Dear Ali and Babs
I'm just back from weekend away, Peebles this time. Very cold and crisp.
Anyway, I've now had a year on the Revlimid as maintenance and I just thought I'd put in my 2p worth on the time of day for taking it. Because it makes me very tired about an hour after I've taken it, I find it much better to take it at about 7-8 pm ,…[Read more]

Sounds brilliant David and the photo is great. You are having "a royal" anniversary 😎 and why not Much rather have the champagne than the Guiness. Enjoy. And many ore happy years

Love Jean x

Hi Andy

Just a quick one,potassium,if you eat at least 2 banana,s a day or anything that has lots of potassium in,it will save you taking those horrible tablets,Slim said they played havoc with his stomach,when in ITU he had in through line,hope this helps.
Good luck with everything.Love Eve

Hi Andy
So glad you enjoyed yourself. That's a great amount of money. Well done to all concerned. It is good to hear that you are having a good week – long may it continue 😀

Take care
Love Jean xx

Not long to go now. you must be so excited. Have a great holiday Eve, the sleep outs are ok, my nephew has one out there, yes it is a shed but if the weather is good you won't notice:-P Tell slim you can put in miles of walking on a long haul aircraft, and it helps pass the time too:-) love Helen

Hello SArah

I didnt have an SCT due to kidney damage I had cdt and achieved 3yrs 6 month remission just started on velcade there are lots of ongoing treatments:-) so it not all doom and gloom so I hope your mum keeps well on the treatments so keep your chin up good luck to mum
Love JO

Hi Everybody

Yes still here,have been busy packing and going out to lunch ,will be leaving 2 friends behind who lost there husbands to cancer this year.:-(

Nearly finished now,staying at daughter,s in Sevenoaks,and getting a taxi to Heathrow,£70:-0 ,that,s mates rates feel it,s better for Slim.wheelchair assistance on stand by.
Taking the…[Read more]

Hi Keith
Just a note to add to the others, hoping this treatment goes well for you and keeps the mm at bay for a long time. Hope you aren't too tired after the infusions
Love Helen.

Hello Eve

I really hope you and slim have a brilliant holiday hope you both keep well and looking forward to hearing your holiday tails
Love Jo x

Hello Jean

sorry Frank is feeling sick it could of course be a winter sickness bug and not the CDT its probably hard to tell but he hasnt felt sick before has he perhaps a quick call to the clinic will sort it out
Love Jo x

good luck Keith

I really hope this new regime works for you it sounds a good drug there seems to be even more on the way from America so watch this space they said to me if VCT doesnt work they even revisit CDT as it worked well last time! finished the first four shots today week off next week;-) yippee had to have 2 units of blood as as Hb…[Read more]

Hi Tina

Yes it does get you down,I felt things would never improve always worrying about Slim,and I am just the carer,you have been through so much,it is expected,but there is only one way to go,and thats Tom,s way.
The expectation that things will improve on a day to day bases does not happen,often felt Slim was taking one step forward and…[Read more]

Hi Tom,

Well Tom,you should ask yourself how does it compare with child birth,you do forget about the bad things and look at all the good things that come out of it .LOL Love Eve

Hi Sarah

I can only give you the view of the carer ,I am 63 and Slim my husband is in remission after 2 years and a SCT.

From they start of having to make a decision to have a SCT,I looked at everything,then told my husband the facts,and told him he must decide for himself,if any thing had gone wrong,I would never forgive myself for pushing…[Read more]

Hi Sarah
Totally personal decision. Very scary times, its not pleasant, I took 11 months to recover to a real sense of 'wellness' but I'm pretty good now. 15 months since SCT, in complete remission, on Revlimid maintenance and back to work full time. Recent posts by Vikki and Chris explain the process very well, and Sue describes other things to…[Read more]

Hi Keith

Thanks for that. Will remember but Frank hasn't started SCT yet, he's waiting for a date. He has just finished the CTD. He is really feeling rough

Keith hope your treatment works for you. Thinking of you

Love Jean x

Hope treatment works Keith. Kick this bu**er into touch. Thinking of you

Love Jean x