For Gaye ; This morning when I read that you had left us I cried . As the day has gone on I have been thinking of your wonderful warm nature and how your posts written with such warmth showed us what a caring person you were .When I first found this site I was unsure as to whether the forum was something I wanted to take part in , but the warm…[Read more]

Hi Ivan I am glad you were seen on the ward it really does make sense for them to see you as they know all the relevant details of your illness and treatment . I can understand you being disappointed having to take time off work but sometimes its the best thing rather than struggling on and making things worse. We have all had these minor blips…[Read more]

Thankyou Ellen for letting us know Gaye was a very big asset to this forum and she will be missed by a lot of people . I will remember her for her compassion and wonderful sense of humour even when she was going through very tough times Bridget

Hi Russell you must be reeling from the shock of hearing you have myeloma .The internet does throw up some scary facts , be careful about searching on there as information is often incorrect or out of date The average age is much lower than 70 now and although you are very young at 28 there are quite a few under 50s and several under30s , so…[Read more]

Hi Carol its great to hear your good news please dont heasitate to share good news with us it always lift our spirits and as you say lately there has been a lot of sad news .I hope you start to feel the benefits of a lower dose very soon although it does take a bit of time to get it out of the bloodstream Heres to lower doses for a long long time…[Read more]

Hi Ivan I agree with Eve your hospital is the best place for answers to this one It could possibly be a side-effect and my advice would be to ring them for any new troubling symptoms rarher than your local gp Good luck let us know how you get on Bridget

Hi Min haha I love the image of the pir of you tip-toeing out of the hospital for big macs!! I bet Pter felt a whole lot better as Sundays are horrible in hospital, apart from the lunches!! I hope he gets home today for a few days of normality , which you must both be desperate for. love Bridget x

Hi Annette its good to hear from you and no you were not at all boring Great results from your treatment plan and it certainly sounds as if its made a big improvement in your life I think the fatigue is hard to avoid , it either comes with mm or with the drugs we take , I know I have become a champion cat napper Heres to you staying well for many…[Read more]

Hi Sue thats wonderful to hear you are still in remission 2.5 years on and for many more years yet hopefully. I know what you mean about living with the uncertainty of myeloma but I suppose all we can do is live each day to the full and enjoy every moment As you say never give up Heres to staying well love Bridget x

Hi Susan thankyou for your kind words.I have stopped ranting now, and feel much better for it, and waiting for my clinic appointment to know what the plan of action is How are you feeling? Are you still in remission? love Bridgetx

Hi Cathy welcome to our merry band of people from all walks of life! I am the pateint and my partner is Jeff, I dont like using the word carer, we are in this myeloma journey together There are so many lovely people on here who can help when you need it and the helpline is brilliant too. I was diagnosed 5 years ago and I can remember the fear and…[Read more]

Hi Eve I may be able to answer part of your query Blood tests give overall readings but bone marrow can form little pockets or cumps of myeloma. If the sample is taken slightly to the left or right for instance the result could be much lower In the beginning my paraprotein readings seemed to accurately reflect what was going on butafter a short…[Read more]

Thankyou so much Debs and Lorraine it never ceases to amaze me just how lovely you all are When this bloody illness throws c**p at us a message on here can make so much difference lots of love Bridget x

Hi Min as awful as it is for Peter to be away from home , and you I am sure you are right about him needing to be there I do understand how he feels about not being in control and its always worse when you are feeling c**p Hopefully this depression will allow him to be more honest with the professionals and let him build a better relationship with…[Read more]

Haha Mavis no hard stuff for me I am afraid , today I just decided life is too short to be gloomy all the time and have been in a very silly mood all day! I hope you have had a good day too love Bridgetx

Hi Dai your answer gave me a good laugh thanks, Of course the simple answer is I am just barking mad!!Tee-hee Mind you morphine is the stuff of dreams or so they said love Bridget x

Hi CN thankyou for this it certainly sounds promising and shows you shouldnt ignore things just because of their previous application Heres hoping it doesnt take as long 10 years to reach patients . Take care love Bridget x

Good Morning Gaye if you are popping in this might make you smile ! Last night I had a restless night full of strange and very vivid dreams Guess what you turned up in one! I dreamt that you were looking out onto a lovely garden from your room But each shrub and tree wasblossoming with bras of all shapes sizes and colours !! You and I then had a…[Read more]

Hi Eve thanks for that made me chuckle ! That woman probably didnt even realise what she had said!! As long as we can keep laughing we will be ok love Bridget x

Yippee ! There is nothing like a good day at clinic to lift your spirits Even better when you manage to get out of there in record time!! Your post made me smile becauseI think we are all probably the same in being cheered up by something as simple as not hanging around clinic for hours on end !! Enjoy the breakand by the time the next cycle…[Read more]