Hi Kay glad its all sorted now but what really impressed me is the speed you were in and out of hospital!! No wonder you have such faith in them Heres hoping there are no more dramatic happenings As for work it will still be there you are far more important love Bridget x

Hi Emma welcome to the crazy gang. I am glad to hear your dad is starting to pick up now he is on treatment. Th,ink of us as your second family and ask away, there are so many lovely people on here to support best wishes Bridget

Dear Gaye I think you may well be right and the dex effect may be when it is used in combination with others like Rev and Pom Botheration and a double pox to myeloma!! I am certainly glad to have a friend like you to share the journey with, if only they hurry up and relieve your pain We can be 2 cantankerous outrageous old biddies( not really old…[Read more]

Hi Shirley lovely to hear from you and brilliant to hear you are doing so well! Seems like you have a way to go yet but I am sure you will get your puppy before the summers over Take care love Bridget x

Hi only me glad to hear your mum has got started, it does get easier You could ask the specialist nurse if they do a drug chart to help manage all the tablets , I usually do my own so that I can tick off when I haave taken something I hope things go smoothly and please give my best wishes to your mum and dad love Bridget

Hi Tanya your poor dad is having a hard time and of course you as well When myeloma is first mentioned its always a huge shock and it takes a bit of time before all the information starts to make sense, so take it one day at a time and be wary of searching the internet as information is very often out of date This site is brilliant ,if you have…[Read more]

Hi Min I bet that feels great now its more official and the time will fly!! Before long you will be having leisurely lunches and long shopping trips , dont forget spa days too Sorry just teasing Icant imagine you are the sort of person who would enjoy that sort of lifestyle!! You will love being retired though and I bet Peter is looking forward to…[Read more]

Dear Gaye of course you are entitled to feel sorry for yourself , you have been going through h**ll lately!! Tomorrow I will be willing your rt department to get you sorted as quickly as possible , all my fingers and toes crossed too Mind you they must have decided you were a lady not to be messed with today if they are sending your meds out by…[Read more]

Hi Kay glad to hear treatment is going ok. Poor you gout is very painful isnt it, the last thing you need. I am fairly certain it is dex that makes me feel sore and tender, but it is my first curse of revlimid too. I finished my dex pulse last Thursday and the tenderness was at its worst on Sunday, so the timing is right. I think your description…[Read more]

Hi Jo that image set me off with a fit of the giggles!! Perhaps we could record the dex song ? Then they would have to interview us all on breakfast tv, trouble is none of us would have the patience if it was a dex day !!! Haha Radiotherapy certainly seems to have done the trick for me , the pain does come and go but for only a few hours at a time…[Read more]

Hi Debs be interesting to hear what your docs say Have you noticed a need for saltier foods? I realised last night why peanut butter wasnt right , couldnt taste the salt . Have you mentioned the bruising feeling to your doc? I dont think it is that common I mentioned it to my consultant once and she looked at me as if I was nuts!! Just had a…[Read more]

Morning Sharon great news !!Bet you cant wait to get home Take it easy love Bridget x

Good Morning everyone thankyou for your support , it always makes me see the better side of things. I am going to ask why there seems to be a delay in my finishing the dex pulse last week and feeling so rubbish 4 or 5 days later. Debs my money is on dex for the crappy taste thing , it always does it to me!! Pam I really admire how you are so…[Read more]

Hi Min and Gill the article on steroids which was in the press last week said that steroids deposit body fat in specific areas These are the base of the neck and the tummuy area I know I now have a humpty tumpty tummy now whereas before I had a waist no matter if I was overweight What joy !! love Bridget x

Hi Clara how disappointing to hear your dad wasnt given his results, you could do without that sort of mix up I am sure .Sorry but I am not up to speed with AL but I am sure you will get answers from others who do know Most of us with myeloma have weakened bones and it is standard treatment to give monthly infusions of drugs such as Parmidronate…[Read more]

Hi Elizabeth it was that clever Min that started this post I am so glad she did its lovely to hear about everyone !I am so pleased you still like your hat and even more pleased my sewing has held up!!Have a good weekend love Bridget x

Hi Sharon well if you do go there you will be in good company !! 5 sessions sounds promising , I hope they let you home soon afterwards . I have been impressed with the results of my rt , the pain isnt constant now and can disappear for a couple of days at a time , I can cope with that! There was an excellent piece on radio4 the other day( see I…[Read more]

Dear Sharon thank god you knew to insist but what a heck of a shock!! I was in the same position when they eventually diagnosed me and its so frustrating not being able to move independently , I feel for you. I remember them coming round and checking the reflexes in my legs every few hours as they couldnt understand how I had been walking around…[Read more]

Hi everyone, great idea Min ! My name is Bridget I was diagnosed with mm in 2006 after 3 vertebrae disintegrated. I had a spinal reconstruction and am now known as metal micky!! I had an sct in 2007 which gave me 18 months partial remission. I was then on the Myeloma X Trial which gave only a short break This time round I was on velcade for 3…[Read more]