blessthischick replied to the topic We think it's on the way back in the forum General 9 years, 10 months ago
Hey there VickiMeek
Just to send you best wishes and to say I’m thinking of you guys. I can’t imagine how this feels because as a smoulderer I haven’t been there…yet. But I went through my expartner being diagnosed with advanced cancer last year and I remember the worry I had for him. I thought my heart was gonna break as I watched him being so…[Read more]
blessthischick replied to the topic For those of you who wish a more indepth understanding of Myeloma… in the forum General 9 years, 10 months ago
Dear Rebecca
I am pretty sure that there is nothing on this educational tool for nurses that you do not already know and that is EXACTLY why I do not understand why this information could not be made available for us all should we want it. Obviously it would need to be in a slightly different format & without the continuous assessments that are…[Read more]
blessthischick started the topic For those of you who wish a more indepth understanding of Myeloma… in the forum General 9 years, 10 months ago
Hi Everyone
I am aware that we are all different both with our Myeloma experiences and our need for knowledge. I have spent the last 8 months at different stages of my learning curve trying to grapple with the internet, most recently, in the process of exploring and trying to UNDERSTAND genetic abnormalities of which I have a few.
I was…[Read more]
blessthischick replied to the topic ALAmyloidosis in the forum Newcomers 10 years, 1 month ago
Hello Anita
I am the same age as you & had a trip down to the NAC last Oct. I was told I do not have Al Amy but that I may develop it so they check me really closely and so far things have been been fine. I am sorry you find yourself in this situation & I can imagine it must feel pretty scary. Just wanted to send you a link to an American…[Read more]
blessthischick replied to the topic Tracheobronchial AL Amyloidosis in the forum Related conditions 10 years, 1 month ago
Hello Duncan
Just wondering if you have heard of Amyloidosis Awareness on Facebook? It’s a great site with links to other ones. I am being checked regularly for Al Amy after the found some Amy tissue in my skin. Take care.
🙂 x
blessthischick replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 1 month ago
Just wanted to add my best wishes to you Tom. You r a real trooper. Lots of love and best wishes 🙂 x
blessthischick changed their profile picture 10 years, 1 month ago
blessthischick replied to the topic Second Opinion in the forum General 10 years, 1 month ago
Hi there
I asked for a second opinion last week and got it no probs. In fact my consultant was lovely about it. Furthermore some1 told me that I could ask for a third opinion if I want.
The only things my consultant wanted prior to referring me was a repeat bmb and a chat about what I want to achieve from the referral. I just said I wanted to…[Read more]