Hi Neeli as I read your post I found myself getting angrier by the minute There are several people who have had to wait over a year as has already been said gps are unlikely to see a case of myeloma Thankfully M.M.U.K is working very hard to make gps and other professionals aware of myeloma. I also had to wait over a year for diagnosis , many…[Read more]

Hi Dai I am not at all surprised that you and Janet have such a lovely kind ,caring daughter as your compassion and giving nature shine off theses pages You must be so proud . I have never had lofty materialistic ambitions for my children , I raised them to be good people and I am also very proud of their care for others If they had made a forune…[Read more]

WooHoo Well done Slim thats the way to do it !! Worth being shattered for . Like you we have quite a journey to the hospital . as you say its cost as well as time so the team at UCH always try and schedule as many tests in one day as they can Although you get home exhausted at least you havent got to face it all again the next day. Well not too…[Read more]

Hi David it always makes my day to read a post like yours. Heres to many more posts like it and hopefully they might give you a longer time between clinic appointments Go and enjoy yourselves lots of love Bridget x

Gill you certainly arent the only one !! We all have our way of handling things . I know that if Jeff ever said that I would freak out , yet its ok for me to say it !! love Bridfget x

Hi Paul well we all need to claim what we are entitled to these days, I am still looking for the letter with the name of the scheme on it though!! So pleased you got sorted at least thats one less worry for you and Rachel Scotland sounds good have a great time and post some pics to make us jealous love to you both Bridget x

Hi Kirsty a big welcome to you although this site must be the last place you thought you would need. I am glad you found it though as it will help you get your head around being diagnosed with myeloma Try not to look elsewhere on the internet as a lot of the info is out of date and some of it is just plain scaremongering You must still feel…[Read more]

Hi Dai funnily enough I have been thinking the same thing lately I really miss the chatty lighthearted moments on here This board is brilliant for finding out facts re mm and even more so for support but its so nice to be amongst like minded people and relax too. I probably have been a bit quiet lately si I will get back to normal I think love Bridget x

Hi Eve the media furore is what prompted me to be concerned I find it very disturbing that people can be misled by a few emotive headlines without looking at the facts Hopefully common sense will prevail before things get any worse love to you and Slim Bridget x

Dear Jean I am so sorry your brother has gone From your description he sounds like a lovely man Hang on to a lifetimes memories Jean he will always be a part of you . I hope Alex is able to celebrate her birthday too I hope you can take some comfort that you were able to be with him Jean . lots of love Bridget x

Dear Gill what a bugger!! I really hope it turns out to a minor blip ! Gill having been at the point Stephen is on more than one occasion my advice is dont panic yet ! Stephens doctors will be actively looking for the best possible trerment for him There is radiotherapy as one possible option , longer term there is Bendamustine which although it…[Read more]

Hi Dai you are so right the lack of information to people who could be eligible for benefits is a disgrace Especially when there are politically engineered media campaigns to shop benefit cheats, the latest being anyone claiming DLA It makes my blood boil that they think we are all so gullible and stupid and could be conned by these manipulations…[Read more]

Hi Tom sorry didnt see your post this morning, mind I dont see much in the morning I am a bit like a zombie before 10 am !! Thats the trouble with Thalidomide it totally knocks me out at night and I am useless when I first wake up!! You wouldnt believe the times I have dozed off with a cuppa in my hand If I shut my eyes my grandson usually…[Read more]

Hi Carol sorry to hear you are having pain trouble it can really get you down cant it Still great news that the mri ruled out anything nasty though Hopefully this spell of warm weather will help a little If nothing else the sun makes us all feel a bit more cheerful Keep smiling your lovely smile love Bridget x

Thanks Dai it never hurts to be reminded how important it is to eat healthily love Bridget x

Hi Tom and welcome to the best support group you could wish for Good luck on your walk I look forward to hearing how you get on Bridget

Dear Michelle I am so sorry you have lost your husband far too soon to this lousy illness . It must be a comfort to know all the people who loved him were with him at the end The days ahead will be hard for all of you but together you will get through it Hang on to those lovely memories of your life together . Although Phil is not here physically…[Read more]

Hi Dai the lovely Dex a necessary evil we love to hate!! I have had the mouth tingling too , not too troublesome though just a minor annoyance . I also have trouble passing water at times which I found puzzling but I think you have hit the nail on the head it is likely to be Dex I just hadnt thought of it before Both these side-effects are just a…[Read more]

Hi Nicole I am so sorry you didnt have longer with your dad but take some comfort that he is no longer in pain . He was with the people he loved and that must have meant a lot to him .He will always be with you try and remember all the good times to get you through As Helen said live your life well that will be the best tribute to your dad Stay…[Read more]