Oh Dai I really hope they get your leg sorted very soon!! It is so depressing and I am sorry if my silly post made yoy feel worse Fingers toes and eyes crossed for you love Bridget x

Dear Min well you deserved a couple of glasses of vino after the day you had!! Thank goodness the surgeon agreed to do the kyphoplasty earier ! I wish theses doctors would consider how they would feel in that situation pain makes the healing process much more difficult but apart from that Peter has had to put up with a high level of pain for such…[Read more]

Good luck Jet and Keith hopefully you will be home again very soon ! It is definitely worth it so hang in there just think of being drug free ! love Bridget x

Hi Min and Eve I just wanted to say I have never been too worried about knowing the exact paraprotein numbers on my tests, in the first few years before I became a non-secretor, I was just happy to be told they were low or static, I would have found it too stressful to keep wondering how low they were! As you say Min if you concentrate on being…[Read more]

Hi Gina glad to hear your mum finally got started on her treatment you must be so relieved! Hopefully she will gradually get her appetite back and be able to tolerate food ok Gina your mum must be very proud of all of you and I am sure it must be a huge relief for her knowing you are fighting her corner!! lots of love to you both Bridget x

Dear Sarah if only I could do more than send you my love and a big hug I will be thinking of you.You and Gordon have been so strong together, I am sure your strength and positivity have kept him going as it will now Sarah Hang in there Sarah hopefully that slight improvement today will be an even bigger one tomorrow Love to you both Bridget x

Hi Sharon I am so pleased your consultant was more willing to listen to you. It sounds as if the other doctor was sticking rigidly to the trial protocols rather than adjusting doses for your benefit In my experience of trials the overiding factor is what is best for you as a patient and although the protocols are there there is room for changes…[Read more]

Hi Jet good luck for this week I m sure you will be home in record time just hang in there !! Remember not to try and rush things too much , your body needs time to get over it so rest when you need to !! love Bridget x

Hi Dai like Sarah I am blooming well gobsmacked at the date you have been given for a minor procedure that could save your life!! Good luck tomorrow , give them what for! Well at least my local has got a good system for DVTs and when it was thought I had one the scan was immediate even though I was brought in late at night !!Mind you they fall…[Read more]

Hi Gill so pleased Stephen is feeling better . I am sure he will soon get his appetite back now he is back home with you looking after him Please make sure you look after yourself too though !! Hows the puppy? I hope she has learnt to perform in the right place now!! love Bridget x

Hi Ivan sorry you have had to join our merry little band but you will find lots of help and support on here even if it is only to have a rant at myeloma and all it brings with it!! You are wise to take your partner in for your consultation , in the beginning there is so much that will be new to you, I often used to ask my husband what had been…[Read more]

Hi Lara welcome to our site there are lots of people on here only too happy to offer you support and we have a range of experiences from patients to carers, those like your dad just starting treatment and people like me who were diagnosed some time ago , 5 years in my case. I havent been on thalidomide myselfbut I know from others that the best…[Read more]

Dear Gina congratulations for your wedding, and you dont need lots of money to make it the best day of your lives — just each other and your families beside you !! I am appalled that those wretched doctors have allowed your lovely , lively mum to become so poorly when they shou;d have started treament ages ago Its no wonder you are angry , I…[Read more]

Hi Susannah I just want to add my vote for PICC lines they are great!! Quick to insert and as Tina has said painless Also they are completely covered so less risk of infection than with a Hickman. I have had 3 so far and none have given me any problems , so much easier than searching for veins in obscure places I hope the treatment goes well love…[Read more]

Hi Min and Eve well still got the legs of a bull elephant !! I do drink lots and try and be as active as possible and I am remembering to elevate my legs when I sit down too .My Macmillan nurse did say that Ferusamide wasnt that good as a diuretic as it causes kidney problems at higher doses , she also said if the problem continued they would…[Read more]

Dear SHARON I was in tears reading your post , how awful to have to put up withose side-effects and even worse nobody is listening to you . You are not being unreasonable to want some quality of life whilst on treatment especially as your family is so young . I think if I were in your shoes I would bluntly refuse to take any more Thalidomide ,…[Read more]

Hi Gill I dont know how I missed your post till today but I do hope they have got Stephens infection under control now. Hopefully he will be back home very soon Take care of yourself too Gill love Bridget x

Dear Sarah I hope they can get Gordon sorted out very soon . Fingers and toes crossed for you both lots of love Bridget x he will be using that blue badge before you know it !!xx

Hi Gill I couldnt agree more , on bad days it makes the world of difference to be able to park that little bit closer Whilst I understand how people get upset at misuseof blue badges I do get annoyed when they make judgements on how you lookSometimes I feel like brandishing an x-ray of my bones at them !! Blue Badgers ROCK!!!!