Hi Dai I have been pondering after reading your reply Waiting for results of x-rays , mri and ct scans can get frustrating as Uch wait to discuss it in their meeting before telling the patient As for the overall results bloods etc and well being , tolerance of side -effects I have great faith in the nurses at the front line giving us the drugs…[Read more]

Hi Dai glad to hear your Eeyore moment is passing , you really would be superhuman if you never felt down and I know what you mean about pain v sickness give me pain everytime too!! Heres to a better day tomorrow but if you do still feel lousy ring your docs it really isnt worth suffering in silence and perhaps a small adjustment to the dose…[Read more]

Hi Sarah sounds like the perfect sunday morning to me !! 2 year olds are the best company ever arent they Did you hoist her over the fence to scrump the beans> haha Whatever happened to scrumping ? I bet its likely you would be arrested now but when we were kids everybody did it and most owners were glad to get rid of a bit of fruit off their…[Read more]

Hi Marian I think you are wise to get as much info for your dad re trials to help him make his decision The trouble is there is so much info it can be difficult to take it all in beforehand but as your dad starts his treatment it will all fall into place if you know what I meanWhether or not your dad is on a trial there will always be someone to…[Read more]

Hi Gina sorry mum is feeling rotten and it must be very worrying for you At least at UCH they are very good at getting a plan pf treatment together quickly But if the breathlessness continues I would ring them on Monday , they may be able to ease it before she sees the consultant Please give mum my best wishes love Bridget x

Dear Shirley you poor thing !! But I must say you certainly know how to have a dramatic mishap, beats me falling down the manhole by a mile !! Seriously though make sure you take it easy let everybody else look after you lots of love Bridget xx

Hi Eve yes you are making sense!! Thats exactly the sort of thing that happens to me usually Put us out of our misery Sarah and tell us your good news !!love Bridget x

Now I am consumed by curiosity!! Sarah what is your happy happy day please tell? The gremlins are buggers arent they Eve , I am surprised it hasnt happened to me !! love Bridget x

Beautiful words Dai we all need a friend like that at some point. I count myself very lucky to have people in my life who would always be there for me and I for them love Bridget x

Hi Eve great idea bother the housework and have a lovely relaxing day!! I think that although you arent the one with myeloma you have the hardest job, I do think my other half has to put up with a lot of stress all I have to do is be a patient !! I encourage Jeff to go out and do things that are nothing to do with me or my illness for his sanity…[Read more]

Haha ladies I think Eve could be our bargain hunter for all of us myelomers!! Seriously impressive ! I hope you get your pull out larder Min they look so good Good luck for Peter tomorrow and I do hope you get to your grand daughters birthday love to you both Bridget x

Dear Gaye just want to add I have been thinking about you too How did you get on at the hospital today ? Even if you arent up to letting us know we are all thinking of you and hoping you can get some relef lots of love Bridgetx

Morning Eve you made me smile when someine thought it was your daughter! Well my other half has been mistaken for my son several times the last time I was in hospital with pneumonia and a lovely turkish lady asked if my son would be visiting!! A bit unfair I thought but I dont look in mirrors anymore either!! Have a good day love Bridget x

Hi Min sounds like a good time to have it done , very dusty here and getting to the loo has been tricky so Peter is best out of the way Tomorrow the units go in and they are tiling on Saturday !!I was able to choose from half a dozen cupboards , flooring , worktop and paint clours , even door handles Afar cry from the old days when tenants had no…[Read more]

Hi Dai your tour sounds wonderful if a little exhausting maybe , pace yourself But how lucky to be able to race your ancestors I am so jealous coming from anglo -irish- french- stock makes it tough to find mine Hope you both have a lovely trip and leave all thoughts of mm at home love Bridget x

Hi Dai your garden sounds lovely ,more power to Janet clever lady. I used to love pottering around after work just watering and dead-heading, cleadred my head from the horrors of work , they are such healing places in all sortts of ways arent they? Good luck for your ct on Thursday I will cross fingers toes that it shows a big fat zero love Bridget x

Hi Eve yes I know I will love it when its done the council are doing it so its not high spec but it will do me just fine and all tiled and decorated is a big weight off my mind . I think the cleaning firm is a great idea , your time is taken up with hospitals so you should definitely treat yourself , I might do the same !! My daughters think life…[Read more]

Hi Marian thnk you for letting us know how you got on As you say the worst is over now, it does take time for it to sink in but as your family see how your dad gets his treatment and copes with it things become less dramatic and urgent Life does become normal again , slightly different but you find a way to live with myeloma I ts brilliant tha…[Read more]

Hi Min like Peter I am now over 3 inches shorter than I used to be my remission lasted 18 months , which is not a very long one but neither is a very short one . It is an interesting thought though I have not seen anything to suggest spinal damage might affect remission time Hopefully you will get lots of answers which give an overall picture…[Read more]