[bandityogaParticipant]

Hi Jo

Thanks for you best wishes. I did plan to go to Wimbledon for my 60th but alas it wasn't to be.

Ian is progressing well but light chains have risen to 210. If they continue to rise he will be back on CDT. As he isn't going to have a SCT I asked about Rivlimid maintenance but was told it would be the next treatment. As you haven't had a SCT I would be interested to know what treatments you have had.

Love Maureen x

[bandityogaParticipant]

Hi Tom

Hope all goes well with the transplant and you will have many years of remission.

Maureen

[bandityogaParticipant]

Hi Eve

Sorry to hear you are both having a hard time of it again. Here's hoping Slim will be out of hospital soon and on his way to beating this awful cancer.

Love Maureen x

[bandityogaParticipant]

Hi all

Thanks for your good wishes. I still have the mind of a 21 year old but can't bend down in the morning when I get out of bed. Got to apply for my bus pass now. Nurses thought I was 50 not 60 so must be doing something right. Granddaughters keep me fit and I love them to bits.

Eava hope you had a lovley holiday and things are improving for you.

Maureen x

[bandityogaParticipant]

Hi David

I shared the video on my facebook.

Maureen

[bandityogaParticipant]

Hi Tom

Glad things went well and hopefully the SCT will go ahead as planned this time.

Wishing you well

Maureen

[bandityogaParticipant]

Hi Tom

Hope all went well yesterday.

[bandityogaParticipant]

Wonderful news Dai hope it continues.

Maureen

[bandityogaParticipant]

Hi Tom

Thanks for the information hopefully with research and new treatments they will find a cure for myeloma.

Where are you on you SCT now?

Maureen

[bandityogaParticipant]

Hi Helen

Good news, you must be feeling a lot better. Keep it up.

Ian's lmabda light chains were 210 at the last visit, if they keep rising, he will be bakc on CDT.

Maureen

[bandityogaParticipant]

Tom

So sorry to hear the SCT didn't go as planned, you must feel really down.

Hopefully you will have million of stem cells still to harvest.

Maureen

[bandityogaParticipant]

Great news Tom.

Enjoy your holiday.

Maureen

[bandityogaParticipant]

Helen

Hope you have a lovely holiday. Sorrento and the Amalfi coast are beautiful. Have a trip to Capri also recommended. Walk off the beaten track and you will have some wonderful views. Pasta is to die for so you will come back a little heavier. Havea few glasses of vino and lemonchillo too.

Have fun.

Maureen

[bandityogaParticipant]

Dai

Kind of thought you were having a laugh but wasn't sure. Occupational therapist came yesterday. Need to make a few adjustments to the house but nothing drastic. Wet room, remove carpet in bedroom, hospital bed and ramp out the back. Thinks Ian will be able to transfer from bed to wheelchair and car within 4 weeks then he can come home. Ian is concerned about his bed sore if he is at home. Carers will come in 4 times a day.

Lunch arranged for my 60th next Sunday so Ian will get out of hospital for a few hours.

We don't get a reduction in train fares here only bus pass.

Hope you are keepiong well.

Maureen

[bandityogaParticipant]

Hello Dai

Ian cannot get out of bed unaided yet so it is impossible for him to get out of bed and into the wheelchair. His bed sore is healing but it was quite deep and bed sores do take months to heal. The consultant says Ian can go home anytime but Ian wants to get the physic in the gym and be able to transfer from bed to wheelchair then car. I don't think that is too far away. He is also incontinent but is also starting to feel movement there too. Occupational therapist coming to the house today to see what we need to change.

We have come a long way and not too concerned about light chains rising as he didn't have all cycles of CDT but it will stop bed sore healing if he has treatment. It,s a vicious circle.

On a lighter note, I will soon receive my bus pass. Also looking forward to going down to London in July for my daughter's a civil partnership.

Maureen

[Author]

Posts