Chris Cluff

  • Thanks Vicki, and well remembered! You must join the Dallas fan club, it's brilliant even if the Bobby storyline is a bit close to home, but it will be interesting to see if his hair falls out – bet it won't!:-D No date for me yet, but I will keep you up to date, thanks for the support and good luck to you both,
    Chris

  • Hi Ali, great detective work and well done! I had a feeling there was a car crash, but why would she disappear? Perhaps someone will kidnap me from Musgrove? :-/
    We are off to the coast to relax for a day or two now and recharge the batteries, must remember the Sky+ though!
    Thanks for making me chuckle, and I will keep everyone posted when I…[Read more]

  • Hi Marie, Good luck to Steve during his treatment. I am waiting for my date to go in for my first SCT, so I will waiting to see how you both get on. Send my best wishes to Steve and I hope that he carries on feeling well and in good spirits, great to hear of your progress and very best to you both,
    Regards Chris

  • HI Ali,
    Didn't miss Dallas, I SkyPlus'd it and watched last night, definitely an 8/10, but whatever happened to Pam Ewing? – I was trying to work out if they had just put in a new actress, but she is Annie, so I have missed out somewhere, and Cliff Barnes is back next week, so the insults will just get better! We need a new discussion Forum for…[Read more]

  • HI Vikki and Colin, I was sorry to hear about Colin's struggles, but so pleased that your funding has come through, I am sure it will make all the difference because mine seemed to have no problems, so good luck and go for it! I was a bit delayed posting the results as I even managed to go out for my kids birthday meal at an Indian that evening,…[Read more]

  • SUCCESS! HI Everyone, well I'm back after my Harvest, and those guys and gels at Bristol did their stuff, after a preparation at Ward 9 in Musgrove. I had been taking a double dose of the G mobiliser which I did myself each evening for 4 nights, then I stayed in Ward 9 for Tuseday afternoon where I relaxed, watched TV and stuff, and with great…[Read more]

  • HI Everyone, thanks for all your awsome comments, it really gives me a boost! I am giving myself the G injections which are double doses this time. I have had no more chemo, and have felt ok. Tomorrow I am in hospital in the afternoon, and having the magic injection in the evening, then being carted off to Southmead by hospital transport. A couple…[Read more]

  • bikerchris replied to the topic My dad… in the forum Treatment 12 years, 2 months ago

    HI Joanne, I will add to the other welcomes to the site, and I am sure you will get a lot of positive support from us band of rather 'pressganged' contributors, all forming part of this elite band! My wife found this site, and encouraged me to comment, and once you have made the first step it gets much easier.
    It sounds as if your Dad was…[Read more]

  • I am getting prepared for my next visit to the Bristol Blood unit on 12 September for another bash at collecting these stem cells. After my failure last time, my consultant applied to the NHS Trust for funding for Plerixafor which frees the stem cells from the bone marrow, and gives more chance of the cells of being collected from the blood. It is…[Read more]

  • HI Vicki, and everyone. Well as I expected my stem cell reading today was only 7, a big improvement on my pathetic 3 yesterday, but they sent me home. The doctor was very helpful, and spoke to my doctor in Taunton about the outcome. he suggested that I may be able to have a different mobilizer drug, Plerexifor, but he couldn't commit because each…[Read more]

  • Thanks to everyone for your wonderful support, and messages.
    I went to Southmead this morning, but it was a short lived visit. They were very helpful, and Lena and I found the place ok after a fairly long walk around the hospital site – the inevitable building work going on which never helps! The first procedure was to take a blood sample, and we…[Read more]

  • HI Tina, have a great holiday, and well done on reaching your plateau! keep an eye on my blogs, as I am in for my stem cell collection tomorrow, and then will be having the Transplant at the start of September – like you I am a bit apprehensive, but if it works it will be brilliant!
    Enjoy the break, you can't go wrong in Dorrzet!
    Regards, Chris

  • Hi everyone! I havn't posted for a while as my regular treatment has been taking it's course since last November, and I have now had 7 cycles of CTD which brought my PP levels down from 55 at the start to 16.1 in June. Officially I am in 'good partial remission', which is great news! I had been waiting for the doctors at the brilliant Beacon…[Read more]

  • Hi everyone, thought I had better add a blog as I have been lazy and not been on line recently, hope everyone has enjoyed the sunshine!
    My treatment at the Beacon Centre in Taunton has settled down to a monthly review and blood test, except for a few days in Hospital when I picked up an infection and ended up with a high temperature so they kept…[Read more]

  • HI Helen, thanks for your reply the other day, very useful and glad you are recovering from the transplant, I was surprised to hear how long it took you to recover though! The Beacon Centre have said they are pleased with my progress with the drugs, and may be looking at the SCT as early as Easter which is a bit scary. How did you find the…[Read more]

  • HI Graham, I am at a similar stage to you, and have just started on my third cycle of Chemo and Thalidamide/ Steroid treatments. Like you I had terrible back pain, and rib pain which was put down to muscle inflammation until I had a blood test in November. I am 50, have a family and a very busy life, so it has been a bit of a bombshell to adjust…[Read more]

  • HI David,
    Quite happy to meet up in Taunton some time. Give me a ring, 01823 270304.
    Regards, Chris

  • HI Bridget,
    Sorry it has taken me ages to reply, I hope you are feeling ok. I am pleased to say that my radiotherapy seems to have helped me and my back is much less painful now, I am still taking the Oxycontin at night and morning but none during the day. I saw the specialist today, and she was very pleased with my last set of blood results. I…[Read more]

  • bikerchris replied to the topic Another new kid in the forum Newcomers 12 years, 11 months ago

    Hi Heather, it is good to hear from you, and I hope you are finding the comments useful. I am only 6 weeks into my treatment, and I am feeling a lot better than I did a month ago. It is interesting to hear your comments about work. I have my own firm, and have been struggling on, keeping things going for now, but I accept that if I have a…[Read more]

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