Hey there VickiMeek

Just to send you best wishes and to say I’m thinking of you guys. I can’t imagine how this feels because as a smoulderer I haven’t been there…yet. But I went through my expartner being diagnosed with advanced cancer last year and I remember the worry I had for him. I thought my heart was gonna break as I watched him being so…[Read more]

Dear Rebecca

I am pretty sure that there is nothing on this educational tool for nurses that you do not already know and that is EXACTLY why I do not understand why this information could not be made available for us all should we want it. Obviously it would need to be in a slightly different format & without the continuous assessments that are…[Read more]

Hello Anita

I am the same age as you & had a trip down to the NAC last Oct. I was told I do not have Al Amy but that I may develop it so they check me really closely and so far things have been been fine. I am sorry you find yourself in this situation & I can imagine it must feel pretty scary. Just wanted to send you a link to an American…[Read more]

Hello Duncan

Just wondering if you have heard of Amyloidosis Awareness on Facebook? It’s a great site with links to other ones. I am being checked regularly for Al Amy after the found some Amy tissue in my skin. Take care.

🙂 x

Just wanted to add my best wishes to you Tom. You r a real trooper. Lots of love and best wishes 🙂 x

Hi there

I asked for a second opinion last week and got it no probs. In fact my consultant was lovely about it. Furthermore some1 told me that I could ask for a third opinion if I want.

The only things my consultant wanted prior to referring me was a repeat bmb and a chat about what I want to achieve from the referral. I just said I wanted to…[Read more]