to my eyebrows with Christmas, but hope you both have a peaceful and lovely one albeit in such different circumstances
    Love Helen

  • Thanks all for replies. I went out and bought loads of bananas, didn't know about apricots. He started the tablets this afternoon. I will keep a close eye on him.

    Wishing you all a great Chtistmas
    Love jean x

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