Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hey Helen

I thought the pesky cough had cleared up. Hope it goes soon. I know the whooping cough does last some time but you have had it long enough. It's time it takes a hike!!

Take care
Love Jean x

Thanks Phil. It is improving and…. I'm really trying not to pick anything else up …. My family reckon its just my turn, having never had so much as flu in my entire life, just walloped with everything recently!
Love Helen

Hi Pat

had my second dose today app at 1 0'clock got out of the hospital at 4.30!!
my dex is 20mgs two days running and 200mgs of cyclo on the first day having my treatment sub Q only takes a minute to get the injection I wore my very bright pink jumper today very loud but fun:-P having a colour tomorrow hope my hair wont fall out:-(
Love Jo

Hi Debbie

My husband was like Wendy. He's coming to the end of 6th cycle of CDT and for abouT 4 days after coming of Dex he was very shakey and could not drive. As to going on holiday while on treatment I would say it would have to be cleared by consultant but with Franks experience – out of the 6 months we had to go to the hospital on 5…[Read more]

Hi Sue
As with Myeloma every person is different when in your situation,and also react differently,You have to do what is best for you.

I have a friend who use to be in the same position,she used to be worried how she would cope with the practical side of nursing,her husband chose to stay at home,he did go to respite,to give her a break,but…[Read more]

Dear Keith, Dai and Andy
You are all struggling in your different ways, but I love the sparky positivity you all have, just keep it going please. It feels like having a bunch of brothers fighting against the mm corner( I only have sisters, so I can only imagine)
Hope you all get some better numbers soon.
Love Helen

Hi Ali
Thanks for asking, I'm still coughing! It's day 84 today, not as bad of course, but annoying for everyone else and tiring for me, but I'm ok I'm not letting it get in the way though its a constant reminder at a point when I feel I want to put ill health behind me, Anyway, planning next holiday:-) following Tom's mantra now!
Love…

Hello Mavis
Welcome to the remission club, lets hope we are in it for a long time.
Love Helen

Hi Chris
Hope you are still feeling chipper, and if we are talking about the dire horrors, as you know from my many previous posts 2 days is what I can only describe as merciful, mine went on for 10 months. All better now though:-)
Hope you continue to have an 'easy ride'
Love Helen

Hi Vicky
It will soon be over and Colin will start to recover so fast,it is heavy going,for both of you,I went in to the hospital every day except once when I went to a funeral,the funeral seemed light relieve compared to going in every day,

When Colin comes out the hard work begins,so you must try and rest now.
You soon forget,they do…[Read more]

Hi Vikki
I'm just back from another holiday 🙂 Cornwall this time ( cold and rainy) and I see a lot has gone on in my absence:-) this is the tough bit where you have to look at Colin and not wince if he looks c**p, I felt sick from day 1 ( melphalan) and really really REALLY awful from day 5 to day 12 🙁 😐 they let me go home on day 16 but…[Read more]

Hi Pat
sorry you are not too good lets hoe things soon get better I am just starting vcd had one lot i am having it once a week sub Q and a reduced dose of DEX and CYCLO because of my kidneys i expect we will be sharing experiences try and keep well love Jo xx

wonderful news Mavis

lets hope ou get a long remission I have had 3yrs 6 after CDT just started VCD rthe MM is not to bad but i am creating heavy light chains which destroyed my kidneys in the first place so they are starting early
God bless Jo x

Hi Trish
That is lovely news,worry always there in the back ground,but say to mm and worry(s-d It),this is your time so enjoy.None of us know what the future brings8-)

We are off to NZ on the 25th of Nov.return New Years Eve,it is exactly 34 months since we have seen one of our grandchildren,the other one flew home with are daughter last…[Read more]

Mavis what brilliant news to read. I am so happy for you. It's so great to read positive posting like this. Paul's passing was so tragic and such a shock. You will be in my prayers for a long happy remission. Enjoy every minute 🙂

Love and best wishes
Jean xx

Hi
I have come on to comment because I so admire you fight against Myeloma,here you are three people who have gone through all this treatment and are still in there battling.

I know you all have no choice if you want to live,but its the stamina I suppose I admire,any body reading your posting,and not know much about your treatments,must be…[Read more]