Hi Mal and Bruce good to hear things are going well Bruce hopefully it wont be long before you are home again You both hve such a positive outlook on things I am sure it will help you get through the rough bits . Mal I hope you try and get some rest too its often much harder watching someone you love going through tough times and even just…[Read more]

Hi Sue good to hear your day wasnt too bad even if it was tiring( it always is!) Interesting news about the new trials I will keep my eyes and ears open too Incidentally my consultant feels that not being able to measure paraproteins should not prevent us from taking part in trialsas I had been told before , they can only measure any activity…[Read more]

Hi Min and Mavis thankyou both .To be honest I am quite relieved I dont have to wait any longer to begin treatment , the doctor I saw today said he was just going to go ahead rather than waiting for funding approval , good man ! Iwill have to be very vigilant about getting myself to the hospital if I get an infection sooner rather than later ,…[Read more]

Hi Craig its great to hear things are looking up for Etta now , especially when those pesky numbers drop really low!! Eve has already given you good advice about getting some helpand I cant add to that except to say make sure you insist on help , you are more than entitled to it!! If you can keep working I am sure it will help you both in all sort…[Read more]

Hi Eve and Sue well got it sorted today I will be starting on Bendamustine, Thalimode and Prednisalone ( just the same as Dex but reccommended with these two drugs) in a weeks time So although I am not on a trial , my consultant believed one of the trials has been stopped due to blood counts not recovering , not sure which trial ) I will be on…[Read more]

Hi Anna welcome and sorry you have found yourselves members of the mm club. Its great that you are supporting your dad , I am sure he finds it invauable , but it must be tough on you especially with a daughter who has health issue too Please dont feel guilty if you cant always keep his spirits up ,sometimes the down times happen whatever we do !…[Read more]

Hi everyone this post has really been interesting , the differences in our care and hospital resources amazes me in this day and age . I believe we all should have reasonable access to specialist cancer centres to level this out .Recently a consultant at my local hospital was surprised that Ichose to travel to London rather than be treated locally…[Read more]

Hi Sharon hopefully you wont have to wait too long before you feel ok again Thats such a long wait for PET scan though, mind you I have never had one I dont think UCH has access to PET scanner I wish they did if reports about their accuracy are true! I know what you mean about having to wait for RT I used to despair after getting the district…[Read more]

Hi Craig I am glad Etta is over the worst You two will get through these times as you seem like a very strong partnership, I know I couldnt manage without my husband Just a word of caution though try and make some time for yourself that has nothing to do with myeloma or hospitals as it can take over your life , so try and have some fun too love Bridget x

Hi Sharon thankyou . Its such bliss to have got rid of that awful pain at last !! Now I dont have to feel pressured to go into the hospice for methadone trial either , I really did not want to do that. I hadnt realised until last year , when radiotherapy got rid of the last tumour on my spine, just how precise and effective it was these days ,…[Read more]

I am sad to hear your mum has passed away but at least she was with her family She will always be in your hearts and memories love Bridget x

Hi Gina what a relief for you to know its not her lungs causing the breathlessness Hopefully mum will be feeling a lot brighter today and you can all enjoy the weekend love Bridget x

Good morning everyone a very interesting topic this not sure I can add much except to relay my own experience . From the initial consultation at UCH I have felt they are at the forefront of any new treatments With referwence to their hands being tied by NICE guidelines I have never felt that was the case.When I asked about the Velcade rules on…[Read more]

Dear Mari I am so sorry to hear Steves pp have risen But as Gill said hang in there they may yet go back down It sounds as if your doctor is quite laid back about it too Mari you are so good at supporting others on here please dont ever feel you are a burden , it couldnt be further from the truth and we are all here for you and Steve whenever you…[Read more]

Hi Gill I cannot believe the arrogance of these banks!! No wonder you are spitting feathers how dare they treat you like that after years of being loyal customers! If I remember rightly HSBC are runnning a tv ad campaign based on meeting local needs Perhaps you could start with your local paer and radio station stressing the local angle They may…[Read more]

WOOHOO BRILLIANT NEWS!! Dai its wonderful to hear you have been given freedom from the beast I really hope its for a very long time. Now you can both have fun and live life to the max again Thank goodness you made the journey from Wales and away from that awful doctor , when you did. I was so upset when I read your first post on here, its a…[Read more]

Hi Debs if ever a rant was needed that one was ! How infuriating for you and why dont they listen to us the people who are on the sharp end of their service . I had problems after seeing a pain consultant , between him and my gp it took weeks to get my morphine and pregablin sorted out Actually I dont take the pregablin anymore it made me very…[Read more]

Hi Ettas hubby I hope she is feeling better by now . I agree its good to let someone look after you now and again but sometimes its hard to let them do it A lot of doctors dont agree with staging now we have so many new drugs and treatments its not as relevant as it used to be so try not to worry love Bridget

Good morning Min thank you so much for starting my day with a giggle The image of you emptying the water out of your wellies like that is priceless , I bet the dogs thought you had lost it Watch out though as I bet Daisy will be bursting to tell the world how her nan wet herself!! Tee-hee Shame about the racy sportscar , dont suppose it would be…[Read more]

Hi Dai what rotten luck to pick up an infectionnits so maddening isnt it ! Heres hoping the anti -biotics do the trick sooner rather than later so you can get on with your next velcade. LAots of love Dai feel better soon Bridget x