I have missed so many posts on here since Stephen died that I did not register that Slim was unwell. There is so little I can say I can only send you kind thoughts and love.

Gill xx

Sandie

I posted that 19 months ago and yes the second lump was mm. Stephen died. aged 57, on the 11th September 2012. He had mm for 4 years. He got very little remission. and 2 days after he was told he had 2 years left he got very ill and died within 4 weeks

Perhaps you don't read all the posts put on here

Gill

Mari
As I explained to Nettie I am about to undergo my second transplant and your experiences and knowledge have encouraged me greatly to go ahead with a bit more confidence.
Many thanks and good luck to you both.
Carol xxx

Hi Nettie
I too am having to make the decision to go ahead with a second transplant – I was in remission for about 18months followin the first. Having read your very helpful personal experience I feel so much more confident in going ahead with my second procedure. I struggled greatly during and recovering from my first transplant which is…[Read more]

What a lovely post David Love from Gillxx

Dear Ann

Like you and Eddie Stephen and I were soul mates, best friends, joined at the hip as the kids used to say. Stephen had had to stop work quite a while before he died. He was a carpenter and builder but of course the mm took its toll and he could not do the physical work that it entailed. I retired a year early so I could stay at home…[Read more]

D ear Sue

I am sorry for my late message but I don't often come on here. I am glad that Michael's funeral went well. I found it quite difficult after Stephen's funeral once it had all settled down I think the reality hit me. Nearly 6 months later I still miss him like crazy but I suppose I have settled into my own routine.

I have decided…[Read more]

Dear Grayham

This is not a club that anybody wants to join but if you have mm it is the best place in the world to get support and friendship.

The treatment for mm and the drugs that are coming on line are getting better and better and I cannot wait to see mm getting kicked into touch once and for all. Too late for my husband who died aged…[Read more]

A huge Welcome Home from me Gill x

Hi Sue I am so pleased that you are both getting some help at last your Mac nurse sounds wonderful.

It is good that you may be able to take a break from work. With Michaels DLA allowance and you not working for a while it may give you a chance to see if you could manage on semi retirement money and Michael's benefits.

I retired at 59…[Read more]

Has anybody heard from Sue? I have been thinking of her and wondered how Michael is Gill xx

Hiya there..

I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

Hi Heather

One more tip take a pad and pen when you visit the consultant. Even with 2 of you listening carfully it is easy to not remember it all

Godd Luck Gill

I suffered from cramp when I started on beta blockers . My cardiologist recommended I take Co Enzyme Q10 200mg at night
When Stephen started getting cramp because of his mm we checked with his oncologist and Stephen was told it was OK to use them.

They are a natural food supplement not a drug and take a couple of days to kick in. Min…[Read more]

Dear Sue

Has anybody suggested that Michael go in to your local hospice for some respite care? It can be a chance for you to re-charge your batteries and catch up with some much needed sleep, knowing that Michael is being looked after 24/7.

Our local hospice was marvelous. They had Stephen's pain under control straight away and they are very…[Read more]

Shanks fer dat. I followed all instructions please wake me when overhang? hang something? recedes into just a thumping head and an unquenchable thirst. Oh thats better more cuervo to quench my thirst xxxxxxxxxxx