Hi Sarah poor Gordon not much of a break for either of you! Is the damage to his hip due to myeloma or is it steroid damage ? My right hip was destroyed by the huge doses of steroids but thhe hip replacement sorted it out and I have not had any problems with it The Blue badge is easy to apply for , its usually your local council, give them a…[Read more]

Hi everyone thankyou again for your best wishes Jo I hope you had a great week with your grandson , I bet he was excited!! I am still plodding on , but my macmillan nurse is back from leave and its been agredd she will make any changes to my drugs It was a real pain being prescribed something only to have it completely changed by the next person…[Read more]

Hi Dai congratulations on your good news and it is GOOD NEWS!! You are within the range and there is a high probability your numbers will drop even more by the time you have finished . I have heard good things about the once a week dose and if it does the trick it might be worth taking it a slower . I have no doubt you will achieve CR in the end…[Read more]

Hi Debs your dinner sounded awful !When I was in having my sct all I wanted at first was jelly!!My mum made some and brought it in but you can also buy it in individual pots too Get someone to get you a couple Fingers crossed the next bit isnt as bad as you fear it will be Keith good luck with your sct , it will be over before you know it and…[Read more]

Hi Pam so sorry your dad is having such a rough time , it must be awful for you watching him go through it . It sounds as if your dad is being well cared for in hospital which must give you some peace of mind If it does turn out to be myeloma I am sure they will be able to manage treatment to suit your dads health , they wont give him the strong…[Read more]

Hi John I do hope you remain symptom free for a very long time yet The treatment can be demanding , although consultants are generlly very good in working with you to find the right treatment to keep some quality of life balance The other thing in your favoir is the time to research all treatment options Provided you are generally fit and after a…[Read more]

Hi Jet I love your pic , you really suit having no hair it shows what great bones you have ! My sct was 4 years ago and I was petrified going into hospital , like most of us going into the unknown. I had the sickness and diarrhoea but I was lucky not to have too many problems with my mouth or gums . I had absolutely no energy whilst in hospital…[Read more]

Hi Gillian its good to hear you are doing well and I hope you can get home next week, there really is no place like it Your new house sounds exciting , even if it is a big undertaking !!You will get some normality back , probably sooner than you can imagine right now ! The main thing is to rest when you need to , dont try and rush yourself to do…[Read more]

Hi everyone bless you all for caring Sorry I havent been around but I have been struggling with Revlimid and changing these wretched painkillers! Half the time I am out of it and the other half I am asleep Last week I saw a consultant who specialises in palliative pain care and he altered my Oxycontine dose from 70mgs twice a day to 200mgs twice…[Read more]

Hi Ian I am glad things have gone well so far apart from your reaction. I hope that its all plain sailing from now on Good luck and take it easy love Bridget

Hi Sarah what a bastd this illness is , you must be gutted. Well Dex may be the most evil drug in the world but it is good at getting those pp numbers down quickly. Enjoy your break in Yorkshire I shall watch out for reports of a riot in Yorkshire !! Hang in there Sarah love Bridget x

Hi Kathleen sorry to hear you are having a rotten time hope it doesnt last much longer Your post made me chuckle at your new signature !!Being challenged in the dental department myself I love the name Gummy. Take it easy and I hope you feel better very soon love Bridgetx

Hi Keith great news now you can forget all about it for the time being and enjoy your holiday!! Have a wonderful time love Bridget x

Hi Gill welcome to our merry band of slightly crazy but wonderful people ( cucumbers are a good example!!tee-hee) Actually I thought I replied to your post yesterday , either I was dreaming or the gremlins have pinched it It is very confusing when you first start on treatment but it will soon settle down as you get to understand all the new words…[Read more]

Hi Gill you are on the right site for info and lots of support from people who understand what it feels like At the moment it probably feels overwhelming but as your treatment begins it will all start to make sense You will have a specialist nurse who will be available , usually more so than consultants although a lot of them are very good at…[Read more]

Hi Peter UCH is a London hospital I am also a patient there. Several of us have have asked our docs about the sub-q Velcade and apart from them being aware of its use in US no good reason has emerged as to why we are not !! It is so frustrating as this would make the use of Velcade so much easier for us . Have you ever had a PICC line? It is so…[Read more]

Hi Jo I am sorry you didnt get the remission with those drugs, it must be very scary for you as the options become limited, I know I dread it Sorry I cant help with the intermittent Melphalan ,have you rung the nurses on this site their knowledge of up-to-date treaments is excellent Good luck with whatever treatment you have next love Bridget

Hi Jo Min and Sarah thankyou all for your good wishes its you lovely people that keep me going! Min how wonderful that Peter has turned a corner at last it can only be onwards and upwards now!!Love the new hairdo too Srah your holiday sounds just perfect to get away from it all and I bet Gordon was pleased you went , I know I feel so bad that…[Read more]

Hi Angelina I am so pleased John was able to be with you and his girls at home for a short while and it went well Joining everybody else in crossing fingers toes and anything possible that he gets home very soon Angelina your strength and positivity are amazing I hope you can find some time to look after you as well love to all of you Bridgetx

Hi Min god to hear Peter has realised you need a bit of looking after too , even if its only a sandwich its the thought that counts. Perhaps he is worse this time because he is more scared , angry than the first time , I know relapsing brought up a whole load of emotions for me the worst being feeling helpless! I am struggling with these new…[Read more]