Hi Ozzy welcome to the best support group there is .You have certainly had a very eventful year!Its hrad to say how long before you feel normal again as we are all different In my case it took almost 6 months but I think that was because I had major surgery a few months before my sct What I would advise is not to overdo it , your body will let you…[Read more]

Hi Shirley absoultely brilliant news!!!Long may it last Wont be long before you can put myeloma to the back of your mind and just enjoy life love Bridget x

Hi Ian I was told that any remission after the first one is always shorter. I dont think it makes any difference if you have complete or partial remission. There was a trial going on last year,sorry cant remember what it was called, to look at using velcade before the sct in the hope of getting a longer second remission.I will try and remember to…[Read more]

Hi Eva thank you so much for sharing your wonderful photos, they are lovely Mind you I am also green with envy as China was one of my dreams , still theres time yet just got to win the lottery!! love Bridget x

Dear Dai I know how devastating it is to be told the beast is back and it seems very unfair to have had a relatively short remission. Once treatment starts it becomes easier to accept and just get on with it Go and do something nice this week and put mm to the back of your mind for a while Love to you and Janet Bridget x

Brilliant just what I needed on a Monday morning thankyou for making me laugh out loud Bridget

Hi Jean please dont apologise for letting off steam we all need to do it at some point. I am glad Frank is going to get his pain checked out , if there is one thing I have learnt in the last 4 years its not to ignore a persistent pain Could you phone his pecialist nurse about it or would that upset Frank? My husband is equally stubborn where his…[Read more]

Hi Nigel you have just got to go with the flow! Have a nice day chilling on the sofa tomorrow is another day love Bridget

Dear Gaye I had to smile when I read your post as I have done something very similiar. Unfortunately mine was a complaint e-mail!! It didnt do any good either. I hope you are having a nice weekend , the sun is trying to shine here yippee love Bridget x

Dear Gaye you have been in my thoughts a lot lately , I am so sorry to hear you havent yet hsd any relief after your rt You must be exhausted . Heres hoping you dont have to put up with it too much longer lots of love Bridget x

Hi Jen well after last week this week is so much better The soreness and tenderness lasted all week though .I am convinced it is dex in combination with revlimid that is the culprit .I am also on a reduced dose now ,15mg and the tiredness is less of a problem I know what you mean about the shakes , it really is annoying Still hopefully next month…[Read more]

Hi Sandra I was 52 when diagnosed and I was told that an allo was too dangerous for me , mind you it wasnt just based on age but rather the amount of damage already done. I was surprised as UCH London is a major teaching hospital and my local docs had suggested an allo as a possibility. David it was Shirley who had her allo recently love Bridget x

Hi Edo I suppose they are checking your dads blood results regularly? Last year my father-in-law became extremely confused and it was because his sodium levels were very low, it might be worth double checking they are watching out for that .I do hope things improve soon love Bridget

Hi Nigel sounds as if you are doing well on velcade long may it continue !! love Bridget

Hi Edo its possible your dad may just need a little longer to get used to the idea of having myeloma , the other infections etc must complicate things He does sound like a very strong minded person so hopefully the anti-depressants will be the jolt he needs. It is always hard to see our loved ones going through something like this and feel…[Read more]

Hi Amanda just want to add my welcome to you and your sister , and your mum too of course . I think its brilliant that you and your sister are keen to support your mum ,( I dont like the word carer either!), and I bet she is as proud as punh of both of you . I think Debs made a good point about this time without treatment will give you all time…[Read more]

Hi Min they certainly did!! Mind you doesnt seem that long ago I was out partying till the small hours Hope you have a lovely hang-over free weekend love Bridget x

Well my 3 daughters got home at 5 am so I yhink its safe to assume they enjoyed Paddys day in the manner of the Irish !!( no offense) x

Thankyou Dai that is beautiful , I am totally in awe of your talent love Bridget x

Hi Kath thankyou its good to know it does get better Mind you the painful tenderness lasted the best part of a week this month so fingers crossed next month is better !! love Bridget x