bmw3201 posted a new activity comment 7 years, 8 months ago
Hi helen just started. 3rd cycle of ponilidomide. How did your protien go at the start. And was you’re bloods messed up. Many thanks
bmw3201 replied to the topic The end of my Pomalidomide journey. in the forum Treatment 7 years, 8 months ago
Hi Andy hope you’re well. On my third cycle. Protien just the same . Did yours come down quick
bmw3201 replied to the topic Treatments in the forum Newcomers 7 years, 11 months ago
Dr hull Mandeville. how long u on treat
Tment. Have u had sct
bmw3201 replied to the topic Treatments in the forum Newcomers 7 years, 11 months ago
Also had stem cell 2014. Got a year with no treatment. Was on revilmid then two tumors popped up on my neck. After two weeks of treatment they have almost gone. Live In NI. NHS are super over here
bmw3201 started the topic Treatments in the forum Newcomers 7 years, 11 months ago
Hi my name is Stevie 53 y old. Had myeloma 5 years now . Had most treatments. On that new one now faydax with velcade.give talks on treatments . So if u have an ansewer don’t be afraid to ask many thanks.
Hi Stephen – I’m a sflc myeloma so don’t have a protein level to work from but the light chains dropped very quickly over the first 3 months I was on Pomalidomide- they stayed around the same level for about a year and then have been slowly going up- My neutrophils were never very good but the rest of my blood counts were relatively stable. I hope…[Read more]