Hi David and Dai I have never been told I have Bence Jones yet my paraprotein levels bear no relation to any myeloma ativity My consultant uses the serum-free light chain test but even that was showing low values despite very significant myeloma progression and a large tumour My doctor now jokes I am the most difficult patient they have , at…[Read more]

Dear Min how very cunning I love the e-mail idea My technophobe husband can look up his dream team only because I put it in favourites but not much else When I have tried to show him a shopping site he ends up on a page which is nothing to do with the original and I then have about 20 pages to remove Maybe he will get the hang of it one day !I…[Read more]

Dear Sarah I hope you have had another call to put your mind at rest Oh to be young and fearless again love Bridget x

Dear Gaye and Min ( fellow saddos) I am with you on Holby City I love that programme , even if I do have to watch it on my laptop!! Mind you it is strange that we all spend a lot of time in hospitals yet still enjoy it , must be a deep seated psychlogical reason !! love Bridget x

Have you all noticed the comments used as examples on the home are from this thread !!Bet anyone new reading them would be very confused tee-hee love Bridget x

Hi Min poor Peter he must be feeling wretched I hope they can sort it out for him. I have been told to carry on taking Aciclovir and Lanzoparole whilst I am on Revlimid, from the way the conversation went I got the impression that is standard practice love Bridget x

Thankyou all for your lovely birthday wishes It has been a lovely daybut the children and grandchildren have just left and I am now officially knackered !!But worth it ! Hope you are all enjoying the evening love Bridget x

Now I feel like the odd one out !!My husband has complete control of the remote these days and I havent seen any of this series I shall look out for the repeats , I am sure there will be lots love Bridgetx

Dear Nettie thank you so much its been a lovely day but the children and grandchildren have just gone and I am shattered Good job I have another year before the next one !!Hope you are well love Bridget x

Dear Gaye OUCH!!no wonder you have been in agony I hope they get you sorted very quickly . lots of love Bridget x

Hi Jen I recently asked my doctor about the rules for using velcade againThe reply was "Theirs always a way to get what you need dont worry" I believe this approach is fairly common , and our doctors are very well practised at using different approaches to get us drugs they prescribe At UCH London which is a teaching hospital velcade is readily…[Read more]

Hi David I cant give you an exact figure but I do remember being told they were too faint to quantify .Good luck with your research it will interesting to hear what the consensus is love Bridget x

Hi Sylvia I can understand how frustrated you must feel , as lovely as it is to be looked after , there is nothing like being able to do even mundane tasks yourself again Fingers crossed it wont be long . Mind you the bonus of going out more must be a nice break for you both and the cruises sound wonderful , I have a friend who is going on a…[Read more]

Hi Gill sorry Stephen is not feeling great but I hope that rotten dex does its magic very soon . I start back on it next week , 40mg lovely . I cant remember if Stephen has had radiotherapy for his back painbut I am already finding an improvement in mine It hasnt gone comltetely yet but it vanished over the weekend , mind you today is a…[Read more]

Hi Sarah I am sure it doesnt apply to you though!! I wish I had a fur coat this winter but doubt I would be brave enough to wear it !! love Bridget x

Hi Sylvia you sound like such a positive person that I am sure it wont be long before you turn the corner . I take mst morphine, which is slow release over 12 hours, twice a day and I have found it very good .I believe it is used for a ot of myeloma patients with bone damage Perhaps it might be worth discussing with your doctor ( apologies if you…[Read more]

Hi Sylvia reading your posts it seems like our cases may be very different . I wasnt bent over at all before my op , other than stooping because of the pain As for the pain it didnt seem many weeks , perhaps 4 to recover from the surgery , however I have had continuous pain my back since I am not sure how much of this is due to the metalwork and…[Read more]

Its true we women do love our shoes .Sharon I am crosssing fingers and toes you will be in the sexiest pair of heels you can find for the wedding!! Jo up until 2 years ago when I had my hip replacement I would never wear flat shoes !!Alas now I have no choice , but I do still manage wedges occasionally and its worth the pain !! Sarah I was told…[Read more]

Hi Sandie how lovely to hear that your mums doctors really listened and responded so well to your request . I agree with you that being direct and telling them you expect no pain is a good approach Unfortunately some doctors are better than others in this procedure and if you get a duff one its awful Heres hoping its good news when your mum sees…[Read more]