Hi Sue
I have just started round 6 sand my opinion has c one down from 13 to 3 – phew! We were getting worried as nothing else seemed to be working for me until pomalidomide was offered.

The side effects are very little now it’s. into my system – in fact, the Dec is far worse!

Hope your ‘pp. comes down SOON

Love Carol xxx x

PS great news about your daughter. I don’t suppose you will have time to post with your visitors are with you. So post nice long message after they have gone xxxx

Eve I had chicken pox aged 28 I was delirious and could see spiders climbing up the walls. The pain was unbelievable. When my kids had it as children they were absolutely fine

My daughter was terribly ill when she caught measles and was close to being hospitalised but we were told not to have her vaccinated because she suffered from febrile…[Read more]

Hi Eve and Slim I don’t log on very often and I was sorry to hear that Slim had been so unwell, but things seem to have improved a great deal since you changed hospitals.

None of us are oblivious to just how life threatening mm is, and I think the quality of life is paramount.

As you know Stephen died in 2012 aged 57. Up until a few weeks…[Read more]

Hi Sarah

I don’t post very often but still have a look now and again to see how people are getting on.

It is a very hard decision you are faced with especially as you have years of work ahead of you. My husband was diagnosed in 2008 just after his 53rd birthday I was 5 years older (I always said he was my toy boy but my daughter told me he…[Read more]

I don’t come on here very often now but I know that Corsodyl toothpaste and mouthwash really helped Stephen

Hi Tom so sorry to hear your news but there seems to be a great many new drugs coming on the scene to keep mm in control.

I know that everybody on here has their fingers crossed that your medics find the right one for you to kick the blasted disease into touch for a long time.

Much Love Gill xxx

TEST

Welcome Anne
Sorry to meet you this way way-it takes a while to sink in but I hope it encourages you to know that many of us have enjoyed some success in battling this stupid cancer.I myself was diagnosed in 2005 and although I'm not as active active and sporty as I was I'm still kicking!
This is a great site with lots of nice people who are…[Read more]

Hi Christine
So sorry that things are rough but HOPE this helps. My act failed in Oct last year with a horrific 97% but they have finally got it down down with PAD.We have just been told that they are abandoning any further idea of a second act as I don't Ha ve enough stem cells so as am starting a low "consolidation" course of velcade on…[Read more]

Good luck and Good health to you all.

But please remember how long you lived is not so important as how well you lived, how much you and those around you enjoyed your life and the legacy you left behind

Stephen died last September, young, needed and missed by all who loved him.

Please don't feel as though it is all doom and gloom Eve but…[Read more]

I hate mm I wish Keith and Sue all the strength they need to have in the coming weeks Gill xxxx

Dear Tanya

I am so sorry for the grief and pain you are feeling. I am also thankful that your dad's end was peaceful, pain free and you were with him.

Stay in touch if you would like support. No doubt you will be very busy over the next few days but we will be here when you need a few words of sympathy and encouragement.

Love from Gill xx

Hi Terry
I have only just seen your post because I have been "out of things" for a while – chemo etc. getting ready for the second transplant having had the same rotten news as yourself. I don't blame you for being bitter but at least they found it early – mine seems to have becomr non secreter (not sure if that's exactly right)so the urine…[Read more]

Thanks Tom

Yes to be dead 2 months after the photos were taken is unbelievable. But my garden is still amazing and a tribute to Stephen's skill, ability and vision. I am lucky to have so many reminders of what he achieved. House transformed, garden pretty damn good, 2 naughty little Westies (the jury is still out on that:-) love them really…[Read more]

Hi Everybody

Just to share some other memories I found in that camera. On a couple of the other photos on the memory stick more of the garden is showing behind Stephen.

For 5 years after moving in here we concentrated on making the house "habitable" Ok we had running water, a smelly working loo, and windows, although we couldn't see out of…[Read more]

I am glad that your dad is comfortable and not in pain. I think that, apart from willing our loved ones to get better and not leave us, a peaceful and pain free end is something we all hope for.

Do keep in touch. Nobody on here can change what is to be but people can give you support,heartfelt sympathy and kindness

Gill xx

I had the photo printed off at a camera shop. They printed off a 5 x 7 and framed it. It is "very Stephen" kind eyes, dog lover, calm personality and "sticky out ears" . He was never vain but I know he would have said "I am sure my ears are getting bigger. Trust you to get the sun shining through them to make them look even worse :)"

Gill…