jmsmyth replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Vikki and Colin
Great news and tomorrow there will be loads more of the little blighters 🙂 good luck for tomorrow will cross everything
Love Jean x
Helen replied to the topic A year on in the forum General 13 years, 1 month ago
Hi Andy
Glad to see you had a good holiday, let me know when you are back in my neck of the woods.speak soon
Love Helen
Helen replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Dear Vikki
Hope it all goes well and that the cells stop sticking and start moving.
Love Helen
Helen replied to the topic Stephen It was a real celebration in the forum End of Life and Grief 13 years, 1 month ago
Hi Gill
A lovely waffle, Stephen must have been very lucky to have had you in his life. Good luck, keep in touch
Helen
jmsmyth replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 1 month ago
Vikki sending you loads and loads of positive vibes for tomorrow. Thoughts and prayers for Colin. 🙂
Take care
Locke jean xx
Helen started the topic A Postcard from Venice. in the forum Off topic 13 years, 1 month ago
Dear All
We managed to get away to Venice and cruised up the Brenta canal to Padua, where we spent some time looking at the Giotto Frescos, the museum and town. Fabulous coffee shops and beautiful buildings. But we all loved Venice so much that we just spent much of the time mooching round the shops and the islands. This was the first trip we…[Read more]
jmsmyth replied to the topic Sleeping so much! in the forum Side-effects 13 years, 1 month ago
Hi Jane
I'm sorry to read that you are having such a bad time and hope that the doctors can get your pain under control soon.
Jane my husband has Mm and he is like you. He tries to hide from me how he feels. He thinks he's protecting me but he's not. I know that we all handle this horrible illness in our own way. But when I ask Frank how he…[Read more]
eve replied to the topic Just Diagnosed in the forum Newcomers 13 years, 1 month ago
Hi Mary
Slim had Claxane injections for 8 months and Thalidimide was reduced by half,he remained on the Trials ,It is a complication of the Meds,and did result in damage to his lungs,but still had SCT.
Eve
BADGER replied to the topic A year on in the forum General 13 years, 1 month ago
HI Andy
glad you enjoyed your hols I bet you got the cold from the airplane that often happens to me I have taken to putting vaseline in nose it seems to form a barrier well thats one year over I am sure you will kick the devil into touch we must all stay strong and stubborn;-)
Keep well
Jo x
jmsmyth replied to the topic Myeloma Matters Subscription in the forum General 13 years, 1 month ago
Yes Deborah getting it by email is great. Ask Stuart from the Web team. He is very helpful
Jean
eve replied to the topic A year on in the forum General 13 years, 1 month ago
Hi Andy
I know it,s taking a long time Andy,but it is getting there,you look back at that year and wonder how you managed to get through it.
I can remember thinking about are first year and saying to a friend it cannot get any worst and it b—-y did,laughing now but at the time it just was so awful,but got through it.the body can only take so…[Read more]
eve replied to the topic Second SCT underway at last in the forum Treatment 13 years, 1 month ago
Dear Mari
This is when you need this site,the ones who have been there understand what you are going through,I have been looking at Slim the past three months thinking it is not working taking to long to recover,the letter that we received a copy of read like someone ready for there coffin,all old complaints and new ones came to the surface…[Read more]
BADGER replied to the topic Spoke too soon! in the forum Side-effects 13 years, 1 month ago
Good Afternoon Pat
Sorry you feel pants bet its the DEX it turned me into a monster I am generally cheerful but not while on DEX dexitude is the word for it hope you will feel better soon I bought a fetching new top today in mixed autumn colours was temped by these skinny leggings but my husband says i look like a barrel on legs:-P so went for…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 1 month ago
Hi David
Thank you,I have grand children out there,So it is a must,its never to late David.
How are things going with you???
Will not be long before you crocuses will be showing in the lawn,make sure you take a picture for us,what colour did you do in them. Eve
eve replied to the topic Never Give Up. in the forum General 13 years, 1 month ago
Hi Tom
Thanks for the info on Dai,new something was up.
Tom you are brave,its lovely to see grand kids,but they do tire you out,but were would we be with out them!!!.Your just braver than me.
You are doing so well,I can understand now how people feel about the 3 months,it is not until you walk out of the consultants room,that you suddenly…[Read more]
eve replied to the topic Spoke too soon! in the forum Side-effects 13 years, 1 month ago
Hi Pat
Nice to see your face,took me a while just to learn how to get a picture up,I agree with you,I am growing old disgracefully,we are lucky to have a good bunch of people on here,when my husband was going through a bad time,I could not have managed with out all the help and advice I received. Time has gone on from when I joined and faces have…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 1 month ago
Hi Jo
If your on face book please become my friend,and I will enjoy a game of scrabble with you,i play with Jean.I would love more contact in general and play a game of scrabble.it is interesting to know about people outside the bubble.You will find me under my full name.I feel I already know you anyway.
Mike if I had to choose it has to be…[Read more]
BADGER replied to the topic Never Give Up. in the forum General 13 years, 1 month ago
Dear Eve and Slim
thats wonderful news I agree never give up I feel there is always something round the corner Enjoy New Zealand and the grandchildren so there is light at the end of the tunnel long may it last dont forget to dip in and from time to time it will be nice to hear from you.
As for scrabble i play my 10 year old grandson he…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 1 month ago
Hi Mike
Yes mike it is like someone has switched on a light bulb,and you can see a way forward.8-)
I think at the moment we will settle for this time we have, and try not to look to far back or ahead,as both are not a nice place to be,I see the Myeloma Trials helping generations ahead,in a cure,for people who are here now I only see it buying…[Read more]
eve replied to the topic Never Give Up. in the forum General 13 years, 1 month ago
Hi Tom and the family of Lappins
Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.
It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain…[Read more]