Hi Mike

Sorry you have had to join us but a very big welcome to you (and your supporters). I´m sorry that I don´t know anything about carrying etc. but did just want you to know that I was diagnosed in 2005 at age 54 and after chemo and a stem cell transplant I am still horseriding and have just come in from painting the outside of the h…[Read more]

Hi
Thank you so much for taking the time to let us know. I´m not in that position yet as my first is still holding out but it had been worrying me about what it might be like when or if I have to have another.
Hope all goes well for you both.
Love Carol xx

Hi
Congratulations. I´m so very happy for you and it´s great to hear such lovely positive news.

I don´t have any experience of withdrawal but will keep my fingers crossed that you don´t have any!

Hope all continues as well as this and better!

Best wishes
Love Carol xxx

Welcome Alethea

So sorry that we have had to "meet" you like this and that you are having such a difficult time.
I do hope that things get a little bit easier for you soon. I think you will find this site very helpful and the people are very kind and understanding. Talking to other patients who understand the condition and the ups and downs…[Read more]

Hi Andy

Sorry your having such a poor time of it. Letes hope that your meeting goes well with Dr Jackson.

Just a suggestions but I bought a back support belt (only the cheap 6.99 version) from ebay which has helped me a great deal. It has little magnets for the small of your back but I´m really not sure what they are there for. Anyway, it…[Read more]

What lovely posts

I agree with Dai Bridget will not be resting on her laurels but making friends and welcoming everybody. She will probably make people some very angel like brocho hats.

Thank you so much Bridget for your support, words of wisdom advice and, sometimes, just some silly fun.

With much love and sadness from Gill xxxx

I have my fingers crossed for you both, and hope Howard picks up soon. Have the hosital offered him any build up drinks? You can buy them from the pharmacy as a food substitute.

Kind regards Gill

Lovely to hear good news Good luck Gill

As David said things get lost so I will put in my tuppance worth again. We used MIA the first time we went away after Stephen was diagnosed. Then we discovered we were covered for travel on our health insurance policy. So we had paid twice for the first trip >:-(

Do check your existing policies before you pay out.

Bon Voyage Gill x

Tina my advice would be [b]Don't[/b]. If you are desperate for money you may not have a choice, but if you can trim down your living costs then just cocentrate on getting better.

It's my husband that has mm I signed off work with stress when he was first diagnosed as he was so ill then. After an exemplary record of attendance and decades of…[Read more]

Have you looked up neuropathy That can be caused by treatment. Tingly feet and hands and aches

Gill

I am so pleased that Slim is a little better . Stephen had platelets too it seemed to be the norm. I know that I get boring with my home spun ideas (couldn't spell phylosophy) but food is best served very little and often. Served on a tea plate it gives the illusion of tiny and doesn't overwhelm I am sure that Slim will go from strength to…[Read more]

Well done you. Don't forget to check your existing insurance policies (we found Stephen was covered for travel without any extra premium) If not try MIA they covered Stephen before we looked at our existing policy :-/

Gill

Here's hoping that the rev and the dreaded dex do the trick

Dex for breakfast? I think I would rather stick to my toast and chunky marmalade washed down with a strong cup of coffee

Love from Gill

So pleased to hear your news Good luck yo you both
Love from Gill xxx

I wish you both huge luck I know well the journey to Kings I went from Orpington to Denmark Hill and trudged down that blooming hill to Kings with all the "tempting goodies" I could think of. Trudging back was lighter with dirty washing, mainly PJ bottoms (too much information.)

Stephen had both SCTs in Kings a great,wonderful and caring place.…[Read more]

Hi Avis,

Firstly congratulations on being in remission and long may it last. Secondly thank you so much for managing to get your company to sponsor mm uk. What a great achievment. I hope you keep in touch

Kind regards Gill

Hi Vicki

Stephen had 2 SCTs the first gave him 16 months. He sailed through it and felt quite guilty that others seemed to suffer. His second failed and he then was sorry that he had "wasted" some of the time he had left by being in hospital and feeling a bit weak. Hindsight is a wonderful thing:-| Obviously if the second SCT had worked he…[Read more]

Hi Paul

Thanks so much for taking the time to reply when I know your feeling under the weather.

Sorry your feeling tired and missing some hair but one thing ALL my team said in St James´s was that they were always quite pleased to see these side effects and the more severe the better (especially the hair) as they found it happened when the…[Read more]