Hello Pat
sorry you have not been well bit of a b+++gger glad you are feeling a bit better now co codamol are good but they may make you constipated so back on the syrup of figs!!!! if its not one end its the other I have know people to defer treatment to go on holiday so i bet its possible I dont think you are a wimp all these treatment are…[Read more]

Hello Jean
like the new photo of you and Frank how is he doing at the moment any news about his SCT is it soon will mail you soon
love Jo x

Hello Emma

what a terrible shock for you all I dont think anyone really gets over it we just learn to live with it the trearments now are so much better than even 10 years ago with new ones coming on every couple of years you will get some really good advice here and the myeloma help line is a god send they seem to be able to answer most…[Read more]

Dear Emma

So sorry that you have had to join us but you are very welcome. My hubby has Mm and is just starting his 6 th cycle of CDT with the hope of going for a stem cell transplant. Emma it will take you some time to get your head around it but you are in the right place. This forum and the Myeloma Beacon (USA) are great sites for…[Read more]

Dear Rachel
I am so sorry to hear about Paul's untimely and so sudden death. A terrible shock to all of you after such a fight to his SCT. He was such a regular contributor and very helpful to me when I was so worried about the rigmaroles of work. I shall miss his presence here so much, as Dai has said, a fellow traveller whom I hoped would keep…[Read more]

Hi Pat

Take this trip to hospital as a big learning curve,it is such a worry to a carer when temp goes up and BP goes down,steroids mask infections,so are very hard to spot,I now go on Slims BP,when he had pneumonia his BP went right down had him in A&E,and even they failed to spot it,although I pointed out his BP which was 60 over 45,Pat next…[Read more]

Hi Dai

Oh boy you have really been through the mill!! But I'm so glad to hear that you are on the mend. We all missed you here. Dai I think it might be my fault about Janet being in contact. Tom had told me what had happened to you and I made the assumption that he had been 'talking' to Janet. Sorry for any confusion.

It's really great to…[Read more]

Hi Dai
Well as you know we have all been worried about you,this forum just did not seem the same with out you,Tom in his wisdom managed to get info on you,clever block that he is,when someone goes missing who usually post,it becomes a puzzle why they have not posted,do they need a break!!! are they ill!!! or worst still pushing up the…[Read more]

Hi Mike and Girlfriend

Another welcome to this exclusive site,were everybody is a patient,carer or friend,and we try to help each other out as much as possible,were here for you when you want to rant or need support.We have all been there before you and some are still here now.

Everything is do able,you must learn as much as you can,we are 2…[Read more]

Hi Etta

Treatments Zolinza or Lenalidomide or no treatment randomised,Slim go t no treatment.They are testing the new drugs as a maintenance treatment. Zolinza has been doing well treating other cancers and it is a prohibiter,no results are available as a maintenance drug as this is first time,Lenalidomide has been in use for some time and…[Read more]

Dear David

I think you have cracked it,something for everyone,just watch your back when throwing those balls,have a lovely anniversary,love Eve

Dear Rachel

I am so sorry,Paul seemed to be doing so well,and if any one should have been able to get extra time,it should have been Paul,as he was one of the younger and fitter one,s on this forum,my thoughts are with you and his parents.

I lost my grandson with an infection all so unexpected,the shock and numbness,leaves you drained,I…[Read more]

Rachael I am so sorry to hear of the sad news of the sudden passing of Paul. My deepest sympathy to you and your family. God bless
Jean x

Hi Ann

Last I heard he still had that pesky infection but was out of hospital. Tom has been in touch with Janet so he will be able to tell us more when he finishes work

Love Jean

Hi Eve- I think the vitamins is a good idea, I catch every thing going these days. Venice wasn't too busy when we went, the advantage of the hire boat meant we could look at the crowds here and there then go in the opposite direction, we were a bit off season too so it was ok and the boys made sure I was steered away from coughing and sneezing…[Read more]

Hi Ali
Thanks for asking, but you might regret it ,:-) I've been getting to grips with work again, no mean feat after all this time and trying to get back to a semblance of normal life. what is that?? Is it ever going to be normal again? My memory seemed to leave with the melphalan, along with all my mucous membranes and is yet to return in its…[Read more]

What great news. 😀 You both had a terrible battle but YOU WON. Come on SCT!!!. My best wishes and good vibes to you both. Have a great weekend
Love Jean x

Hi Vikki
What an ordeal it has been, get some rest and enjoy a few weeks now.
Love Helen

Hi Kerry

Welcome to the site,14 years is a long time,so your mum is doing very well.

What little I know about Zometa is Slim having a tooth out,was not a problem just had to be 2 weeks clear of having Zometa,told only 1%| of people get osteonecrosis very rare,so nurse or computer your best bet.I do know as time goes by Zometa does not work…[Read more]

Hi Helen

I was wondering were you were,good holiday shame about chest infection,i think there part and parcel of having a SCT,leaves your immune system so low,I think with winter coming on,I might just dose Slim with vitamins although he will moan about more tablets.

I enjoyed Venice when we went,but not to Slims taste hated the queues,went…[Read more]