[blossomParticipant]

Thanks Mavis, for your informed reply……this is exactly what I needed to hear – to be honest I have never felt that the 4-weekly visit for the infusion has ever been an inconvenience – we have such a great oncology unit here and the nurses are fantastic, always got time for a chat about anything!

I’m sorry to hear that you have an increase in pain and hope there is some help in that department

Kind regards

 

[blossomParticipant]

Thank you Chris and Peter for your replies…..I am due to see my oncologist next month so will question him regarding the above. As I live on the Channel Islands we so not have a resident haematologist so all treatment comes under the oncologist.

Kind regards to you both.

[blossomParticipant]

Hello

I am new to this, so please bear with me. I was diagnosed in August 2014, started chemo (CTD) in November 2014 and finished in August 2015. My paraproteins are now less than 1 (from 30) and my light chain ratio is good.

Am I right in thinking that part of the treatment should be regular scanning of bones, CT, MRI or x-ray to determine the progression of the disease? I have read your comments below and I too, only had x-rays before my chemo. How does one know how much our bones have been affected…I have asked my oncologist if I could have an x-ray to see what’s going on and his answer was ‘it won’t show up on an x-ray’….so why on earth did I have a full skeletal in Aug 2014 as part of the diagnosis?? I think this may be cost-cutting…..

Also, do I need Zoledronic infusions every 4 weeks as I do at present.

I am 65 and fit, and very well apart from having been diagnosed with this wretched disease!

I look forward to any responses and best wishes to you all…..Cheryl

 

[Author]

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