[brochoParticipant]

Dear Sue I am so sorry to hear things arent going well , no wonder it has hit you hard. Please dont feel guilty , you certainly have no need. Michael can probably see how much you need a break too Try and be kinder to yourself Sue , you are Michaels strentgh and its bound to take its toll , but you do need time away frm myeloma and hospitals etc let alone the huge worry hanging over you I hope things get a little easier lots of love to you and Michael xxx ps my e-mail address is bridget.rochfort@btinternet.com if need to contact me privately x

[brochoParticipant]

Hi Helen and everyone for your kind wishes, I didnt end up in hospital but with another course of oral anti-biotics. B I can honestly say they have only made a minmal difference so I will be taking a bag to clinic this week Most days I cant stay awake for longer than 5 minutes, waliking upstairs is very scary as I am so weak now, probably due to my total lack of appetite for a the last couple of weeks as much as anything So you may not hear from me very much but when I can I try to read some posts Ihope you are all as well as can be lots of love Bridget xx

[brochoParticipant]

Hi Tina trapped wind is awful so painful!! Try peppermint cordial with freshly boiled water and rink it as hot as you can You might have to look in the drinks department at supermarket or an off-licence as its not so popular as it was Good luck hope it works it does for me love Bridgetxx

[brochoParticipant]

Dear Eve and Slim my thoughts and wishes are with you and all of your family To lose someone so special to you all must be devastating , stay strong together and remember the love you gave and were given Lots of love Bridget xx

[brochoParticipant]

Hi Ian glad your ankle problem wss sorted out quickly and simply It sounds as if you have a really good doctor which makes such a difference When I have had unexplained pain, such as you have under your arm, my doctor always offers an mri to reassure me which I think shows they see us a whole person not just a set of symptoms . Heres to your CR lasting a very long time and so good to hear you are feeling well , it makes going through all the treatment worthwhile Take care and have fun love Bridget x

[brochoParticipant]

Blimey Dai you dont do things by half!!Thank goodness you have Janet watching out for you she must have been so worried . I think the sweats are likely to be Revlimid , when I was on it I would pour with sweat at the least exertion and I still have the same problem now I am on Thalidomide. It does get very embarassing but I suppose there are worse side-effects Ihope you get some answers at clinic tomorrow love to you and Janet x

[brochoParticipant]

Hi Jean well thats a coincidence , they probably wouldnt be too chuffed if it happened in ten years time ! They are both so beautiful such lovely eyes Hope you are having a lovely Easter love Bridget x

[brochoParticipant]

Hi Eve yes my eldest daughter is fast becoming just like me but she cant see it ! I realised years ago that I sounded more and more like my mum, although Idont want to end up saying the strange things she does since her stroke!! Still thats what makes the world go round and keeps history alive which I am glad to be part of love Bridgetx

[brochoParticipant]

Hi Stephen I relied on the newcomers page Bridget

[brochoParticipant]

Dear Mavis I have not been up to speed on here lately as I have been a bit unwell so sorry I havent sent you a message. You have really been through the mill yetr your "smile" shines through still . I am glad you are getting your pain sorted even if the juggling does take a bit of time. It sounds as if the hospital is good at getting you the resources you need and as you say its rare for a consultant to push for you too .Sadly I think you are right that being in hospital is better than being home and forgotten about. Mind you poor Gordon must feel as if everthing is happening in a hurry no wonder he got worried. I hope you get home sooner than you think but more importantly that your pain gets under control then everything will seem a bit better. Happy Easter and lots of love Bridget x

[brochoParticipant]

Hi Keith thankyou that does sound very promising, hope it gets the green light even if it takes 6 years. As you say if it came to it whats a flight to Israel compared to a good result. I knew I should buy a Proper Newspaper on Sundays then I wouldnt miss gems like that But those Sunday Trashies are hard to resist !!!! Take care and hope you are feeling well love Bridget x

[brochoParticipant]

Hi Ian swollen ankles does sound like water retention , worth getting it checked out. I always get swollen ankles and calves when on Dex or Prednisalone . Ferusamide tablets are used to get rid of excess water and you should put your feet up as high as possible when sitting, doesnt mean you get to bew fed peeled grapes though!! Keep drinking lots of water as well it helps and a foot and calf massage is good too. Good luck let us know how you get on. How are you feeling apart from the pn ? love Bridget x

[brochoParticipant]

H i Stephen I am so sorry for your loss Dawn must be missed by all who loved her but for you it must be like losing the other half of you As Eve said hang on to the good times and talk with the children about Dawn a lot it will help you all. How very generous of all your friends and family to have raised all that money for M.M.U.K I for one am very grateful as a myeloma patient thankyou. It is such a shame we werent able to support you before but please keep posting there are so many lovely people on here even if you just want rant at the world, you are not alone. Dont ever worry about grammar orspelling you write beautifully because it comes from the heart , which counts for far more.Hang in there and remember the good times Bridget

[brochoParticipant]

Hi Nicola lovely to hear from you Wow what a wonderful turnout for your dad you must have felt so proud of him. When I was very young I was scandalised at people smiling and laughing after a funeral its only as I got older I realised its such a necessary part of the grief process Those laughs and stories told at your dads wake are more precious memories for you. I hope wherever he is your dad was looking down and smiling too Best of luck with your fundraising and a big thankyou for doing it Keep in touch Lots of love Bridget x

[brochoParticipant]

Morning Dai no wonder you have been losing sleep there is nothing worse than having a pain you dont know the cause of . I must admit I am very surprised your doctor dismissed your concern without even doing an x-ray . I think you are right to insist on examination of your shoulder as soon as !If it is mm then it does not necessarily mean your current treatment has failed as it may be be residual damage prior to your treatment Good luck on Tuesday and keep taking the Amitrpytiline lots of love to you and Janet Bridget x

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