Hi Tina yes I think it is Thalidomide thats turned me into a zombie! In the mornings I have wonky vision and frequent catnaps of less than five minutes drives me nuts Todaay and last night were write offs I felt dreadful within 2 hours of Bendamustine and just had to sleep through it , the headache is unbearable , its now about midnight and I am…[Read more]

Happy Birthday Toms Stem Cells ! Did Elaine bake them a cake Tom? Heres to many more birthdays for them love Bridget x

Hi Shirley sorry I must have missed your post till now Your christmas dinner sounds great and its always nice to forget about mm for a while. I am so glad you are starting to feel better but as Roz says dont overdo things , mind you it sounds as though Stephen will make sure you dont Will you need oxygen permanently now ? Or will your lungs…[Read more]

Hi Helen yes it was a bit confusing and spooky but later I saw the funny side ! It will be a while before I know if it is working, I have to rely on bmb and mri scans together with any physical symptoms such as pain because I am now a non-secretorBecause of my own experience ( initially my pp results were accurate) I am always a little uneasy…[Read more]

Hi Amelie sorry if I was over generalising I did remember John is your friend but I was just giving the patients perspective. He certainly is a very active man and his mum too , obviously good genes in their family ! I am glad you can come on here for answers to some of your questions but it is hard to be specific when we each have our own myeloma…[Read more]

Hi only me I really feel for you its horrible watching our parents go through it It is not really a case of someone being able to give you a time table as to when your dad will feel better as everyone is different but in a couple of weeks time you will look back and be surprised how much better he is Just take it one day at a time, I know you…[Read more]

Hi Jean what I didnt say is I could not have got through the last five years without Jeffs support The thing about not telling you everything might be male pride but come to think of it there are times I dont mention little niggles. I really feel for you Jean as now my mum is very frail I feel totally useless but even with her I try and let her…[Read more]

Hi Meera great to hear life is getting better for you now. I admire your strength especially having a toddler to look after as well , but its a lovely age though everything is new Heres hoping you get your energy back up quickly just remember to allow your body time to rest when you need to Good luxk love Bridget x

Hi Amelie and Jean I was just thinking how hard it must be worrying about someone you care about but I thought it might help to hear the other side, the patients side It is a tricky one but I would not want Jeff to be hovering over me all the time .I already feel pretty useless because of all the things I can no longer do so I would feel even…[Read more]

Hi Helen and Sue thankyou for asking. I am still struggling with the tiredness which I assume is Thalidomide Sometimes its scary , the other night I dozed off on the sofa woke and went to get a drink in the kitchen when I looked at the clock I realised I had fallen asleep standing up for an hour in the middle of the kitchen!! Friday and Saturday…[Read more]

Hi Tom he is sooooo gorgeous!! a real cutie and I like the idea of grandads cuddling chair love Bridget x

Hi Carol thats wonderful news!! No wonder you are walking around with a big grin and how nice of your consultant to phone you with good news Your sons question about Dex day really made me smile, it just shows how much impact Dex has on our families as well I am crossing fingers and toes that next weeks results will be more good news for you…[Read more]

Hi Debs if I remember right there were a few occasions when I felt achey on Rev, this was early in treatment and didnt last.As for colds I didnt have constant colds but I was constantly full of snot !! Classy! It actually drove me nutsand as there was nothing to be done about it I just got used to it Hope your aches dont last long love Bridget x

Hi Vicki be prepared for your dads appetite being changeable as most people find their taste buds are affected. So lots of little snacks that are easy to eat , individual pots of jelly , small portions of cheese small tins of fruit with a ring pull Your dad will be able to tell you what he fancies! Also some soothing wipes to use instead of…[Read more]

Dear Gina I am so sorry to hear your mum has passed away but you must be relieved to know she wasnt in pain Your mum must have felt so loved surrounded by her lovely family , there is no greater gift Take care of yourselves and hold on to all the wonderful memories you have love Bridget x

Eve have you thought of attacking Slims eyebrows when he is asleep ? That would be soooo funny , but a bit cruel I suppose! Having lost my hair 3 times now I can honestly say it doesnt bother me anymore Mind you my eyelashes and eyebrows always stay which helps, but being a baldy is quite liberating Sinead has gone back to her shaved head now too…[Read more]

Hi Jean I am glad you posted this because although I love Christmas I just havent got started this year, maybe I will get moving now ! Your family Christmas sounds wonderful, you will have a great time even if it is exhausting. Sarah I am so glad your family are all going to be with you too it will help I am sure My mother-in-law has invited…[Read more]

Hi Helen last year I was so grey it was like looking at a stranger in the mirror till I had it dyed !! What a differencee instantly felt brighter and more lively so boo to growing old gracefully !! You should wait 3 months after chemo before dying , I booked my appointment for 3 months and 1 day !! Happy hair days love Bridget x

Hi Suru sorru I have only just seen your post. You have had an awful time you must be exhausted After any major surgery it takes time for you body to recover.Just try eating little and often whatever you feel like eating , your appetite will come back Do you take fortified drinks , Ensure is one we have over here. perhaps you could ask your…[Read more]

Dear Jo what wonderful news I am so happy for you! I bet you were dancing a jig last night!! Was it the lovely Dean who rang you? Now you can foget about myeloma for a while and have a great christmas lots of love Bridget x