Hi Helen and welcome I am glad you felt able to post on here to get some support , there are so many lovely people on here who may be able to help. Sorry I am not aware of links between myeloma and prostrate cancer though. Your fiance has certainly been through the mill and I am sure the future must seem very bleak at the moment but hopefully he…[Read more]

Hi Nicola it must be a reief for you that your dad has managed to go to the loo Hopefully as the build up clears his depression will ease Its hard to imagine how awful constipation can make you feel , my bowels stopped working for several weeks before I was diagnosed although I was lucky not to have a painful blockage With you by his side I am…[Read more]

Hi David how right you are when you say it puts things in perspective people are just amazing in giving to others when no-one would blame them for concentrating on themselves. A huge loss not only to her family but to so many others love Bridget x

Hi May I am glad you got up courage to post I am sure you will find it easier to cope with support on here. As I am sure you have realised myeloma is a very individual illness and we all react differently to the treatments so its hard to compare one person with another . Try not to get too down that the treatments your mum has had so far havent…[Read more]

Great news Eve you must both be on cloud nine!! Poor Slim has been through so much it must such a relief Get travelling and enjoy all the things you have been dreaming of love Bridget x

Hi Nicola so sorry your dad is having such an awful time, it must be so hard for you Its little wonder he is feeling down after having been through so much so try not to take it too much to heart when he talks of dying The doctors wouldnt put him through chemo if they didnt think he had a fighting chance. Did he have radiotherapy recently? That…[Read more]

Hi Min and Stuart it is reassuring to know there are people to help at our hospitals Those forms are such a nightmare I break out in a sweat even though my job entailed helping others fill out benefit forms , just cant do my own On the radio today there was a discussion on the proposed reforms to disability benefits , made me so angry there was…[Read more]

Hi Kay so sorry to hear your sct results are disappointing , I dont have any personal experience that would help but I am sending all the positive vibes I can your way Are you on Zometa or Parmidronate? One of these may help your bone pain which a lot of us have and those pains may not mean anything more sinister is happening just a rather…[Read more]

Hi Heather welcome to our merry band ! Good to hear your treatment has gone well so far and I remember that lost feeling after my sct 4 years ago It does get better though but remember you have been through a huge physical trauma as well as having to cope with the news you have myeloma. I was diagnosed 5 years ago after a year of agonising back…[Read more]

Hi Mari I am glad you had a good christmas. Dex is such a strange drug and it amazes me how differently we all react to it . I did get lots of bloating and water retention too and now always take ferusimide The other unfortunate side-effect for me is excessive wind , very embarassing ! I think the lethargy is something you are stuck with due to…[Read more]

Hi Dai sorry I missed your birthday post but good to hear you enjoyed yourself , I wouldnt expect any less of you! Sorry cant help with the pn problem although mine did go away after a few months of stopping Velcade and I remember thinking it was taking forever too I really enjoyed christmas and having 2 daughters ,grandson and dog to stay but…[Read more]

Dear Michelle I can only imagine the pain you are going through as Min said this bl–dy awful illness! Dont give up yet I was on Velcade and Revlimid neither one worked but my doctors have put me on Bendamustine and Thalidomide I am not on a trial but apparently these drugs can be applied for under special circumstances Ask your husbands doctors…[Read more]

Hi Chris welcome Although it has been 5 years since I was diagnosed I can remember feeling very confused , angry , sad and at other times flippant and off- hand about it, I imagine a lot of people would also recognise your description too so you are not alone. Believe it or not things will get easier as you get your head around the treatment and…[Read more]

Hi Jean I am so glad you had a good time it sounds wonderful especially having all the family together . I am sure Frank thinks its worth a few extra hours sleep .I couldnt open the photo but I will try again later Wishing you all a healthy happy new year love Bridget x

Hi Linda welcome to the group Nowhere will you find more support and first hand experience of myeloma from such a fantastic bunch of people! I am glad your husband isnt having too many problems with his chemo Although everything seems very confusing at first it does get better You will find that hospitals , treatment and everything that goes with…[Read more]

Hi Shirley so glad you had a lovely christmas and your lovely family spoiled you , you deserve it. We had a wonderful time too Two of my daughters and the eldest grandson stayed on christmas eve as usual so it was a bit crammed here Unfortunately George was so excited this year he didnt sleep all night so neither did anyone else as we were waiting…[Read more]

Wishing everyone a very happy christmas and a very healthy new year and if it turns out to be wealthy too all the better !! Thankyou so much my cyber friends for being here when I need you most lots of love Bridget xx

Dear Mavis I too am in awe of the wonderful people I have met on this site. At the darkest times when it is sometimes hard to remain positive the lovely people on here lift you up again and make everyting seem less bleak with a kind word. To all the people who care for a loved one with mm thankyou for helping me to understand what it is like from…[Read more]