Get on your way for that holiday quickly Dai Bon Voyage Gill xx

I am so sorry that Peter is so poorly. When Stephen was at his worst in hospital I took him in some tenna pants He only used them once or twice but it gave him the confidence to relax a little. His greatest fear was soiling the bed and watching a nurse having to change it.

Telling him that they were used to such things happening was no comfort…[Read more]

Hi Chelle
Only just read of your rotten news and I am so sorry that it´s taking a while to find the right treatment for your husband and obviously taking it out of your both in different ways. We all understand that it´s very hard to remain positive – at times all we can do is keep going whilst we let the doctors try and figure things out on o…[Read more]

Figers crossed for you and your husband that it is indeed a blip xx

Hi Debs

I think I have said before that Stephen does not visit this site but is always interested in whatever is posted. He has always sufferred from PN and the when on Velcade it became unbearable

He aked me to tell you that his PN reduceed significantly once he started taking the food supplement Coenzyme Q 10 (obtained from Healthspan…[Read more]

Hi I hope in the nicest possible way that Russell and Andy end up not joining us as you do not have mm just a slight blip in perfect health. Good luck Gill

What a fantastic thread. Memories? Too many to know where to begin. The smell of roasting peanuts being cooked in Woolies (woolworths to you young uns). Players number 6 cigarette vouchers (stopped smoking years ago but back then when old enough we smoked ourselves to death to get enough vouchers for a genuine teak coffee table for our first…[Read more]

Hi David

Are you sure your itchy legs are not caused by the "no see ums" :-/ I only popped out to the garden briefly towards dusk and the little blighters got my legs, back (under baggy t shirt) and the tops of both feet.

Why Oh why did we ever put in an 8 foot diameter fish pond in our garden the no see ums thrive around it at this time of…[Read more]

Dear Bridget, and the rest of you all

Let's get this straight. In my view (and I can be very self opinionated!) this site has many facets, and uses. It is full of information, it puts us all in contact whether mm people or their husbands, wives, children, parents, friends, secret lovers?? (that would be fun:-) with others that this wretched…[Read more]

Just to say fingers crossed that he turns the corner soon adn thinking of you both Gill xx

Hope you are back home and on your way to your holiday very soon. Good Luck Dai Gill xx

Hi Ted

Sorry I am late in saying welcome and sorry you have to be here. Do keep dropping in everybody on this site is very friendly and you will get information and support when you need it.

all the best Gill

PS I cannot be the only one that thought Michael Caine had added his picture can I?

I think Stephen has got used to my bullying tactics since he has been ill. I must admit he has the patience of Job. Although it is accompanied by a huge dose of sarcasm. When we go to the hospital and Dr S asks How are you at the moment? Stephen says very pointedly " Let's ask Gill"

Fortunately the Doctors and Nurses at the small hospital…[Read more]

Hi Bridget

Good luck with your radiotherapy. Stephen can't wait for his hit as he is hoping, like you, that it will be like last time and ease the pain.

I would not dream of giving advice to what treatment you should choose, but I have read that Bendomustine is the new lifeline for mm. They have used it a great deal in the States and before…[Read more]

KITCHENS? KITCHENS? Don't get me started. Isn't there an old saying that the cobler's childrens' feet went bare? How about the most respected building contactor in the area never finishes a job at home?

Yup when Stephen was working and employing a small team. A great deal of their work was to gut out and fit new kitchens This was done within a…[Read more]

Hi Min

I do hope you are having a more peaceful Day and that Peter is doing well.

What is it with men? A few weeks ago Stephen was due to phone one of his nurses to make an appointment to have his Hickman line flushed later in the week. He woke that morning with a temperature and rigors.

He said he would tell Sarah that he was not well…[Read more]

Hi Bridget
So sorry your having so much pain – hate to think of you putting up with it if there is something the Hospice could offer above what you already have might it be worth a short stay? Would it mean going in for very long to see if they could help? I know how you feel – I wouldn´t want to be away from home either but perhaps if it´s 4…[Read more]

Hope your feeling better soon Dai. Fingers crossed that your feeling better soon and you get to enjoy your holiday.
Carol x

A little light relief for the weekend Gill xx

I?m Fine Thank You

There is nothing the matter with me,
I?m as healthy as I can be.
I have arthritis in both my knees
And when I talk, I talk with a wheeze.
Sleep is denied me night after night.
But every morning I find I?m all right.
My memory is failing, my head?s in a spin.
But I?m…[Read more]