Thanks Mavis, for your informed reply……this is exactly what I needed to hear – to be honest I have never felt that the 4-weekly visit for the infusion has ever been an inconvenience – we have such a great oncology unit here and the nurses are fantastic, always got time for a chat about anything!

I’m sorry to hear that you have an increase in…[Read more]

Thank you Chris and Peter for your replies…..I am due to see my oncologist next month so will question him regarding the above. As I live on the Channel Islands we so not have a resident haematologist so all treatment comes under the oncologist.

Kind regards to you both.

Hello

I am new to this, so please bear with me. I was diagnosed in August 2014, started chemo (CTD) in November 2014 and finished in August 2015. My paraproteins are now less than 1 (from 30) and my light chain ratio is good.

Am I right in thinking that part of the treatment should be regular scanning of bones, CT, MRI or x-ray to determine the…[Read more]