brocho replied to the topic Memory loss in the forum Treatment 13 years, 4 months ago
Hi David you are definitely not alone with the memory problems ! I always had a good memory but since being diagnosed it s gone downhill all the way Sometimes it is so annoying especially when trying to remember names ! As for the going upstairs thing I do that as well nd like you remember very clearly when I have sat down again Still its a…[Read more]
brocho replied to the topic First relapse in the forum General 13 years, 4 months ago
Hi Catriona I am sorry your dad is going through such a tough time It is a shock when you hear them say you have relapsed but it wont take long before treatment begins to work and everything will look less scary for all of you. I am like your dad , my blood test dont show paraproteins either but the doctors look at everything including mri ,…[Read more]
brocho replied to the topic Banks!! Why do we have them in the forum General 13 years, 4 months ago
Hi Sarah it never ceases to amaze me how bloody useless banks are! You must be furious after doing all the right things they have left you in the lurch Ithink I would push for compensation as they are potentially damaging the good name and reputation of your business Mind you come christmas eve say bugger the lot of them and forget about them…[Read more]
brocho replied to the topic relative of myeloma sufferer in the forum Newcomers 13 years, 4 months ago
Hi Roisin I am so glad your father -in-law is in the right place to get the care he needs He is a lucky man to have such a lovely family watching out for him he must be very proud Wishing you a happy christmas and all the best for the new year love Bridget
brocho replied to the topic christmas in the forum End of Life and Grief 13 years, 4 months ago
Hi Min and Sarah the woman who described grieving so well must be an amazing person to be able to put it so well Although I havent lost a partner through death about six years ago Jeff had a mid-life crisis and left for a floozy with false everything and a sports car I can honestly say my heart broke and I was grieving for my life as it had…[Read more]
brocho replied to the topic worried sick in the forum General 13 years, 4 months ago
Hi Jean I know exactly what you mean when you say Frank would go ballistic if he thought you were dicussing him because Jeff is just the same!! There have been a few occasions when I have spoken to a friend who then innocently repeated something very trivial boy was I in the doghouse ! Still thats the way they are and we love them anyway I hope…[Read more]
brocho replied to the topic worried sick in the forum General 13 years, 4 months ago
Hi Jean when will Frank realise he is not sparing you the worry by keeping things from you At least he did phone the hospital though It sounds as if it could be his ribs so getting checked out is very wise One thing I have learnt in the last 5 years is mever to ignore significant pain always tell someone. I hope itt is nothing too serious and he…[Read more]
brocho replied to the topic New to Forum in the forum Newcomers 13 years, 4 months ago
Hi Craig poor Etta really is having a rought time no wonder she feels depressed The depression could be caused in part by all the medication combined with all the info she is trying to take on board VHave you spoken to her specialist nurse? They are there for you as well as Etta but could I suggest you have a chat with them about her depression,…[Read more]
brocho replied to the topic radiotherapy in the forum General 13 years, 4 months ago
Hi Glynj I have not had radiotherapy to reduce the myeloma cells as such but I have had it twice for pain relief and to shrink tumours. It was painless very quick , the first session takes about an hour to set it all up but each session afterwards was about 15mins In my case it was completely successful , especially the last time when I had…[Read more]
brocho replied to the topic Bendamustine Trial in the forum Treatment 13 years, 4 months ago
Hi Sue and Michael so sorry your platelets couldnt get back to safe levels . I hope your doctors can come up with another treatment plan very soon It goes against the grain to be told there is no futher treatment when you have gone along with all the treatment so far If your doctor cant see any other way perhaps it would be a good time to ask for…[Read more]
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 13 years, 4 months ago
Dear Min thinking of you today on Peters birthday love Bridget xxx
brocho replied to the topic FINGERS CROSSED in the forum General 13 years, 4 months ago
Hi Eve lovely to get good news however small Enjoy love Bridget x
brocho replied to the topic PROGRESS SO FAR in the forum Treatment 13 years, 4 months ago
Hi Sue I am glad Michael is feeling a bit better since stopping Thalidomide. I think because it is a drug which has been ferquently used and I hadnt heard many negatives other than PN I underestimated its strength. It totally knocks me out but this may be partly due to the myeloma being active as well The other aspect for me is I have had about 4…[Read more]
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 13 years, 4 months ago
Hi Eve how awful for you both to have the added trauma after your mother-in-laws death.No wonder you have doubts Luckily mum arranged her funeral through Age Concern and was able to check it all out before signing up She always says its the best bargain of her life and sometimes amuses herself working out the cost of funerals now as opposed to 20…[Read more]
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 13 years, 4 months ago
Hi Min what a lovely generous lady your friend was to think of sparing her husband , no wonder the church was packed. Min you should be proud of yourself for using power tools I am definitely a wimp when it comes to jobs like that! Much to Jeffs despair I am more likely to use a hammer! I am with you on the cardboard coffin though , cant really…[Read more]
brocho replied to the topic CHRISTMAS in the forum Off topic 13 years, 4 months ago
Hi Mavis I do hope the snow stays away so that you can get to your grandchildren for christmas There is nothing like the seeing childrens faces on christmas morning, I bet they are just as excited as you are! All fingers and toes crossed for you In my house my husband and grandson are the tree decorators they do a much better job than I could Not…[Read more]
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 13 years, 4 months ago
Hi Min Peters service sounds lovely a true celebration of his life . I think its such a shame we dont have our loved ones at home before a funeral it is so much more personal Its no wonder we find death and grieving so hard when everything is taken out of our hands and out of sight You mentioned the grandchildren were ok with seeing Peter too ,…[Read more]
brocho replied to the topic There is tough and there is tough in the forum End of Life and Grief 13 years, 4 months ago
Hi Eve I agree planning your funeral is a good idea and makes it much more meaningful My mum has had hers planned and paid for for over 20 years now ! Age Concern ran a scheme where people over a certain age (cant remember what the age limit was) could pay a fixed price in installments, they also sent lots of helpful literature regarding…[Read more]
brocho replied to the topic PROGRESS SO FAR in the forum Treatment 13 years, 4 months ago
Good Morning Mavis thank you for your kind words It is a nuisance having to write off a whole day following the Bendamustine but I am going to discuss it at clinic and see if there is a solution No my hair is still here it would be very chilly without it! The extra pain which turned out to be a tumour showed despite low pp levels that myeloma was…[Read more]
brocho replied to the topic Every Single Day in the forum Off topic 13 years, 4 months ago
Hi Dai beautiful words its a shame I have no sound on my laptop I would love to hear the song love Bridget x