Hello Angelina,

I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

Hi Anne
So sorry to hear your rotten news – I do understand how very distressed you must be feeling – especially in view of your young family.

I was diagnosed in 2005 and didn´t neet treatment for five years during which time they monitored me and helped with the anemia. I have had chemo and stem cell transplant during the last two years and…[Read more]

Dearest Dai

Ihave just re-read your post regarding the Quakers It sounds lovely Maybe not for me just now but a great possibility in the Future.

Thank you for sharing it.

Best love Gill xx

Dear GAil and Sue

I am sorry I have not noticed your posts. I have been so consumed with Stephen's turn for the worst and death that I have not really been with it at all.

I do hope you are both coping and managing yo come to terms with the loss.

Kind regards Gill

Hi Cathy

Just a quick message to let you know that we are thinking of you both and just hoping that Ivan "turns the corner" soon. As everyone keep saying we really all different and my husband remember well the panick setting in as day 28 in isolation, feeling rotten and having constant infections conditions with absolutely no improvement in…[Read more]

Hi Jennifer

I am sorry you have not had more answers to your post I think it maybe because you have asked questions that us laymen cannot answer. I am sure that the specialist team will be able to help you regarding all your questions and you will certainly get support from the motly crew (me included) that post on here.

Kind regards Gill

Thank you all so much for your kind thoughts and wishes

We are changing [b]nothing[/b]! We are ignorinig the fact that Stephen cannot get out of a chair without crutches and me heaving him up and almost falling over (we laugh! What a pair we have become)

We are trying the best we can to keep life as it was and is and will be for as long as…[Read more]

We are now on the "home run". Stephen's oncologist was shocked at how quickly Stephen has deteriorated. Long consultation tonight meant that Stephen quietly put his foot down with a firm hand (just one of our family's silly sayings)

He had been offered E-hap/Dee hap (I am sure I have spelt them wrongly and/or a very high dose of Bendomustine.…[Read more]

Hi Cathy
Sorry I´m rather late in reading your post and am really sorry that you are feeling so worried – often it´s hard for those who have to watch loved ones go through this process.
It´s quite normal to feel rotten for a while I´m afraid but at least it´s making the cancer cells feel rotten too so it´s not all bad. I was really poorly with…[Read more]

Hi Paul
So very pleased to hear that you have had your STC and can´t believe they let you loose after only sixteen days – fantastic!
Hope your taking things easy and building yourself up – only once a week to the disco for a while I´m afraid.

Take good care

Very best wishes

Carol xxx