Loved it dia more please
Love Jo xx

Sounds wonderful Eve

so glad you got there and all is well take it easy and enjoy all that comes along the sun and the sea will do you both good
Love Jo x

Well Dia

C diff lite what ever next seems a pig a of a bug to take this length of time to be rid of it I hope they see sense and keep you on the rev dex combo "sounds like a good group!" a friend in my support group has been on this regime for over four years the last 6 month has been rev alone she also has to take something for loose bowls…[Read more]

Well done Eve, so glad you got there, how are the family? can't wait to see some photos. I think I'd spend a day or 2 looking at the sea, it's so beautiful, we stayed in a beach house for a few days when we went, and it was just fabulous to get up and see that view every morning. It's so encouraging to know you've finally got there.
Love…

Hi Vikki
Good results indeed, my neutrophils have hovered round 1.5 since transplant, and WCC around 3. So he's doing ok. It's just slow and steady from here on in. It will almost be boring as recovery is so slow. But we like boring, it means nothing awful is happening!:-)
Love Helen

Glad you arrived safely. Sounds wonderful and that's just the first day !! Have a brilliant time and post photos!!

Love Jean xx

All good news Etta

hope it stays that way have a good holiday christmas and new year
Love Jo x

Hi Maria

welcome to the forum not a place you would have wanted to join its always a big shock to all of us the question is why me nobody seems to know that sort of makes it worse it seems most of us here were fairly fit and active
you will have some knowledge about the illness as you have worked in the enviroment but I dont suppose it…[Read more]

Sarah

I can understand your frustration and anger with unprofessional "professionals". I hope that they get Henry's infection sorted soon. Frank was so illl last week and was told "we don't want you here if you are infectious". We had no idea if he was or what was causing it. I hope tomorrow that there is a great improvement in Henry and that…[Read more]

hI sCOTT

just completed the last of four Velcade injections got a week off not been too bad on it yet but not had a result yet to see if its working how are you on the bendamustamine manageing ok?
Regards Jo:-)

Keep going Andy
my docs have kept me going for the last 4 years no SCT on the velcade trail now just keep hoping for any new treatments I have dodgy kidneys like Scott so as tom sort of says onwards and onwards! Chin Up
lOVE jO X;-)

Hi Andy

this is such good news I worry about all my cyber friends and how they get on keep up the good work hopefully you are on the right track now:-)
Love Jo x

Hi Sarah and Henry

So sorry to hear that Henry is having such a rough ride. I cannot offer any advice but just thought that I would let you know that I'm thinking of you both and hope Henry starts to feel better soon.

Take care
Love Jean xx

hello David
so glad your anniversery party went well very best wishes to you and your wife:-)
Love Jo x

hello Sarah
I had a small dose of thalidomide 50mgs for a year after was ok with that then 2years 6months free from myeloma drugs had to take some tablets for the kidneys but nothing else hope this helps
Love Jo x

Hi Ali
I've had tummy trouble since the beginning, we were never sure what was the cause but now I'm just on the Revlimid I know how it affects me now and there is a pattern. But it is worth it if it keeps the mm at bay.
As for the itchy head, I had big problems with the wig, it itched at the sides until I couldn't bear it any more. One day I…[Read more]

Hi Vikki
Well done, a mile stone at last, hope he stays there! Yes it's a bit of a funny thing coming home, I got very down after a few days too, I think it was to do with all the hype before hand, then you sit there …… and sleep….. and think……..then you decide ' I will go and make some tea' and you get back to bed/ sofa and find just…[Read more]

Hi Andy
Good results, my neutrophils are only 1.4 and I'm told I'm showing good levels. see you soon
Love Helen

Hi David
Really glad the anniversary plans all came together and you clearly had such a good time, so exactly who is in that tub with you, none of the girls looks old enough to have been married THAT long;-)
Love Helen