Hi Carol welcome to our happy little band , I am sure you will get lots of replies. Bone pain is very common and doesnt necessarily go after an sct . Your consutant doesnt sound very helpful perhaps if you had a chat with the specialist nurse and rxplained how difficult it makes life being in constant pain . I have extensive bone damage and the…[Read more]

Hi Dai I think you are very disciplined really , they say we all have a book in us but very few people actually do write one !! I love your outline and I am looking forward to reading it Happy writing!! love Bridget x

Hi Angelina blimey you must both have been exhausted come the morning!! It must be scary to see your husband like that . I think it must be due to the meds, as you said he takes a lot of medication and who knows how they interact with each other. I do have very vivid dreams , sometimes it can seem ages when I wake up working out what is real . I…[Read more]

Dear Min I had to read your post twice as it didnt seem possible that this wretched myeloma could kick you in the teeth like that Thank goodness though they were able to pick it up fairly quickly and come up with a strong plan to knock it right back. I feel for Peter , the thought of having to go through all that must be hard to contemplateThe big…[Read more]

H i Alistair I am also under Dr Yongs team at UCH London and they are excellent Not only is Dr Yong good but the whole team are and they have regular meetings to discuss treatment plans , bringing in other professionals when needed , for example an orthopaedic surgeon to suggest a way to ease my back pain The hospital itself is very new and…[Read more]

Hi Kathleen thankyou always helps to know how other people get on with drugs . I am going to start mine tomorrow when I dont need to drive just in case the first one makes me drowsy ! love Bridget x

Hi Da thankyou so much it was a privelige to be able to read your work . It certainly got me hooked and I will be first in the queue to read the finished version. How do you discipline yourself to wrte or do you just write when the mood is upon you? love Bridget x

Hi Jo thankyou I know what you mean about dreading the changes in our GP systems I dont think they will be able to cope either Did you get a newsletter about the new cancer centre at UCH? It looks brilliant , especially having scan , x-ray and pharmacy all in the same building as treatment ! I cant wait for it to open love Bridget x

Hi Roberta lovely to hear you are feeling well and back at work. I can understand how those selfish family members have made you feel but I agree with the others let them go !You and your husband have earned the right to enjoy life now after having been through so much recently Put your energy into what you want to do not what you feel obliged to…[Read more]

Dear Min I can only imagine how you must both be feeling , this bloody illness keeps throwing up new challenges. Jos point was a good one they may well go back to something that worked well before If not perhaps they will try Pomaldomide ( not sure on the spelling ) , the drug that Gaye is on at the moment You and Peter have come up against so…[Read more]

Hi Dai I am glad to hear you are feeling a little better , it is horrible when something like that makes you feel as if you are going backwards though ! When I was on Velcade I expected to feel great and have lods of energy on my week off! Wrong the weeek that was drug free was a complete wash-out, which got to be tolerable because I was expecting…[Read more]

Hi Nikki its lovely to hear things are good for you and Sam As you said its hard to imagine that it could be that way when you are facing the worst myeloma can throw at you!! Enjoy your holiday love Bridget x

Dear Gaye it really does seem so unfair that you should get no relief from the pain as others have said its something we are all told we wont have to endure I will be thinking of you on Thursday and hope like mad they can finally do something for you . Kathleen I am so sorry you are having a rotten time , I can only imagine how rotten 2 or 3…[Read more]

Hi Gina the fact that there is no sign of anything in your mums bm is great , I think this is a more important marker than pp levels which can fluctuate Chest infections can leave you exhausted for ages and I think the power failures is very apt, I can now fall asleep at the drop of a hat during the day!! If the docs arent too worried at this…[Read more]

Hi Ali sorry to hear Guy is having such a tough time but hang in there There are various treatments to help with the bone damage, I have extensive bone damage everywhere except my left arm and left thigh They may give uy a drug called Parmidronate or Zometa which helps strengthen the bones and relieve pain , this can have an amazing effect quite…[Read more]

Dai as always you have found the beautiful words to say what so many of us would like to . I hereby nominate you as our resident wordsmith, I would have said poet laureate but I think someone else got that gig love Bridget x

Hi Eve brilliant news I am so glad Slim is home where he belongs . Now he can start to get better and you can relax knowing he is safe with you looking after him Dont wear yourself out though , make time for you as well love Bridget x

Hi Everyone just thought I would share my good news After discussing me and reviewing my mri images my nurse rang to tell me there is no evidence of any new activity or lesions !! I must admit that is a huge reief I had been very anxious the beast was on the way back!! So now they are referring me to the palliative care team to change my pain…[Read more]

Hi Dai I am so glad you showed that critter who is boss!!! Its amazing how quickly these things leave when faced with a nice dose of poison !! You could always buy a chest wig Dai haha love Bridget x