Hi Bridget
Glad to hear your back up and running! Hope the morphine is helping with the pain although I know it must make you rather haaaaaazy!
They have given me oramorph to be used only at those times when the Tramadol just can´t calm the old back down but I haven´t been forced to use it thank goodness although I have come pretty c…[Read more]

Trust Bridget to start my brain cells creaking at bed time:-)

GRADIENT

leaves ENT

Plaesed to hear your news Gin. Give you mum best wishes from all of us Gillx

Hi
MySuch a relief to hear there are others out there. Took my grandchildren shopping with me today as their teachers had closed the school for a training day. My four year old little grandson spent the first 10 minutes trying to negotiate how many items I could buy before we went to McDonalds and when I wouldnt play that game tried to negotiate…[Read more]

Hi Nadine and welcome
Hope this helps. I had my STC in Feb of this year and although I can´t say recovery was as quick as I would have liked I am now in remission so I can´t ask for more.
I do get very tired but on the other hand that could be because I look after three horses every day, do all the housework and cooking and shopping, laundry e…[Read more]

Dai you have put all of that in an incredible way. I so hope that Min reads your message, and all of the other posts and stays in touch.

I feel that, although it is this b****rd illness that brought all of us together in the first place, we have all become friends. As well as discussing mm we go further. Whether it is stories of our children,…[Read more]

Here's an earth mover for you all (Groan)

SEISMIC

MIC left

Hi Amelie
Sorry to reply so late but I have only just read this. I had my SCT in Feb of this year and yes, I am FED UP with my itchy back and my medical team see to think it´s to be accepted – just the result of the Melphalan and resulting very dry skin.
However, I´m going to investigate eosinophilic folliculitis further and see if I can get s…[Read more]

Hi Paul and welcome
I am on the Myeloma 11 trial with Revlimid. Hope this helps – I had my stem cell transplant in February and although I haven´t found recovery a swift process (I´m a horse rider and sailing kind of person so I´m sure you understand my lack of pacience!) my paraprotien level is now 00. Basically this means I am officially in…[Read more]

EMBERS

ERS passed on to you wordies

Dear Min

I have no idea of how you feel right now and for me to say sorry is pointless. I think that is a given statement anyway.

Please don?t leave this site. We all need people to ?prop us up?. None of us are so misguided to think that the ultimate end is not going to happen to us. I, for one, lay awake at night and try to believe that…[Read more]

OK Tom I meant a place that is further North but not as far as my waist;-)
but I didn't think the naughty word police would let it get through.

Love from Gill xx

DETAILS

Off on a tangent in the early hours of the morning and seeing Roz's word JIFFY which left FFY I was reminded of the fact that I have always been useless at spelling but could spell 2 words with complete ease. You will have to get your own rhythm

Mrs d Mrs i Mrs ff i Mrs c Mrs u Mrs l t y [b]difficulty[/b] and

Mrs m Mrs i Mrs s s i…[Read more]

Dai Thank you so much for the poem. I never could get into the Lord of the Rings books so I would never have seen this.
Gillx

Min. What a wonderful discovery that was and probably painful too. I have read your post over and over again and, although it has made me cry buckets, thank you so much for posting your find.

After 40 years he is…[Read more]

Dear Roz

I am so pleased that you have some good memories coming back.

It sounds as though you were very much loved

Gillx

Tip for ranting Sarah.

Go for it with which ever unfortunate person you get on the other end of the phone. Just a few very angry always acceptable words and just do it.

Only a few seconds. Then take a deep breath and calmly apologise for ranting at that person. Explain that you realise that it is not their fault but you are so upset at…[Read more]

Thank you all so much for your good wishes it really is a boost. Stephen had the lump removed today. He had opted for having it done under a local rather than a general anesthetic.(Is the man mad as well as having mm?) The operation took about an hour and we won't know just what it is for about a week.

His neck is aching and very sore and he…[Read more]

Cheers for, and good luck to both Helen and Debs, I hope everything continues to go well.

As for hair It seems to be a riddle for women or is it just me? Nothing to do with medical treatment but the older I get the thinner the hair on my head becomes. My eylashes become thinner and thinner and as for my eyebrows???

Sooo how the heck do the…[Read more]

Hi Graham and Welcome. If you want to join the under 50s I am sure you would be welcome. I didn't realise that so many of the old duffers on here had snuck in:-)

YOU ALL KNOW WHO YOU ARE:-S

You have had mm for a long time and I am sorry that you have to go through treatment again. Good luck with your Stem Cell Harvest I hope it goes…[Read more]

Hi Aileen

I am sorry you find yourself using this forum. It is a huge shock to get the diagnosis isn't it? My husband has mm.

He went for Xrays as the orthopaedic surgeon he was referred to by our GP thought he had a trapped nerve. A phone call from the said surgeon at 7.30 a.m on the day Stephen was due to go back to get the results should…[Read more]