Hi Colpot what a brilliant post , very encouraging for people like me who have just started on Revlimid. thankyou . Long may it continue perhaps you should go for a world record!! best wishes Bridget

Hi Gavin thank you for letting us know . In my experience you get very well looked after on these trials so fingers crossed it will be trouble free and you can have your sct and be free from major treatment for a long time . I have just started on Revlimid and the lovely dex !! A few unpleasant side-effects this week but I am hopeful it will…[Read more]

Dear Gaye I am so glad you have got a date now , at least they can start to relieve your pain and hopefully it wont be too complicated. For most of the time now I dont have that awful pain , it does come back for a few hours at a time but its not constant and I can deal with it Havent seen any daffs yet but its definitely milder and brighter , at…[Read more]

Hi Jen and Keith the disappearing veins are a problem for me too and in fact it is the one thing that can reduce me to tears! At my hospital they use PICC lines, these are a fine tube fed through a cannula in your elbow , up tp tour neck and then down to a major vein in the chest It is completely painless , being fitted and removed , only a small…[Read more]

Thankyou for making me laugh out loud!! Hard to believe but even harder to keep a straight face Hope you have a good day love Bridget x

Dear Min I hope you enjoyed your birthday and now you are officially allowed to grow old disgracefully !! You can now wear outrageous hats, jump in puddles , talk to yourself and answer , in fact anything you fancy ! Of course the men in white coat may come after you !! As for men in white coats– Sacha could definitely charm me into feeling…[Read more]

Hi Keith really good to hear you and Velcade are getting on so well Long may it continue!! love Bridget

Hi Clara welcome to our merry band . At the moment you must be feeking so overwhelmed with it all but it does all become clearer. My advice would be not to google everything but take it one step at a time Myeloma is such an individual illness andthe descriptions of stages etc on the net are very often outdated now Newer treatments are emerging all…[Read more]

Hi everyone my diary was given to me by my specialist nurse perhaps yours may have some of their allocation love Bridget x

Hi Angie welcome from me too , you really have found the right place for answers and support .Even if your mum and dad arent up to reading up on myeloma yet they will be glad of your support As Min has said it does get easier to understand as treament gets going and the initial shock wears off. In the beginning it seems to take ages for treatment…[Read more]

Ha ha David good one to start the day !! love Bridget x

Dear Gaye how are you feeling ? Any news on your rt yet? I am now addicted to scandinavian tv police dramas on bbc 4 .Wallander got me hooked , even better than the Kenneth Branagh versionNow on Saturdays we watcg 2 hours of danish drama , The Killing I highly recommend it lots of characters that you care about and very well acted As long as…[Read more]

Hi Min I hope increasing the dose does the trick this time too In the past dex has caused water retention problems for me so I have Ferusomide at the ready Could your itching be caused by anxiety ? You have so much on your plate and the waiting for a date cant help , hopefully your lovely employers will let you go very quickly I hope you are doing…[Read more]

Dear Min thankyou thats very reassuring . I realised today I had slipped up in taking Revlimid at the same time as dex so tomorrow I will take it last thing and hope to sleep like a baby!! What dose of dex was Peter on? I am on 40mg for the first 4 days of each cycle and was told it may be possible to reduce it after a short while. Your new…[Read more]

Dear Min I was pleased to see on another post that Peter is feeling a bit better this week , long may it continue Yesterday was my first dose and it wasnt a great day ,I just felt yuk all day and very lethargic What surprised me was I didnt get a rush of energy from the 40mg of dex at all , I had hoped it would override any tiredness from the…[Read more]

Hi David how very true Unfortunately politicians newly in power are like junior doctors and would have us believe they and their strategies are much better than anyone else before them Ha ha!! love Bridget x

Dear Sarah and Min you are both going to enjoy not working you will soon wonder how you ever found the time to work!! The extra time with the grandchildren alone makes it worthwhile . Min I am living on benefits now and a small work pension and my solution for the shopping is on-line The big 3 supermarkets are all pretty good and the delivery…[Read more]

Hi everyone yesterday I had a near perfect biopsy Heres how it went 9am I arrived and was met by the only nurse on the unit who inspires fear and dread in me !! Its not her fault she is a very large girl but she is brutal at putting cannulas in , on one occasion she made 6 attempts before giving But yesterday went like a dream , although she…[Read more]

Hi Min good to hear you are about to become a lady of leisure!! Haha I bet thats the last thing you will be but I am so glad you are going to get time to do all the things you want Have you got the cruise brochures yet? love Bridget x

Hi Keith I know what you mean the whole NHS reform issue is worrying me too Trouble is there wont be any mass rebellion against it people will just let it slide in but when it comes to trees they will be chaining themselves to those!! Gos arent equipped to deal with finances they should be given more time to spend with patients not lessAs you say…[Read more]