brocho replied to the topic Some good news! in the forum General 13 years, 10 months ago
Hi Liz and Kev thankyou so much for sharing your wonderful news!! Having been through the mill it must feel great to hear the magic words ! Heres to a very long time before you need any treatment Now go and have some fun love Bridget x
brocho replied to the topic About time I joined the Forum !!!! in the forum Newcomers 13 years, 10 months ago
Hi Pete welcome to our lovely band of people Great news about your remission fantastic length of time. I agree a positive attitude helps a lot and having the support of people who understand too , so you have definitely come to the right place Best wishes to you and your wife Bridget
brocho replied to the topic WEDDING ANIVERSERY in the forum Off topic 13 years, 10 months ago
Dear Jo happy anniversary! What a wonderful thing to celebrate 46 years is awesome. I do hope you are going to do something really special tomorrow , have a lovely time Bridgetx
brocho replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 10 months ago
Hi eveyone heres my word KNOWLEDGE leaving —-DGE love Bridget x
brocho replied to the topic Hi Susanna, how is Michael? in the forum General 13 years, 10 months ago
Hi Susannah I do hope the lower dose is better for Michael , all fingers and toes crossed ! I wasnt eligible for a Bendamustine trial as I am a non-secretor and the only way to monitor my mm now is mri and bone marrow biopsies The hospital does have a system though where if all the team agree then treatment can go ahead At the moment I am waiting…[Read more]
brocho replied to the topic Good news x in the forum General 13 years, 10 months ago
Hi Gina what wonderful news! It may have been a bit of a mixed bag but its a very good start to get those numbers down!!Hopefully mum will feel better soon , I agree with Dai the drugs we take are often what make us feel lousy but as your mums system gets used to them it should get better. I hope you can all relax a bit now and go and have some…[Read more]
brocho replied to the topic I LOVE in the forum Off topic 13 years, 10 months ago
My Dear Friend Min after Dais lovely message to you there is very little to add. Please know that although Peter was the mmer you were and are the person who made so many friends on here.It feels wrong to pressure you to stay , if I were in your shoes I am not sure what I would want,but Min you would be missed by so many people! I can only imagine…[Read more]
brocho replied to the topic Hi Susanna, how is Michael? in the forum General 13 years, 10 months ago
Hi Tina thankyou thats reassuring to know after Revlimid Although to be fair the side-effects with Revlimid werent terrible just a real pain when combined with Dex . Watch this space ! love Bridgetx
brocho replied to the topic Advice Please! in the forum Newcomers 13 years, 10 months ago
Hi Nadine and welcome ,sorry I seem to have missed your original post. It sounds as if you and your mum are coping well with getting to grips with this myeloma lark. It struck me when you said you are being strong for your mum that perhaps she is doing exactly the same to protect you and this could be making it difficult to talk But try not to…[Read more]
brocho replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 13 years, 10 months ago
Hi Jean I wondered what happened to that post!! I was writing about how exhausted the radiotherapy has made me feel and then I dont know what happened!! But I can honestly say I have never felt so tired in my lifeLast year they told me tiredness could be a side-effect of the RT but I didnt feel any different It may be because I still have these…[Read more]
brocho replied to the topic Hi Folks (old and new) in the forum General 13 years, 10 months ago
Hi Mary and Theresa how lovely to hear from you. I am glad your holiday felt right and it must have been such a comfort for your mum that you were with her Both your parents must be very proud to have such lovely caring daughters, you are a credit to them Take care and please pass on my best wishes to your mum love Bridget xx
brocho replied to the topic Hi Susanna, how is Michael? in the forum General 13 years, 10 months ago
Hi Susannah wow you have certainly been kept busy!! I am glad to hear both Michael and your daughter are feeling better though but now is the time for you to look after yourself! Go and treat yourself to some pampering you deserve it! I will be starting Bendamuste in the next couple of weeks it was a choice between that and a course of heavy duty…[Read more]
brocho replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 10 months ago
My word to follow that one is LAMINATED which leaves TED
brocho replied to the topic Outdoors Paul Lightchains is the word! in the forum Under 50s 13 years, 10 months ago
Hi Paul not all doctors classify patients myeloma type to them so you will get various answers to your question When I was first diagnosed they were able to measure my paraprotein levels and therefore the level of myeloma in standard blood tests When this proved inaccurate after a couple of years, I relapsed with a large tumour and still had low…[Read more]
brocho replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 13 years, 10 months ago
Hi Carol thank you for caring and I would never think you were a pest for asking ! So far so good no pain for the last few days but as I took extra Dex this could be masking it The radiographers always point out things get worse before they get better so I am being cautious for a while yet ! Still its looking very promising apart from a bit of a…[Read more]
brocho replied to the topic 28 days post SCT in the forum General 13 years, 10 months ago
Hi Helen your answer made me laugh That would be just the thing to happen to me too !Or I would spend a whole day out before realising it was on back to front or upside down!! Just e-mail me your address and I will knit your hat , at least it will help keep warm As for body hair Wendy I didnt have to shave my legs for over a year the first time…[Read more]
brocho replied to the topic HATS GLORIOUS HATS!! in the forum Off topic 13 years, 10 months ago
Hi Jo , Dai and Elizabeth thankyou for your kind words .Dai of course you can have a Bridget beanie but no contribution please this is my small gift to my online friends in just the same way you give us your beautiful words and music Its a joy to me to be able to make something people like and who better to make for than good friends .I have still…[Read more]
brocho replied to the topic Velcade Cycle 6 in the forum Treatment 13 years, 10 months ago
Hi Dai and may you be a happy bunny for a very long time to come love Bridget x
brocho replied to the topic Hello Everyone in the forum Newcomers 13 years, 10 months ago
Hi Graham welcome Can I just say if you are young of heart and mind they laet you into the under 50 group , this is from me a 56 yr old who joined ! Seriously there may be relevant work or lifistyle issues better suited to the under 50sif so just let Scotty or Phil know your e-mail address This site is brilliant too , so many lovely people to…[Read more]
brocho started the topic HATS GLORIOUS HATS!!. in the forum Off topic 13 years, 10 months ago
Hi everyone well this post is for anyone who has had or is about to have a Stem Cell Tranplant If you are feeling nervous about losing your hair try not to worry There are lots of lovely wigs ,hats and scarves for you to try When I first lost my hair I knew a wig was not the answer for me as I am just too untidy by nature, it would end up being…[Read more]