Hi Tom, yes I have seen your replies, but I havn't been at the laptop to reply until now, but many thanks to you, and to everyone who has commented and replied to my post – it is great to see that a few members of the site have read my ramblings!
I agree, it seems to be a brilliant site, and your comments have already been of help to me as some of the medical mumbo jumbo can be pretty confusing.
Since last time I have had my first monthly meeting with the Consultant, to renew my drug supplies. The only alarming thing was that my neutrophils are only 0.7, so they have taken me off the chemo for now, and I am just on the thalidomide and steroids. He was worried that the chemo would lower the immune system even more, but the fall may be down to the radiotherapy. My PP level is down from 55 to 34.5. On the positive side, the radiotherapy seems to have reduced my back pain slightly, and without the chemo I am feeling much livlier and less queasy. It is very tempting to rush around doing too much, but my family are good at nagging me to take it easy – and that is the message from other sufferers too.
No-one has spoken to me about SCT yet, but I guess it is early days for me yet.
Happy New Year to everyone on the site, and I will raise my glass of shandy to 'positive thinking'! Cheers! Chris
