Hi Vicki, long time no speak. I have been off the site for a while, but Lena keeps me updated on your news. I have even updated my profile! Sorry to hear that Colin is having a rough time, but keep your chin up, and hopefully they will get his temperature sorted and he can get back home – that will make him feel much better I am sure.
I have 3…[Read more]

HI Carol, thanks for your post. It sounds as if your symptoms are similar to mine – after my CDT the readings were rising again, I guess because I had stopped taking the drugs.
It is a slightly scary though starting out on the Stem Cell treatment, but it is the best option we all have at present, and can buy precious years. I have heard of some…[Read more]

HI Vicky and all! I had my 3 monthly checkup and meeting with the consultant last week, and relieved to say that my PP’s were still stable at 15.5, pretty much as they have been for the last 9 months, although just after the SCT they were higher at about 20. I was pleased as I had been having a few back twinges, probably from overdoing things.…[Read more]

Hi Jean and Megan. No real side effects from Childhood injections, but I seem to have a never ending cold and cough. Have started reading Janet and John books, Tip and Mitten, and hope to graduate to Secret Seven very soon. Chris

Hi Carol, I had to check exactly what I did during my collection, but yes, I did carry on working. I had a few days to recover from the chemo, then did my injections in the mornings and went to work. I think I should have taken them in the evenings. I had 2 days up at the collection at Bristol, but the count was not high enough and it didn’t…[Read more]

Vikki and Colin, glad to hear you are doing well!
Chris and Lena x

HI Chrissie. I have just read your post, and it sounds as if you have been diagnosed at a very early stage. I am sure it was a terrible shock, but as time goes on you will find that there is a huge amount of support out there, and advice from friends on this site. I was diagnosed 2 years ago with MM and had quite severe symptoms. I was only 50,…[Read more]

Hi Billy,
I was shocked to read how much trouble you were having making your insurance claim. I think the key to this is to have your GP on your side, as they have to fill in the most important part of the claim forms, but they are used to this type of illness and know what the insurance companies are looking for. They need the words 'malignant'…[Read more]

HI Vicky and Colin,
Thanks for the message, we are both well thanks, and looking forward to some decent weather! I have had a horrible flu bug which put me in bed for a few days feeling rough, but apart from a bit of a cough I am much better, and Lena is fine.
How are your blood results doing? Mine havn't really shown much change, staying at…[Read more]

HI Ann and Pete,
So glad that you have got Pete home and recovering, it sounds as if you are doing well Pete, and well done for getting back on the beer so soon! I know I felt miles better as soon as I was under my own roof.
I hope that you continue to improve, Pete and that your next check up goes well.
I have just about got over my flu,…[Read more]

Hi Anne and Pete,
Sorry I havn't been in again, but I was struck down by flu last week with a high temperature, and I was trying to stay out of hospital myself!
Had a few days in bed, couldn't move, but I'm a bit better now.
Lena has been keeping me posted, and I am sorry that Pete has been struggling so much with his bad throat pain. I am…[Read more]

Hi Ann and Pete,
Well done Guys, at last those cells are in and you have done the hard bit!
The sweetcorn smell is pretty nauseating, and I felt a lot better one I tackled a shower to get rid of some of the smell!
I hope you get your room tomorrow, it makes a much shorter trip to the loo apart from evrything else!
You have done well seeing…[Read more]

HI Vicky and Colin, thought I would drop in and say hi! and hope all goes well at your meeting this week about Colins treatment.
I am getting on fine, and pretty much back to 'normal', my hair is very short, but growing well now, and I am really busy at work and around the house. I still have a small dose of Oxycontin, and the doctors have…[Read more]

Hi Anne and Pete, Sorry I have not been in touch, but I have been feeling good, and have been busy getting back into work. Well done Pete in your bumper cell collection – that Plerixafor is good stuff!
I send all our very best wishes from Lena and I for your treatment tomorrow, and hope it all goes well. I can only say that it wasn't as bad as I…[Read more]

HI Vicki and Colin, I hope all is going ok with you both and Colins recovery. Has his taste come back ok?
Really sorry to hear about Colins Dad, a real blow when you have enough to deal with already. I went though the same thing with my Dad a couple of years ago, and it is a pretty traumatic and emotional time, no matter how infirm or ill they…[Read more]

Hi Anne and Pete,
Well done on getting the 1.6 million cells, that is really good going when the readings were under the magic '10'! Mine were so low first day, 2 I think, I was barely off the start line! No cigar there for me. 🙂
Let us know what the Doc says, but remember that they will give you the best advice to get the most out of the…[Read more]

HI Megan,
Glad to hear that Phils SCT is going well so far – the various drips seem endless, and sometimes I forgot whether I was attached or not!
Good luck with the next few days, I was very pleased when I was moved to a single room once the old blood counts dropped, you don't really want to chat when you are feeling grotty, and the loo is…[Read more]