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  • #152582

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    Participant

    Hello Najmah

    Thank you for your kind message.
    I think everyone has their own battles with Myeloma.
    Having a tandem transplant is something we had not heard of either and yet to come across anyone who has had it done.
    We are keeping positive and taking and enjoying one day at a time.
    Hearing so many people exceeding way past their prognosis gives us hope.
    Glad your treatment is going in the right direction .
    😊

    #152550

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    Participant

    Hi Rabbit

    That’s good to hear you are doing well 😊

    May I ask what is your MM story and why you were not offered a transplant?

    #152547

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    Participant

    Good evening Rabbit

    Thank you for your message

    I understand that this type is every rare and might not hear of anyone else having the same.
    My husband had just turned 60yrs when he was diagnosed in February this year.

    We were told a tandem transplant will give a longer and deeper remission.
    Which could still only be 3yr to 4yr, nobody really knows.
    He is due to have the first one end of July with a three month break before the next one in October.
    I can only tell you that he has light chains only and his chromosome instead of being a Y is shaped like a death rune.
    Sorry not very technical 😊

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