Hi Chris great to hear things are going well Congratulations for your wedding, at least you should have some sunshine , you are so right it really helps to have something good to look forward to. Good luck wth the insurance company the older I get the more I think they are a bunch of crooks!! Stay well and happy Bridget

Dear Jo I am sorry your dad lost his fight against this horrible illness No wonder you are all in shock but stay strong and together you will get through it Remember all the good times , your dad will always be with in your memories Bridget

Thank you all for your lovely wishes and kind words Its at times like this that we appreciate good friends who understand, I am so thankful that I found this site way back when !! I am less shell shocked now and I keep thinking of random things which leave poor Jeff rather puzzled But on the whole I am being a bit of an ostrich and burying my…[Read more]

Well I had clinic today and it wasnt a pleasant experience to say the least Basically I have had all the myeloma treatments over the last five years and none has worked for any significant time The team at UCH have been looking for a trial but that is no longer an option due to the fact I am a non- secretor Its possible they may retry…[Read more]

Hi Amelie sorry to hear John didnt get a longer remission but quite a few people have said they found their second sct easier than the first one so try not to worry too much . I dont know why Thalidomide was chosen its something that his doctors would be able to tell you. I think you may be thinking of ice pops to suck whilst he is having his…[Read more]

Hi Terry welcome glad you found us. You were lucky they spotted your myeloma early before any damage was done Your doctors sound impressive and very cutting edge , you will be able to access new treatments as well This site is brilliant you wont find a more supportive group of people anywhere and its not all gloom and doom either we share laughs…[Read more]

Hi Dai what a bugger!! Rev and Dex have proved to get good results though and as you say the other advantage is freedom from hospital visits. I hope it does the trick but at least if you do need further treatment Carfilzomib would be an option and may be more readily available love Bridget x

Hi Andy welcome . Its sometimes funny when you find yourself doing mad things because of steroids!! There have been times when I found myself cleaning like a mad thing at 3 am !Like you I was diagnosed after about a year of back pain and they discovered 3 vertebrae had been destroyed completely After surgery to stabilise my spine with huge…[Read more]

Hi Mavis you arent alone in having senior moments I have them all the time!! My grandson is 11 and at the moment he tries to appear like a cool teenager half the time , the other half he is the little boy who takes teddies to bed!! Bless him They are under so much pressure to grow up quickly these days its such a shame they cant keep their…[Read more]

Hi Eve I must admit London isnt my favourite place either too busy and too noisy , perhaps 30 years ago I would have had fun but not now . I dont drive into London luckily Jeff doesnt mind so he drives as I cant manage the walking and stairs when going by train. Most weeks I am there at least once and every fourth week I go twice a week not my…[Read more]

Hi Eve great news it always feels better when things get moving. Is Slim close to making a decision yet ? It is a scary decision to have to make but the benefits could be immense if all goes well , that just makes it harder to decide though. If you do drive into London there are disabled parking bays dotted around all over the place which you…[Read more]

Hi Alan sorry you didnt get enough cells today try not to worry though the little blighters will be fighting to get out by Wednesday!! I had a similiar situation , the first two days I hardly produced any but on the last day they got more than enough Good luck Bridget

Hi Dave welcome sorry but I havent got any useful information for you about second scts at your age It seems each hospital has its own protocol and cut off point. If your pps are rising slowly and there are no other symptoms then maybe the drugs available now would be a safer option Good luck in making your decision Bridget

Hi Sylvia the gremlins manage to hide a few posts on here just like they hide things in my house!! I cant remember where I posted it either ! Its good to hear from you though Stay well love Bridget x

Whooppee!! Thats the sort of news that cheers us all up Tom !! Enjoy yourself love Bridgetx

Hi everyone just a little update Today I saw the radiotherapist and their decision was that I could have have one dose of radiotherapy on the tumour I think they would have preferred to do more but because I have had treatment on the same site before they were unable to They were very good though as I was able to have the scan and treatment…[Read more]

Hi Dai blimey you are going to have a full on day Monday ! Still it will be worth it if you get on the trial All fingers toes etc are crossed for you love Bridget x

Hi Sylvia good to hear from you but sorry you are back on treatment Eloquent seems an unusual name for a trial made me chuckle! When I was on Rev and Dex the fatigue was a bit overwheming but you do get used to it Constipation can also be a problem , my docs reccommended using 3 different types of laxatives regularly eg Movicol , Senna and…[Read more]

Hi Cinzia poor you sickness is really horrible . I have founf Odansetron to be the best ant-sickness meds , it can be given as IV before your chemo Have a chat with the nurses I am sure they can come up with something love Bridget x

Hi Terry it seems wrong in this age of wireless technology that wifi access isnt available especially when you are stuck in hospital. If your home broadband is with BT they have wifi access all over the place and its free , you can download a map to see which is the nearest London has loads Good luck on the 5th you will be home before you know…[Read more]