Hi Etta welcome No wonder you are in a spin , at first it all seems so hard to take in but it will get easier in a short time as you get used to the routines of taking all those meds You have already been given good advice as to anti-sickness tablets and I agree that Zometa can affect you but it tends to be temporary The main thing is to let the…[Read more]

Hi Terry crikey you have certainly been through the mill in the last few years yet you sound so positive and upbeat which I am sure has a lot to do with keeping well I was diagnosed 5 years ago after a year of agonising back pain which meant 3 vertebrae were eaten up Amazingly I did not have any problems walking much to my doctors astonishment…[Read more]

Hi Tom thanks your good wishes keep me going . Funny you like the heat now I am still not happy in very hot weather and have to stay in the shade But heres to many more sunny days to cheer us up love Bridget x

Hi Min lovely to hear from you and it sounds as if your visit to your daughter has helped restore your spirits Yes I will be starting Bendamustine as soon as each member of the team has agreed to it . I am not eligible for a trial as my pps are immeasurable Fingers crossed it will put the beast back in its box for a while longer !! Have a safe…[Read more]

Hi everyone how about this word TENACITY –something we all need! Sorry but it still leaves ITY Bridget x

Good Morning Tom well the pain has definitely gone !! Thank goodness for wonderful radiotherapy and the lovely Professor Tobias , a man who keeps his promises Now all I have to wait for is the tiredness to ease up but that may be due to my myeloma levels rising as well ,so soon as new treatment starts the better Hope things are good for you and…[Read more]

Hi Gina how is mum feeling? I hope this lovely spell of sunny weather has lifted her spirits a bit. Please say hi for me love Bridget x

Dear Sarah I just wanted to say here is where you can moan , weep or rant against the unfairness of having Gordon taken from you too soon so please never apologise we are all here for you in any way we can be to help. I could not believe anyone could be so insensitive as your cousin !! I bet you felt like punching her right on the nose I know I…[Read more]

Hi David great news you have certainly got those pesky little blighters on the run!! Heres to even lower numbers and longer times between clinics so you can both forget about mm for a good long while love Bridget x

Hi Shirley its good to hear from you but I am sorry you are having problems Mind you you are such a determined person I cant see it holding you back for too long!! Hers hoping you wont need that oxygen for much longer and you can get your dancing shoes on again lots of love Bridget x

Hi Ellen thankyou for responding to us on this very sensitive subject . I do think there is a need for this category for those who have lost their partner , parent or sibling but also for those of us who after several years of treatment feel the need to look at choices for the final stage of their myeloma journey It would be heartbreaking to…[Read more]

Hi Wendy well I certainly wouldnt want to have to make that decision in a hurry!! It amazes me how very different the various approaches by hospitals and individual doctors are to our treatment In my case I was told the risks of a non-related donor transplant were much too high for me and I dont think my hospital offers mini allo transplants at…[Read more]

Hi Gill I am so glad you both had a good evening, just what you needed I think!. It just occurred to me Gill I am the fat lady!!!! haha Heres to many more nights boogying the night away love Bridget x

Hi Min I dont know how I managed to miss this post till now It makes my heart ache to hear you describe your pain and not be able to give you any comfort You and Peter were robbed of the time when you could reap the benefits of years of hard work and raising a family and it just doesnt seem fair. I agree we dont acknowledge the effects of death…[Read more]

Hi Dai thanks for these , they gave me a good chuckle!!Words are just amazing arent they!! love Bridget x

my word is ENTERTAINMENT —- leaving ENT love Bridget x

Dear Gill no wonder you are devastated with news like that!! But remember Gill that is just one mans opinion and Stephen can prove him wrong!!( you and Stephen together should I say) I think Stephen had the right idea about going out and enjoying yourselves and I hope it took your mind off gloomy things for a while Good news about the Revlimid and…[Read more]

Hi Eve good to know you are both ok , Sometimes we all need a break though and you are wise to recognise the need to escape for a while Have fun decorating and shopping too?? lots of love Bridget x

Hi Linda welcome from me too , you will always find support for you or your mum on here It sounds as if your mum is a lucky lady to have such lovely children , she must be very proud. Make sure you dont let myeloma take over your lives though and you go and have fun sometimes away from hospitals and all the stuff that goes with it love Bridget

Hi Jet great to hear you have had the magic word remission too , thankyou for sharing with us its always good to hear news like that Now you can put myeloma on a back burner hopefully for a very long time ,and go and enjoy life love Bridget